Chemar

yes I would absolutely agree that frequent urination can have many varied causes and that one needs to be very cautious about assuming PANDAS without comprehensive diagnostic evidence kidney infections or anatomical problems can also lead to frequent and urgent need to urinate/bed wetting etc and so a careful medical evaluation to check on all symptoms is really a good idea

thanks for sharing that CP God often has angels where we least expect them

excellent info there Caryn we used to talk pyroluria a lot here but it kinda faded with so much else also being discussed a good site to learn about pyroluria http://www.diagnose-me.com/cond/C372380.html i know there are a couple of labs that do the test ...here is one...there are others in previous posting here on the subject so a search should bring them up http://www.kryptopyrrole.com/ (can be done without a dr prescription) pyroluria is often genetic in families with history of alcoholism but not exclusively so I have heard reports of people who have been misdx with TS when in fact they had pyroluria and correctly supplementing the B6/zinc etc corrected this

Hi Indigo my son doesnt have PANDAS tho I have always suspected a PITANDS component to his genetic TS however I know a little about SSRI's from our experience with him on Luvox plus that of friends whose kids were given prozac and also zoloft all of our kids had really bad side effects from these drugs SSRI's are anti-depressants but are often dx for OCD as well as they keep serotonin elevated by preventing it's reuptake in the brain (hence the name Selective Serotonin Reuptake Inhibitors) there are also supplements that elevate serotonin by different mechanisms than the SSRIs and overall they seem better tolerated, tho some do still have side effects to some of them) Because of the OCD component of PANDAS, I guess some docs rx the SSRIs to try to calm this as always I would just urge caution before giving SSRIs to kids esepcially as the FDA does have warnings associated with their use in youth.(this applies to ALL SSRIs) Be sure you research potential side effects very carefully as well as check whether there are any studies done for their use in kids and their effect on the developing brain of a child

Hi Jen I just wanted to mention that I hope your doctor is monitoring your child's blood pressure as liquorice root elevates bp my son takes the DGL liquorice extract for his Crohn's disease and that is the only form that does not raise bp and it also heals ulceration etc that is interesting tho re the testosterone levels as it is known that testosterone (and steroids) elvate tics, one of the reasons it would seem that boys seem to exhibit tics/TS more than girls perhaps that is why my son'stics have been so low too? ************ Juls re the general question on puberty, my son started showing signs around 10yo before he had taken the supps or meds altho he had been on homeopathic remedies for about a year prior kids are definitely entering puberty earlier per se, so I am not sure what the causes are but I wouldnt doubt that the highly chemical environment and food contributes

Hi and welcome here is some info on drug/supp interactions that may be of help http://healthlibrary.epnet.com/GetContent....;chunkiid=33801 we make our own magnesium sulfate cream . making it is real easy . you just dissolve 1/2 cup epsom salts in a just enough hot water to dissolve (dont use too much water!) and then blend into any aqueous base lotion or creme. stir before use. the creams are also available for sale via Kirkman labs and others, but they put other ingredients in that I personally dont like

Guy if you are experiencing these side effects you really should talk to the doc I may be biased because of the issues, including psychosis, that my husband had on it, but I really do feel it is a dangerous drug that needs very careful physician supervision, especially if side effects are prevalent

(((Michele))) so sorry this has you upset substitute teacher's are not usually privvy to any personal information on students as far as I know unless a parent specifically requests on IEP or 504 that all subs need to be informed of the accommodations (??) if she were privvy to anything I believe she would be bound by confidentiality I must say honestly that this would not bother me, provided she was a good teacher but then we have never hidden my sons dx from anyone, neither teachers nor classmates my son was always very open with everyone too and actually found it a benefit to be so Not knowing your situation I dont want to in any way minimize what you are feeling tho

chiropractors are qualified in chiropractic and often have knowledge in other areas, but they are not qualified on giving medical dx honestly I would be very careful of this one after those unqualified comments he made with no medical history on you or your son. re probiotics......we no longer use them for my son as they seem to aggravate his GIT inflammation from the Crohn's...our doc says one needs to use them with care when dealing with autoimmune/inflammatory issues the rest of our family uses natural kefir as probiotic,and my son tolerates small amounts of that far better than he did probiotic supps

my goodness....a person working at a health store told you this???? my first comment would be find a new health store!!! ((((((((((Mary))))))))))) you are not to "blame" and this person is IMHO treading on very dangerous territory by what they told you yes, a woman's health as well as the health of the father can affect the foetus (latest studies show older dads' sperm more prone to genetic mutations) but for that person to make statements about your health when pregnant without having any medical history on you is ludicrous, plus suggesting an autism dx that way for your child is actually something very serious... as to the radiation thing? that isnt one I have heard before but again.....it sounds to me they are way out of line. I have encountered health store people who are hooked on fads and make some pretty outrageous comments. ....ones I have checked with our very open minded docs and have met the same incredulous response as I had....so please dont take what this person said seriously and stick with a qualified professional

glad you are ok Guy my husband had very erratic moodswings on clonidine and especially anger/rage issues upped he found himself imagining things and then getting very worked up about them...tiny things became major issues etc and yes, very dizzy on it too. is your blood pressure being monitored? that really is very important as clonidine lowers bp a lot and that could be why you have the rising light headedness too (blood pressure naturally drops when we go from supine to standing)

CP it sounds like your school is really on the ball ours was too, but sadly it seems many almost go out of their way to make it hard to get the accommodations needed. my son also had signals for teachers to know when he needed to leave the room to let out his tics and later for the Crohn's stuff I mentioned in another thread that chewing gum was also one of his accommodations as it really helps him destress as well as keep the vocal tics down in company in highschool he was also allowed to keep a second set of textbooks home so he didnt have that heavy load in the backpack (his chiro has a hard enough time adjusting for the tics already LOL) but also so he didnt have that added stress of forgetting books he needed home in his locker (the ADD thing) Another accommodation that really helped him was being allowed to type rather than write assignments...his OCD sometimes makes him go over written words for the "just right" and tics can often impact handwriting, which using keyboard doesnt seem to do for him. he also used an AlphaSmart (schools can assign them or you can purchase) really helps with taking notes/organization etc http://www.alphasmart.com

hoping you will check in when you can Guy my hubby had such an ick reaction to clonidine that I am concerned for you. hoping the silence means things are going great tho

thought it may be helpful to those looking into IEP as well as 504 plan to again post the TSA info for these the top section will take you into what the IEP and 504 are for and the bottom is for advocacy help my son had IEP in elementary and switched to 504 for middle and high interestingly the 504 is proving to also be helpful now that he has registered to do some courses at our local community college and same accommodations he had thru highschool are being granted this is really great as he can now get the credits he wants at his own pace. we knew that doing a regular college schedule was going to be way too stressful, especially related to the Crohn's anyways here is the TSA education stuff http://www.tsa-usa.org/educ_advoc/education_main.htm lol Tami I had big smiles reading your report on day 1

magnesium has always had a very relaxing effect on my son and when he needs to relax before sleep , he actually takes natural calm to help with that

no tic increase here with either P-5-P or methylcobalamin...just the opposite.....calming both OCD and tics

PLEASE NOTE!!!!! that Clonidine and Tenex are used to treat **HIGH** blood pressure ie they cause blood pressure to be lowered and so are known as hypertension treating meds or high blood pressure meds Just emphasizing this so no one gets confused as that could be dangerous

a good place to get healthy gum is http://www.naturalcandystore.com/category/natural-gum lots of other healthy alternative candy there too

my son has always found chewing gum to be very soothing and also helpful for vocal tic suppression when required in social settings etc and we even had being permitted to chew it in class built into his 504 accommodations at school here is an interesting article supporting this: http://psychcentral.com/news/2008/09/01/st...e-gum/2859.html

Hi Lyn no, I havent heard that term used before perhaps it is referring to genetic TS and that of other origin?

Hi rysmom we had a similar thing re fishoil...initially it really helped but then it became clear it was triggering tics for my son. that was when we switched to flaxseed oil for his omega3 and increased his intake of wild alaskan salmon and other sources of omega 3s too re the kids calm, I would think it is highly unlikely to increase tics as it is ionic magnesium citrate, but some people do sometimes have a "worse before it gets better" reaction to any new supplement maybe start at half the recommended dose and gradually work up.

my son was put on Luvox because it was considered safer than prozac/zoloft etc at the time for kids he was on it during 2001 BEFORE it was taken off market the doc who continued him on it was Dr Murphy................................................ and one of her interns helped us wean him off it eventually The FDA warning applies to *all* SSRI antidepressants in young people http://www.fda.gov/CDER/Drug/antidepressan...RIPHA200410.htm

welcome Ann from what you have posted there sure does appear to be a clear genetic component to all this I am not sure what specific questions you were asking on tho? so dont want to interject with my views if you are set on certain things and not asking questions on them. hoping you will find the answers you seek here ....we sure will all try to help

Patty have you done testing for microbes/parasites? it was very interesting this past time with my son's OCD/anxiety/phobic flare that we started seeing much improvement after upping his supps for these and he had an intensive acupuncture/biofeedback etc session..... but we also decided to increase monolaurin, olive leaf extract and the candida clear and saw an even more rapid decline in the troublesome symptoms (tho as expected we had a slight spike too....likely die off reaction) I know many things had been at work causing this flare up for my son but his response to these natural antibiotics clearly indicates a bacterial or viral or fungal or protozoan etc connection to us as well. I cant do blood tests on him yet as he is majorly phobic on that still, but the therapist has done biofeedback and detox to cover as many possible infections now too I have always felt there is a PITANDS component to my son's TS and am more convinced than ever now not sure if this may help but maybe part of that "whole picture" I know you are searching for

oh CP I am so very very happy to read this and pray things just keep getting better