pr40

"Will he get better on his own right now? Just curious about that as I have heard people say it went away after x weeks..it has been two weeks for us now...I will pursue diagnosis no matter what just curious what to expect from here...he has no physical tics just obtrusive thoughts ocd" What you should expect is the precise opposite scenario since that would make it more likely for you to help your child. and if the worst scenario does not happen -- well, you'd be among the very lucky ones as was the family mentioned by mama2alex in the previous post.

"is it possible to return to 100% without future flareups?" perhaps. only time will tell. I would want to say unlikely since you are witnessing an autoimmune response. the fact that ibuprofen does wonders is an indication. autoimmuninity is more like a condition than like a one time thing or state. by the way, how do you know this is a flu? in your place, I would have a plan B in case exacerbation returns. i would do all blood tests etc, contact a Pandas/Pans dr, and, in general, begin educating yourself what this condition is.

what if you try to set the rule in advance, like no trips to walmart, no new cloths this week or until she does something you need her to do? or, you can give her a limited budget and she can do it until she runs out of money and that's it? I mean, try to anticipate what she may be driven to do and warn her in advance of where the limit is. we have the same problem, though not as sever case, and I am saying this from that place: set some limits somehow or OCD is going to make your life unlivable.

If I understand it correctly, scan registers lesions. if it could register inflammation, you would have your record.

lithium keeps our ds up as well.

you may be looking for a more complex explanation: because tics are caused by an inflammatory process. stop inflammation, no symptom. your strategy may be then to lower the level of inflammation in general

this is what we did: we started CBT and went for several months. Decided to stop then because we did not see improvement, was too expensive and difficult to get to and, MOST IMPORTANTLY, because we figured out how we could incorporate CBT into what we do at home. The idea was to give dd strategies to cope when she is able to do that. For us that strategy is quite simple since you dd gets fixated on things and "stuck". Getting unstack requires changing her mind set, which she has learned to do by taking a moment to relax and breath deeply, by us giving her a time out and compelling her to take a moment. We also try to literally stop her actions when she gets, for the lack of a better word, hysterical. So, try to identify if there is one thing that defines your child's exacerbations. With skin picking, I am not sure what to suggest. it could be just one of the repetitive behaviors that will pass. Our dd goes back to picking her leap whenever she is in an exacerbation. when she is fine, the habit disappears. Ibuprofen 3x a day helps with this most of the time

if your dd is being treated for PANDAS, what reason does your husband give for taking her to a psychiatrist? in your place, i would think that course of action useless. you don't say how was your dd treated. if it is a bad case, as it seems to be, IVIG may be the best next step. Did you discus that with your dr who diagnosed PANDAS?

one thing: IVIG can be administer by a nurse even at home. it needs to be ordered by a dr. so, what exactly are you looking for, a dr to order it or someone to give it to your kid?

I hope you will get abx after your meeting. otherwise, in addition to what you are doing already, you can do ibuprofen 3x a day, see if you can get a steroid burst, change diet to reduce inflammation. the latter may mean gluten and dairy and nightshades and sugar free, if you are not doing that already. our kids were cycling through symptoms. those that go have only rarely come back. to my mind, this cycling is among the signs that what these children have is an autoimmune reaction not OCD.

major issue here too. comes and goes. it is, definitely, a symptom like ocd and you should approach it as such. that is, you will have only minimal direct effect but perhaps can teach her strategies. it is just that she will not see any reason to change her behavior. it is not like she is washing her hands fifty times. so, we devised reward system if she is nice to her brother when it is difficult to be nice, hoping that over time -- over a long period of time -- this would become new behavior. in general, i find it easier to stop the behavior if I set the rules in advance. anticipate a potential conflict and try to set the rules like no counting sprinkles. we also find that quick time outs help her change her mind set. time outs are times for her to relax, as we explain to her.

did you try giving her ibuprofen with breakfast? it really works with both of our kids. it kicks in about 30 minutes

abx combo? our kids are on cefdin and zytromax.

separation anxiety is a symptom and I would say that your child did not improve as much as you think she did. in my experience, cbt is not helpful at the stage you describe. in your place, I would ask not what should I do about the anxiety? but what treatment is she going to respond to? after she gets better, her anxiety should become more manageable and CBT might help at that point. My suggestion would be to change the lifestyle, diet, etc. start supplements, start two abx, and/or a steroid burst.

from today's headlines http://www.scienceworldreport.com/articles/19845/20141210/warming-pacific-ocean-release-millions-tons-methane.htm i am posting it here because laughing gas seems to be effective against depression that is resistant to treatment, which is what some people on this forum have

abx are given as a prophylactic. but their more important effect seems to be anti-inflammatory. i don't know if you get that with substitutes

this is second hand info, I heard that IVIG works after six months. that makes sense since the reason ivig is given is to resent organism's immune system. in other words, it's a process. monthly ivig is given in smaller doses -- there are basically two different regimes, it seems michel12 got hd.

I agree with Mayzoo's suggestions. I think you also suggest that you do have a solution already, namely to separate them. for our children, keeping them in a room to "calm down" for about 15 minutes usually changes everything. If you are asking what to do when you go out, i am afraid, there isn't much you can do. you could give them what Mayzoo mentions but even that requires time to work. if your kids are young now, it is possible that this symptom will be more manageable when they get older

if he has a tendency to repeat behavior in general, this could be OCD. if this is the only repetitive behavior, it is merely drumming. does he fixate on things? as in not being able to let go of behavior/thought/attitude?

two observations. First, your new drs don't treat labs. great. give them sypmtoms and ask them to treat symptoms. second, it may not metter exactly which condition this is as long as it is treated with long term abx (perhaps a combo). ds should also make life style changes appropriate for someone with an auto-immune disorder, including different diet, supplements, exercize. this is not a recent onset lyme, if it is lyme, and whatever it is now it concerns the whole organism now. i am not sure why you got doxy. doxy is for recent Lyme infections and your ds labs don't seem to support that indication. myco is recent, however.

"It is so hard though to follow gluyten free and dairy free though because I feel such lack of pleasure all the time and am agitated and pych meds make me hungry that I want to eat those foods for the pleasure it will give me." THIS IS NOT THE CASE AT ALL. Gluten and dairy free is very easy to follow today. you just need to inform yourself about gluten free products that are available in your area. go to your supermaket and healthfood store and spend some time there figureing out what they offer. second, there are planty of ways to supplement -- nuts and meat can help. it takes time to get over cravings, however. you may also want to try probiotics, starting with Align.

ivig is a cure for some people but not for most. I'd suggest that you think of your health long term and try to reduce inflammation through diet and life-style and supplements. hot baths or sauna, apparently, may also be helpful for some.

we saw those year round for two years after pandas started. we haven't seen them in a while now, over 6 months. dry weather but also ibprofen can make things worse. now, thinking back, nose bleads disappeared when RLS disappered which is when we switched her to her current abx, ceftin.

given this history, and her auto-immune disease, I am not sure how can anyone diagnose your child with just OCD. It seems obvious that there is a significant autoimmune issue and that it might have OCD as one of its symptoms. the question is what you should do. you may want to start with usual blood tests -- there is a list among the pinner materials. and go from there. it is hard to direct you without having at list some test info. I would also do a lyme test, just in case.

did you consider lyme? one of the symptoms is meat allergy. google it.