pr40

Thanks, EAMom. We tested for Lyme, not sure what test, which came negative, will try it again.

our dd8 seems to have PANDAS with RLS like symptoms and we are looking for others with similar. She is now taking clonazepam 1mg and we are thinking of switching her to neurontin (Gabapentin) since the first drag has no effect other than helping her sleep. In our case RLS is not hereditary. advice? thank you in advance for responding.

yes, please, let us know whom you use in CT. thanks in advance, petar

We are still trying to diagnose our dd8. Although we live near Boston, we haven't had luck finding a doctor with experience with PANDAS. She had strep in October 2011, symptoms started early December, grow worse until March, then stabilized, suddenly lessened in April. We are up and down now, never completely gone. DD has some symptoms from the PANDAS list but not the OCD one. In stead of OCD, she has restless leg syndrome. She has problems sleeping, regressive behavior, is often irritable. Of symptoms that could count as OCD, she picks her nose or touches her mouth constantly. She has headaches, nausea, heartburn. Are there other similar PANDAS cases? Anyone with RLS-like symptoms? Thanks in advance for responding.