PANDAS is remission for 2 weeks now (both sons)!

[fuelforall]

Ok, here we go. Got the scrip, gonna try it and see how it goes.

Wish us luck, folks. We'll let you know.

 

Michael

 

Are you trying it on both boys? What dose? Good luck! PM me after a few days and let me know how it is going!

Stephanie

 

 

No, just the older boy for now, then we'll see.

25 mg in the Am, 25 mg in the pm. Should be about right, based on what you had to say.

 

My wife wants to wait until the weekend. Bet she sort of regrets it, we had a terrible morning.

[faith]

Michael

why are you trying this out? how are things since the last IVIG?

 

 

 

Faith

[Stephanie2]

Ok, here we go. Got the scrip, gonna try it and see how it goes.

Wish us luck, folks. We'll let you know.

 

Michael

 

Are you trying it on both boys? What dose? Good luck! PM me after a few days and let me know how it is going!

Stephanie

 

 

No, just the older boy for now, then we'll see.

25 mg in the Am, 25 mg in the pm. Should be about right, based on what you had to say.

 

My wife wants to wait until the weekend. Bet she sort of regrets it, we had a terrible morning.

 

Well, if you get the same response I got you will wish you started it right away! You just may do a little dance!!

 

That is interesting that you are doing 25 am and 25 pm. I am starting to think that my 2 yo's spiro is wearing off at the end fo the day. He starts fixating on things and getting really fussy. Then in the morning he is an angel. Thinking about splitting it up. maybe second dose in the afternoon so he is pleasant at the end of the day...

 

I don't notice the wearing off so much with my 5yo, but maybe a little. Still observing. Also, my 5yo is not up to max dose yet. In a week or so we go up to 50 mg.

 

Let me know if you get any constipation our doc gave us the perfect combination of buffered Vit. C and magnesium (which also helps the tics) and both of my kids are going once a day...

 

Stephanie