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Everything posted by fuelforall

  1. Hi, glad you are talking about Vax issues. I am just now watching interviews with Vaxxed2 filmmakers https://www.brighteon.com/6baad468-b7d4-4c2e-bc22-30db4ec55f53 I just don't use google whenever possible. That's all. Time has come for cabal overthrow.
  2. Hi everyone, haven't posted since 2015 Well, as it turns out, I did end up with two Pans boys. I went into denial about the second one but it became evident the second one was showing behaviors that were not neurotypical. His flareup when he got sick included "spells" in which things got bigger and things got smaller and he was in terror. Not fun. Then there were hours of animal noises. Anyway... My older boy is 19 now and is coping by himself, thanks to his friendship with a healer. HIs tics are still bad alas. But he is high functioning and is somewhat of a starseed, so I a
  3. Hello, all! My son is on a very strict diet (SCD) to deal with his symptoms, tics, ocd, etc. He has come a long way but he feels isolated. Do any of you have teens who would like to communicate with him and talk about how bad sugar is, how everyone gets sicker with it, etc etc. He would love it if that person were in the NYC area. Thanks and good luck to everyone! Michael
  4. Hi, Sydney! Here is an article quickly for us all to look at. http://www.express.co.uk/life-style/health/614451/Disease-ticks-discovered-unaffected-antibiotics I know Healers Who Share. They have done wonders but my son needed to buy a year and half's worth to stabilize and it didn't seem practical. The whole house had to take the waters for gut problems for a while as part of the deal. Glad you believe you can get better. You should definitely find someone with a Rife machine, as Suzan notes. That could be very helpful if you do it every day without fail for a few weeks. I
  5. Beerae listen to everyone else. I stayed in denial on my second son for a long time. We got him abx and saw improvements. I may have more to report at a later date. Please everyone, watch Truth About Cancer. Buy a copy and have screenings or something. Best wishes
  6. Jeez, it gets worse, folks. Look at this. Three alternative doctors and mysterious deaths. http://www.healthnutnews.com/3rd-alternative-prominent-doctor-from-florida-found-dead-in-2-weeks-authorities-say-md-was-murdered/
  7. Can JuliaFaith talk about the Bemer mat? My healer says it will do wonders for PANS but only after consistent use for 18 months or so, which is tough. Thanks!
  8. Bumping. Looking for updates here..... Thanks.
  9. Well, you are getting to this early, so that should help. It is a good time to work with a therapist using CBT if she is cooperative. Anxiety is part and parcel of PANS/PANDAS so it's not surprising. For anxiety, I recommend omega 3s. Specifically ones that have 90% EPA and 10% DHA. The high levels of EPA reduce anxiety, according to studies. I believe its 1000 mg a day. My younger son has been doing it (I wish the older one would but he hates swallowing anything) and doing better on it. Our brand is Minami Nutrition Plus EPA. You may need to consult with your PANDAS doctor o
  10. Pharma money, hand in hand with government.... The organization that conducted the study is the Lewin Group, a corporate healthcare consulting firm based in Falls Church, Virginia. The Lewin Group works with a wide range of players in the medical establishment. Most notably major pharmaceutical companies like Pfizer, Johnson & Johnson and Novo Nordisk among others. It should be noted that at least two out of these three corporations are not only vaccine proponents, they are vaccine manufacturers. The Lewin Group also works with a number of major medical and pharmaceutical associations
  11. I know Dr Schulman in Brooklyn does. Susan Schulman. You can get her info off the Net. She talks to people in Israel and Greece.
  12. I found this right away. http://www.amazon.com/Jarrow-Formulas-Pterostilbene-Vegetarian-Capsules/dp/B005ACNW5S Talks about inflammation and similarity to resveratrol. Reduced oxidative stress and a properly modulated inflammatory response seem to be at the root of enduring health, particularly cardiovascular health. In vitro and animal studies suggest pterostilbene has positive effects on multiple inflammation-related biomarkers.*
  13. http://www.drshrader.com/lda_physicians.htm Not IVIG, LDA....
  14. Oh, yes, there are quite a lot of people on the East Coast. Drs Bock and Compain are versed in it. They are in Rhinebeck, NY We see Dr.Marjorie Ordene in Brooklyn, she does it. I am sure if you check Dr Shafer's website, there is a list of practitioners who caan do it for you. How far upstate are you? I can't say it has been successful but we have one more treatment and we don't treat lyme. My son's allergies are better when he stays off gluten and artificial colorings and sweeteners. Good luck!
  15. http://www.naturalblaze.com/2015/04/glyphosate-one-of-3-herbicides-causing.html Antibiotic resistance caused by glyphosate.
  16. ibuprofen. 1200 mg a day. See how it goes. Also, try to get her to follow the ketogenic diet for seizures etc.
  17. I'm not sure what to think of this, it scares me a little. But I thought everyone should see it. http://fusion.net/story/57515/darpa-thinks-it-has-a-solution-to-ebola-and-all-other-infectious-diseases/
  18. I guess it can be done to rule out seizures....
  19. Thanks, this is important to know. Anyone else?
  20. I would like to know if PANS parents have had MRI's done on the kids' brains. Were any observations made? Any conclusions? Signs of lesions? Causes of seizures determined- after all, tics are mini seizures..... Did you have to convince insurance to do this? How did you do so? Please relate any experiences here.
  21. I know Alzheimer's is different but.... is it? All of you who read this stuff know what I mean.... this has implications. http://www.sciencealert.com/new-alzheimer-s-treatment-fully-restores-memory-function
  22. Hi Concerned Dad, Yes I know that look well and yes it is PANS related. I wouldn't go to too much trouble with EEG's and such but.... you just have to treat the PANS. The zoning out is one of the symptoms. Yes. Mike
  23. This has implications for all of us whose PANS kids have gut issues. http://www.ageofautism.com/2015/03/autism-and-the-microbiome-will-fecal-transplants-be-the-next-awakenings.html#more
  24. Like to echo Mama2Alex here, how are you, M2A? Been on this forum a while, haven't we? My son is totally off dyes and colors and aspartame. Watch out for emulsifiers too, as was posted, that's polysorbate 40 for those keeping track. Anyway, I had to post this because my son is improving on abx and because he is staying away from gluten religiously. Studies have found associations between gluten sensitivity and disorders in every part of the neurological system including the brain, spinal cord and peripheral nerves (1). Gluten is a significant trigger in psychiatric disorders, movement dis
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