Prednisone burst

[kimballot]

My son was on a 5 day course of prednisone April 10-14 for sinusitis, then was put on a 17 day course that started April 23 (today is day 8). He asked me today if prednisone brings back old symptoms (he does not know anything about "turning back pages" in IVIG). Says he noticed a few days ago that he started having the compulsion to "sound out words" in his thoughts. Says he's had this in the past. It is not bad now.. he says it is not interfering.. just a familiar thought pattern that returned.

 

I was wondering if prednisone may also "turn back pages". Anyone have experience with this?

[JAG10]

I saw my dd10 do this stretching compulsion she hasn't done in two years and waking up super early, turning all the lights on in the house nonsense we haven't seen in 2-2 1/2 years. It lasted two days. She's also experiencing some math losses we haven't seen in a long while either. There's more, but you get the idea. This symptoms surfaced and vanished (after 5 days pred., 40 mg.,) 2 wks later.

 

The brain is facinating isn't it?

[ajcire]

Is there a significance to the 17 day steroid burst? Is that a common length of time for one to be done?

[kimballot]

Is there a significance to the 17 day steroid burst? Is that a common length of time for one to be done?

 

 

I am not sure why Dr. B picked 17 days. It may have had to do with my son just finishing a 5 day course. I am assuming he based it on my s on's symptoms and his goals fo r him, as my son has severe sinusits and allergies.

[Mary M]

turning all the lights on in the house nonsense The brain is facinating isn't it?

 

 

My dd turns all the lights on...I just thought it was her. I so appreciate this forum...makes me feel less isolated, still sad...for all of us... but at least less isolated.

[peglem]

turning all the lights on in the house nonsense The brain is facinating isn't it?

 

 

My dd turns all the lights on...I just thought it was her. I so appreciate this forum...makes me feel less isolated, still sad...for all of us... but at least less isolated.

Mine turns them all off!

[kimballot]

My dd turns all the lights on...I just thought it was her. I so appreciate this forum...makes me feel less isolated, still sad...for all of us... but at least less isolated.

Mine turns them all off!

 

We have the lights on thing too... lights on all night in his room when he is really bad.. but melatonin has helped that.

[Stephanie2]

I don't know the answer to your question but I just had to mention that I sometimes get the compulsion to "type" out words in my head. It's weird and it's something I have to really push out of my mind when it gets annoying. I have been trying to see if there is a correlation between when I do this and when my kids have strep or are sick. I wonder if at times I also have pandas, not just because of that, I get depressed when I or the kids are sick and I also have a few other subclinical-type tics that only I notice(and every once in a while my husband notices).

 

OK, that was a little off topic, but you can tell your son that I am glad I am not alone in this!! :-)

 

Stephanie

 

My son was on a 5 day course of prednisone April 10-14 for sinusitis, then was put on a 17 day course that started April 23 (today is day 8). He asked me today if prednisone brings back old symptoms (he does not know anything about "turning back pages" in IVIG). Says he noticed a few days ago that he started having the compulsion to "sound out words" in his thoughts. Says he's had this in the past. It is not bad now.. he says it is not interfering.. just a familiar thought pattern that returned.

 

I was wondering if prednisone may also "turn back pages". Anyone have experience with this?

[kimballot]

I don't know the answer to your question but I just had to mention that I sometimes get the compulsion to "type" out words in my head. It's weird and it's something I have to really push out of my mind when it gets annoying. I have been trying to see if there is a correlation between when I do this and when my kids have strep or are sick. I wonder if at times I also have pandas, not just because of that, I get depressed when I or the kids are sick and I also have a few other subclinical-type tics that only I notice(and every once in a while my husband notices).

 

OK, that was a little off topic, but you can tell your son that I am glad I am not alone in this!! :-)

 

Stephanie

 

I wonder how many of us have these subclinical issues... are we just more aware of them because of our children? Thanks for the post.

[Fixit]

can there be turning back the pages on just abx??

 

did sammy have turning back of pages???

 

another question on sammy...does anyone know how long it took, once they started abx for sammy's mom to notice things were getting better??

10days, 3weeks, a month.....and was it the ocd first or the tics...

and was is just a softening at first or less in number///

 

i read it but returned it to library

[Stephanie2]

I don't think it was an overnight turnaround, but I don't remember exactly how long. I do know that it was a slow, gradual recovery for sammy. I also returned mine to the library.

 

I have to say that with my boys, the response seems to be different. One has the slow, gradual response to abx (2 yo) and the other has the overnight "wow" response (5yo). Also, one had the slow return of symptoms after steroid burst (5 yo) and the other went from pandas in remission one night to "exorcist" by the next morning after steroid burst (2 yo). One has a fast, good response to ibuprofen (5 yo), the other has an occassional, slow response to ibuprofen (2yo).

 

Not sure what my point is, but just to say that they are all different, some more resistant than others. My 2 yo scares me b/c it is very hard to "remit" his symptoms.

 

Stephanie

 

can there be turning back the pages on just abx??

 

did sammy have turning back of pages???

 

another question on sammy...does anyone know how long it took, once they started abx for sammy's mom to notice things were getting better??

10days, 3weeks, a month.....and was it the ocd first or the tics...

and was is just a softening at first or less in number///

 

i read it but returned it to library

[momaine]

I know Beth talked about a saw toothed recovery...sort of two steps forward, one step back. I am pretty sure that they saw a positive response to antibiotics within a few weeks but then recovery was slow and sawtoothed. She did tell me personally that once they figured out he needed to stay at 2000mg of Augmentin XR, (trial and error when trying to lower the dose) that it took 9 months before he was symptom free.

 

Angela

 

can there be turning back the pages on just abx??

 

did sammy have turning back of pages???

 

another question on sammy...does anyone know how long it took, once they started abx for sammy's mom to notice things were getting better??

10days, 3weeks, a month.....and was it the ocd first or the tics...

and was is just a softening at first or less in number///

 

i read it but returned it to library

[momto2pandas]

This is so odd. It reminds me that when I was a kid in an exacerbation, I had to have all of the lights on too. I had forgotten all about that.

 

 

My dd turns all the lights on...I just thought it was her. I so appreciate this forum...makes me feel less isolated, still sad...for all of us... but at least less isolated.

Mine turns them all off!

 

We have the lights on thing too... lights on all night in his room when he is really bad.. but melatonin has helped that.