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momaine

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About momaine

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    Maine

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  1. Thanks again LLM. I've printed out your posts so I can refer back to them. Will look into getting some Glutamine too. I don't know how you keep all this stuff straight. I appreciate your help more than you know.
  2. Thanks for asking about me LLM. I am doing pretty good. I wish I could say I've kicked Lyme's butt but I'm still struggling with Bartonella. My only symptoms that are left are joint pain (didn't even have it when I started this journey, well not much anyway) and some fatigue. (when I don't take my cholestyramine) Most of the time I feel blessed to have gotten as well as I have and I seem to be cancer free the last year and a half or so and that is a blessing. Dd is doing ok. She is one of the kids who can't get ivig anymore and that has set her back. (though part of that may actually
  3. Thank you all so much. It is so much information. I don't even know where to start. I am going to try the CP-1 and the Solgar Molyndenum first. How many of each can I give her per day?
  4. Haven't been on the forum in a while but glad to know you ladies are still here helping. Dd has positive igG, IgM, and IgA for Candida despite daily 10 billion saccharomyces Bouliardii, 200mg of Diflucan daily, and 500,000Units of Nystatin twice daily. I've just figured out that birth control can contribute to yeast (so we will stop that). But I also read that taking Diflucan/Nystatin undoes the good of the Sacc Boul. I've also just figured out that yeast can cause all the symptoms she has had lately that are worse than normal. (she has lyme) Her fatigue has been much worse, let
  5. cholestyramine was a life saver for me during herxes. It really made a difference. I took two doses per day on the really bad days. On the days I didn't take it I would sleep at least 3 hours in the afternoon and wake feeling just as tired. On the days I took it, I didn't even need a nap.
  6. no, but I do take MSM orally and have for years for back pain. It's great stuff.
  7. nevermind, it is working now. I can't figure out how to delete this.
  8. Anyone called Dr. Jones' recently. The number says its out of service. Hoping that is a temporary glitch.
  9. Michael, I hadn't thought of it that way, but you are absolutely right. Thank you! Angela
  10. Hi Philamom, We are hanging in there. It's definitely a long recovery from Lyme but even on the bad days things are not like they used to be. You do get used to a new normal though and any back sliding seems to be unacceptable to both of us. Lately, dd is struggling with vaginal yeast infections and stomach issues. We're trying Florastor but I wondered if it was a waste while on multiple antifungals. Though Dr. J is the one who suggested it and he knows she's on antifungals. (I always wonder if they over look stuff though.) OK we will go with it. Maybe it will still help even if its a
  11. Hello oh wise parents of Lattitudes, My daughter has been having more frequent stomach aches. She's been on antibiotics for so long, its no wonder. We have had success all along taking Culturelle, but now its not enough. Our dr. suggested taking Saccaromyces Boulardii, but upon googling it, I see that antifungals, such as Lamisil and Diflucan at the least, reduce its efficacy. Dd strugggles with vaginal yeast infections and going off an oral antifungal is not an option at this point. Is it pointless to take Saccharomyces Boulardii if you are on antifungals? Would it make a diffe
  12. We were in the exact same boat as you a few months ago. My dd sees the same doctors. Dr. B wants to work toward getting her off unnecesary drugs. (of course I want that too) And Dr. J was feeling that we needed to see a psychiatrist and add in something. I didn't have a psychiatrist for dd and the waiting list is 6 months out in my area. My family doctor was willing to try one of Dr. J's recommendation. (didn't work for my dd) Dd was already on an ssri per our family doctor and seemed like a good fit for her but I didn't know if the other suggestion might help even more. We tried cha
  13. My dd's LLMD cautioned that Rifampin often makes ocd intollerable for kids who have that as a lyme/pandas symptom. I am also being treated for lyme/bart. I'm presently using the combo of minocycline and rifampin (previously doxy and rifampin) with good results. When I tried to take Augmentin, I had an overnight improvement but found I was allergic and had to discontinue it.
  14. My dd's herxes lasted months at a time and initially worsened a month into lyme treatment. I feel like the toxins finally built up to a level that her body just couldn't handle at that point. The things we did for detox helped the most. Advil helped too.
  15. It is definitely tough and the one thing that has gone by the wayside for me (besides cooking and cleaning) is getting on the forum. I miss it though. Thankfully, we are in a place now that I don't feel like I have to read it all the time. One thing I wanted to mention after reading your post is that my llmd is great about adding meds in slowly and backing off if I can't handle the herxing. She realizes I have a lot on my plate and that I have to be able to function to some degree. There are alternative drugs if some are not working or causing too big of a herx. Since my cancer diag
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