melanie Posted April 22, 2009 Report Posted April 22, 2009 Im going to try this too!! Anyone have any positive or negitive feedback?
patty Posted April 22, 2009 Report Posted April 22, 2009 IMO, i would reconsider habit reversal therapy just because TS or tics is not a habit. It is an involuntary movement disorder. I think the therapy would cause your child to have more awareness of his issues and cause more stress if he does not find the therapy helpful. Have you tried acupuncture, chiropractic or craniolsacral therapy...? On this board, quit a few of us find acupuncture fast acting and helpful in reducing tics. Pat
melanie Posted April 22, 2009 Author Report Posted April 22, 2009 IMO, i would reconsider habit reversal therapy just because TS or tics is not a habit. It is an involuntary movement disorder. I think the therapy would cause your child to have more awareness of his issues and cause more stress if he does not find the therapy helpful. Have you tried acupuncture, chiropractic or craniolsacral therapy...? On this board, quit a few of us find acupuncture fast acting and helpful in reducing tics. Pat Hi Pat we do accupuncture not chiropract Is there a good link to read about that? thought of doing it will do it Rutgers University Phd program has a Tourettes counseling clinic They do alot of HRT with + results My son has verbal tics that are pretty bad Ill try anything!!!
Chemar Posted April 22, 2009 Report Posted April 22, 2009 Melanie I have only heard negative things on HRT re true Tourette tics some report an increase in OCD when this is tried I dont know what techniques they use where you reference, but I would still be very cautious if it were my child as Patty says, TS tics are NOT a habit. they are involuntary neurological reactions Cognitive Behavioral Therapy CBT is a far better way to go to help teach coping skills for those tics IMHO
AHB900 Posted April 23, 2009 Report Posted April 23, 2009 Sometimes i feel that these things can be habits. I have some tics that i just have NO control over, but their are others that i can keep my self from doing i just cant stand the feeling of holding them back. For example, eye blinking i can hold it but if i hold it my eye starts getting uncomfortable causing me to blink. Or neck stretching my neck feels uncomfortable so if i try to not stretch it starts feeling even more uncomfortable so i just stretch it. Others that i feel that are involentary are some vocals tics and sometimes head bobbing and arm movements.
AHB900 Posted April 23, 2009 Report Posted April 23, 2009 Sometimes i feel that these things can be habits. I have some tics that i just have NO control over, but their are others that i can keep my self from doing i just cant stand the feeling of holding them back. For example, eye blinking i can hold it but if i hold it my eye starts getting uncomfortable causing me to blink. Or neck stretching my neck feels uncomfortable so if i try to not stretch it starts feeling even more uncomfortable so i just stretch it. Others that i feel that are involentary are some vocals tics and sometimes head bobbing and arm movements.
lynsey Posted April 23, 2009 Report Posted April 23, 2009 OK, this is probably gonna sound way out there for some of you, but have you ever tried what I call "tic substitution" or "tic modification"? These are terms that I came up with for how I helped my sons deal with some of their more noticeable tics. For example, if they would exclaim: Jesus! I would suggest that they say something very close but not exactly, like: "Jeez!!!" which sounds a lot better if they are exclaiming these words in public. Or a physical tic such as hair twisting, you can possibly modify by having them twist a string in their hands instead. Now, I can't say this would work for everyone, but it did help my sons through some of their more noticeable tics. Even if they got stuck on the "tic substitution" it was usually less-noticeable and more "mainstream", and so they were less stressed about it, and consequently the tic would eventually wane completely (as opposed to them being stressed about a noticeable tic, which only exacerbated it). Again, might not work for everyone, but it did for us and so may be worth a try for some of you. Lynsey
Chemar Posted April 24, 2009 Report Posted April 24, 2009 Hi Lynsey substitution is one of the techniques my son learned during Cognitive Behavioral Therapy *really* helped him when he was going thru coprolalia he has developed remarkable ways of coping with his tics in public and even tho he only had a very short period of formal CBT when he was much younger, the coping skills he learned will last a lifetime good for you on helping your kids learn to substitute instead of suppress. SO much better for them as the tic can still release that way without the physical & psychological stress of suppression
lynsey Posted April 24, 2009 Report Posted April 24, 2009 Hi Lynseysubstitution is one of the techniques my son learned during Cognitive Behavioral Therapy *really* helped him when he was going thru coprolalia he has developed remarkable ways of coping with his tics in public and even tho he only had a very short period of formal CBT when he was much younger, the coping skills he learned will last a lifetime good for you on helping your kids learn to substitute instead of suppress. SO much better for them as the tic can still release that way without the physical & psychological stress of suppression Thanks Cheri, I appreciate your feedback. I've done years of CBT for my anxiety, and helped my sons by teaching them some CBT techniques for their anxiety, but I didn't realize that the "tic substitution" was a CBT technique. That's great to know, as I am a die-hard fan of CBT...it saved my life, and I was determined to have my sons learn it much earlier than me. It's great that you exposed your son to CBT when he was young, I think it is the most useful non-medicinal tool out there. However, I found my sons did not like formal CBT training much at all (no real reason, the psychologists were beyond excellent, my sons just weren't receptive), but they were much more receptive to me teaching it to them, as situations arose. Lynsey
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