Guest Guest_efgh Posted April 11, 2004 Report Posted April 11, 2004 Claire congrats! I am SO happy for you and your son. great to know that is back to his "normal" personality. sorry, If I had not read in your earlier posts - can you please let me know if your son was tested positive for yeast? why did the doctor prescribe capyrylic acid - which test was taken to show that his system had yeast? thanks and goodluck to you!!
Chemar Posted April 11, 2004 Report Posted April 11, 2004 Easter Blessings to All Claire, I was so happy to read your post and to share the joy you are feeling at seeing those improvements. I personally think you are seeing a combined effect.....his system is less irritated by the removal of allergens PLUS the yeast is lower, and also unable to reproduce as virulently in a less inflamed environment. With diminished irritation from both allergens and yeast toxins, his immune system etc is strengthening and so promoting better health and wellbeing. I am just so delighted for both of you that you are seeing the rewards! and kudos to your son for being such a brave young man and accepting these changes efgh, capryllic acid is one of the very best supplements available to use in conjunction with a yeast elimination diet. It contains capryllate blended with a high dose combo of magnesium, calcium and zinc... the very best test for Candida/yeast is a blood test as that picks it up everywhere...stool tests only detect the yeast in the GIT.
Ronnas Posted April 11, 2004 Report Posted April 11, 2004 Claire, I am so glad to hear of the improvement. We also noticed big changes with the food elimination diet. Within a week Kurt was back to his old personality and I hear you about how nice it is to not be "irritating". You are doing an amazing, wonderful job with your son. Congratulations. I have found that eliminating the offending foods is not that hard given the results and Kurt understands this now also so he is onboard without too much complaining. Take Care, Ronna P.S. I also have spent a small fortune on restocking the kitchen! I am going to take an asian cooking class. The asian cooking books are awesome as you can actually find recipes that work. A side bonus is that I have lost 10 lbs as we must have the "healthiest" cupboards in the city!
Ronnas Posted April 12, 2004 Report Posted April 12, 2004 Hi Claire, I just got lucky that Kurt will eat anything. My other son is probably the pickiest eater around and I think he would rather die than eat asian food! I feel like a restaraunt cook because everyone is eating something different. Believe me my other kids want no part of having a dairy, corn, egg, chocolate free diet! ronna
Guest leslie Posted April 23, 2004 Report Posted April 23, 2004 I am in need of information. i have been reading your past communications regarding environmental doctors. I live in Houston, Texas. Are you familiar with any specialist in this area? What testing do you feel is important for tourette syndrome and related disorders. my daughter has motor tics, ADD, mood issues, some learning differences, does not move easily from one task to the next without chaos, and has low self esteem. She is explosive with me/mom in all settings, which often labels her by others, but she continues with this behavior. She does not have behavior problems at school, but continues to fall behind in a few academic subjects and has social struggles. She has little understanding about her TS and it's neurological basis. I feel she would feel better if she had an understanding and could begin to feel ok with her differences, and begin to value her strengths and take ownership of her life. She has been on numerous medicaions, and none have been helpful. Years ago, we did allergy testing and she was on bonnie's vitamin supliments. This did not seem to make a difference and she began to refuse to eat certain foods and stated she wants to be a "normal" kid! Any ideas?
Chemar Posted April 23, 2004 Report Posted April 23, 2004 Hi Leslie here are the links that were posted for finding physicians that are specialised in natural medicine, while still being fully qualified conventional docs. (The original thread link is posted below as the info in it given by Dr. Sheila Rogers may be very useful ) http://www.aaem.com http://www.acam.org the thread is at http://www.latitudes.org/forums/index.php?showtopic=79 There are a number of supplements that help with moods, but it is a good idea to first see a doctor, and get a clear diagnosis. Especially if your daughter only has motor tics, not vocal, she may not have "classic" TS but rather be dealing with other issues. Have you had a clear TS diagnosis? I know you mentioned being on meds......is she now off them? My son actually got MUCH worse on meds! We didnt see a DAN doctor, but instead had help from an Integrative Medical Doctor (like many on those lists above) who works with a team of people, each specialised in a particular area, so that a very comprehensive treatment is provided. The tests we had run were similar to those that Clare mentioned, but mostly bloodwork and also radiogenics. I would also mention that it is very important to have a bloodtest to detect whether your daughter falls into the PANDAs category...where tics, moods, OCD etc etc can be caused by strep and related viruses. This is NOT necessarily just the "strep throat" virus, but others that dont always manifest in the recognisable forms, but instead cause all these other issues. Some people, especially those who are not necessarily "classic TS" just dont respond to Bonnie's vits because there are other problems underlying their tics and moods etc. That is why testing for PANDAs, Yeast(Candida albicans), Mercury or other heavy metal toxification, etc. are so valuable. My son also found enormous benefit from accupuncture, biofeedback (this is NOT the same as neurofeedback, which I dont recommend) and reflexology Leslie, I know it must be very hard to deal with all this, especially when it seems your daughter is not wanting to avoid the foods etc that could make things worse...that is tough! If you could find a good psychologist who could help her work thru her struggles that may help....but it is so important to find a sympathetic therapist!! There is a great website that many young people seem to relate to well called Life's a Twitch. http://www.lifesatwitch.com Dr Dunc is a psychologist who has TS himself and has a wonderful way with youth. He is also very gracious in replying to emails. There is a chatroom for kids called the Haven on his site. For my son, the biggest breakthru in his battle to live with TS/OCD/ADD/SID was when he began to educate himself and when he accepted it, and became determined to live a full and happy life in spite of it. His "oppositional" attitude changed, and now, at 14, he takes really good care of his diet because he knows and avoids things that set him off, and is diligent about taking his supps. Most of all, he is very upfront with others about his TS etc, and so has formed good friendships and acceptance from the kids around him. I do hope my long ramble will give you some pointers Do stay in touch here.......it is a great community of caring, sharing people!
Guest Guest Posted April 27, 2004 Report Posted April 27, 2004 Thank you so much for the support, sites, and information. I will keep you informed of our findings. I did get some information back from latitudes and Bonnie G. I also am looking into doctors on your various lists. Do you think it's necessary to do brain mapping or other psychological/neurological testing? My daughter did get a full TS diagnosis at age 8. At that time she had motor tics and a vocal tic of humming and making soft noises. These same tics have occurred a few times over the years, however, her motor tics are much more bothersome to her. We also did run blood work regarding strep etc. but her system is clear of this. I do like the idea of an interdisciplinary approach, but isn't it difficult to get the doctors to work together and get on the same page? By the way, did any of you read George F. Will's article "Mind-body nuance clear for Texas lad"? It was in the Houston Chronicle on Monday, April 26, 2004 page 20A. If not, please read it. It was positive and well written. I hope more columnist will write on this important subject. It didn't hurt that he is a Pulitzer Prize winning syndicated columinst! Thanks again, Leslie
Chemar Posted April 27, 2004 Report Posted April 27, 2004 I do like the idea of an interdisciplinary approach, but isn't it difficult to get the doctors to work together and get on the same page? That is what i really love about the team we have.................they all willingly work together and refer to each other when an area is not their speciality....there is also a pediatrician and a chiropractor and numerous other "specialists" on the team(gynegologist, endocrinologist,nutritionist, massage, accupuncture, reflexology, biofeedback, radiogenics, homeopathy, to name but a few).....some are in the same office as the MD who oversees the team, others have their own separate practices.........they share info by phone and often also have group meetings to discuss the progress and protocol for individual patients.....I realise this is not a common phenomenon, but I do hear of more of these Integrative teams forming, so that is encouraging. Thanks too for the pointer to the George Will article...I am off to find it!
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