Very encouraging Results with these Supplements

[ruby23]

Hi Carolyn,

 

One more thing since I've frequented this site I've heard about yeast being a problem and have also starting giving my son yeast guard. He has always had an issue with constipation and huge bowel movements. This weekend he was had to show me his bowel movement which looked rather normal. He was so surprised at how easy it was and asked me about the shape and size of it. I said that is normal. He actually seemed happy almost giddy about a bowel movement. I thought it was so funny but I really think that the yeast gaurd is helping to eliminate the over abundance of yeast in his system. I have to read more on this topic but like I said, I've never seen my son this happy about a bowel movement. His mood is much better too.

 

Thanks Again,

 

N

[MARYANN]

Hi Carolyn,

 

One more thing since I've frequented this site I've heard about yeast being a problem and have also starting giving my son yeast guard. He has always had an issue with constipation and huge bowel movements. This weekend he was had to show me his bowel movement which looked rather normal. He was so surprised at how easy it was and asked me about the shape and size of it. I said that is normal. He actually seemed happy almost giddy about a bowel movement. I thought it was so funny but I really think that the yeast gaurd is helping to eliminate the over abundance of yeast in his system. I have to read more on this topic but like I said, I've never seen my son this happy about a bowel movement. His mood is much better too.

 

Thanks Again,

 

N

Hi Ruby , Can you tell me more about this yeast guard. Who makes it ? Is it a pill?

My daughter has the same problem with constipation and she did test positve for yeast in the stool.

She is now taking probiotics. thanks for your help maryann

[ruby23]

Hi Maryann,

I was actually looking for Candida Clear which was the product recommended at this site but there are several products which basically are candida suppport supplements. I said Yeast Guard but the name of it was Yeast Defense put out by Vitamin Shoppe. I think you could use any comparable product. I was just amazed by my son's reaction. He doesn't really talk to me about his bowel movements so he obviously felt a difference. Trying to get him to take baths and supplements was like pulling teeth it was an ongoing battle however when we had the results of a decrease in tics on Friday he was extremely anxious to get the supplements on Saturday and Sunday morning. I realize that I still have to confer with our homeopath and I have to increase Vitamin C and his water intake but I'm just tickled pink that we are making some progress. It was really breaking my heart to see him so miserable. I'm hoping Bentonite Clay is going to yield some results. I don't want to be taking supplements like this forever I still want to get to the root of the problem. I do think the sulfation system has been damaged or adverseley affected but we think it may be due to metal poisoning and are hoping that if we can chelate with bentonite we can reduce the supplements. Only time will tell, it's just a theorey. I was reading a link that was posted here on sulfation and it stated that · Hepatitis B Vaccination inhibits Sulphation chemistry for 1 week in the typical person. My son had the hep B vaccine the day he was born and went into severe seizures. So I know that he had a reaction. I want to know what is it in that vaccine that inhibits the sulfation chemistry. Is it the mercury, aluminum, femaldahyde?? All of which are toxins to the body.

 

N

 

 

 

N

Hi Ruby , Can you tell me more about this yeast guard. Who makes it ? Is it a pill?

My daughter has the same problem with constipation and she did test positve for yeast in the stool.

She is now taking probiotics. thanks for your help maryann

[faith]

Please be careful when supplementing with aminos. From what I understand, NAC is considered a chelator and can deplete minerals, so mineral supplementation should be part of that. I know when we were using a natural product called "Metal Free" which is supposed to be a more natural, slow chelator or metals, our naturo started supplementing us with the trace minerals before we started using this, and I know NAC as well as glycine were ingredients in that product. I also read something here pertaining to NAC and mercury/metal toxicity, so just wondering. You have to scroll about half way down.

 

http://www.eas.asu.edu/~autism/DANConsensusReport.htm

 

ruby23, were you giving any other vitamins or supplements prior to this? Are you aware if your child has any problems with food intolerances? If so, have you noted the same type things that CarolynN was describing as her child being able to handle his food intolerances better?

 

 

Faith

[CarolynN]

Hi Ruby!

 

First thing I want to say is Praise God!!!! I am very, very happy for you and your son . This is the exact reason I posted this information because I really hoped it would help someone else. I know how it feels when you are so overwhelmed by wanting the tics to stop for your child and then to have something work is just so exciting.

 

As Faith pointed out, as with all supplements, caution is needed to make sure it is not being over done or under done. I am going to cut my son back to 600 mg a day of the Acetylcysteine, rather then the 1200 mg I am currently giving him. As Faith pointed out it can drain the body of certain trace minerals like copper. I want to see how much his tics will increase on the lesser amount because I do believe in the "less is more" theory with this supplement since it can drain the body of minerals like copper and zinc.

 

I was actually thinking it might be a good idea to have blood work done, for minerals, after being on the Acetylcysteine for a period of time. From what I am reading it sounds like 600 mg of the supplement or less is what is standardly given.

 

I do get concerned about the kidney stone aspect because it is a possibility. I have increased his vitamin C to over 1,000 mg a day to help compensate and he does drink a fair amount of water but I would like him to drink more. But kidney stones is something that has to be considered. My doctor, though, was not overly worried about this for Daniel even at the higher amounts of the supplement. I honestly cannot say what the true risk of this would be with the product. It may depend on genetic predisposition to kidney stones.

 

I will be REAL curious as to what your doctor says about your results. I had asked in my original post, about this supplement, if someone else would run it by their doctor. I have an appointment with a different naturopathic doctor at the beginning of May and I am going to run it by her. So if you would post your doctor's thoughts that would be great.

 

I truly believe Daniel's great improvement is a combination of all the supplements he is on. These are all listed on the first post of this thread. Also taking out the vast majority of artificial foods, no msg, and very little high fructose corn syrup. It a package that all has worked together and has taken much research and prayer to figure out. So my point is I don't know that a person just taking the acetylcysteine would see big improvements. I obviously have nothing to base this on since this is not what we did nor did you. Ruby you obviously have done the research to know some of the other products, like a good multi-vitamin and omega 3's, are critical as is a very healthy diet.

 

I also think it is important to have a good naturopathic type doctor involved when on so many supplements. You certainly want to make sure you are on the right amounts for the ages and weights.

 

I really appreciate you posting to me. It makes the time it takes to put together the information so worth it. I have prayed that it would help other's just like it has helped my son.

 

I have attached, what I thought, was a good website explaining the supplement Acetylcysteine. I believe they are selling a product along with it, I certainly am not promoting their product, but it just seemed like a nice recap of the supplementhttp://www.advance-health.com/nacetylcysteine.html .

 

God Bless your family and I pray you keep finding answers for him.

 

Carolyn

[kim]

Carolyn N.

 

Thought you might want to check this out

 

This section has a heading something like... supplements to be used with caution.

 

A lack of testing (I'm thinking of CBS and MTHFR mutations amongst others) along with not knowing metal status makes using some of these supplements tricky. The chance of mobilizing metals is something that scares me. The yeast info is something to keep in mind too. Some of these Doc's that we pay a lot of money to, I don't think are all that informed, so I think it pays to look for any and all info on some of these things, before supplementing (with or without their advice). If you have someone greatly "up" on all of this and testing, this wouldn't apply as much I guess. However, I have watched (read) of parents who have explained some very complicated concepts to their DAN Dr.s and then been furious for the size of the bill they received! These are emerging (and changing as it goes) concepts.

 

I have really come to realize that these Dr.s are just people (mainstream or alternative) I don't want to make the mistake (again) of thinking because someone has initials behind their name that their advice or "ok" on something is the final word. You know that I'm looking for the safest ways to deal with problems with sulfur pathways too. Just wanted to share this with you

 

http://www.eas.asu.edu/~autism/DANConsensusReport.htm

 

Alpha-Lipoic acid: A dithiol fatty acid, alpha-lipoic acid is a native chelating agent but is also a powerful anti-oxidant. It has been extensively used in Germany to treat diabetic neuropathy with excellent results[31]. Its anti-oxidant effects may be particularly helpful in autistic children, since many of them show clear evidence of anti-oxidant depletion.

 

 

 

Alpha-lipoic acid is a natural product of human cells and so has minimal toxicity; doses of up to 25 mg/kg/day given over more than three years have been studied in adults with no detectable toxicity[32]. There is a theoretical concern that alpha-lipoic acid may bind to DMSA and reduce the availability of both, but this has not been seen clinically. Another concern is that alpha-lipoic acid reduces the removal of methyl-mercury by glutathione, which is a reason why it should be given with DMSA. There is also evidence that alpha-lipoic acid reduces copper excretion[33]. Since DMSA increases copper excretion[34] (it has been used to treat the copper intoxication of Wilson’s disease[35]), this should not be a problem if alpha-lipoic acid is used with DMSA.

 

 

 

A serious concern with alpha-lipoic acid it is readily consumed by yeast, and its usage can often exacerbate intestinal yeast overgrowth. The risk of yeast overgrowth may be decreased by lowering the dose or by transdermal administration, although absorption by transdermal forms has not yet been established. A prior history of yeast infections is a contra-indication for use of alpha lipoic acid.

 

 

 

Cysteine/cystine: As sulfur-containing amino acids (cystine is the dimer of cysteine), both can bind to and mobilize mercury. Like alpha-lipoic acid, cysteine and cystine may worsen mercury intoxication by spreading it to other tissues. Furthermore, cysteine and cystine are excellent culture media for the Candida genus of yeast and can promote or worsen intestinal candidiasis.

 

 

 

N-Acetyl-L-Cysteine (NAC): NAC should not be used initially or by itself with anyone suspected of having a significant body burden of mercury. Like alpha-lipoic acid, cysteine and cystine, NAC can bind with mercury and carry it across cell membranes. NAC is also a good culture medium for yeast, like its parent molecule, cysteine. Since many autistic children also have high cysteine levels, giving them NAC will only exacerbate this problem.

 

 

 

NAC is often recommended because it can rapidly increase intracellular glutathione levels[36],[37]. For that reason, it can be tremendously useful in treating the antioxidant deficiencies seen in so many autistic children. NAC should be used either in conjunction with DMSA or after mercury detoxification is well under way. In addition, NAC should be used with extreme caution in children with elevated cysteine levels.

 

 

 

NAC should not be used orally, because it is a food for yeast and can frequently cause or exacerbate gastrointestinal problems. It can be given transdermally or nasally.

[CarolynN]

Kim,

 

Thank you so much for posting this. I have a list of questions about Acetyl-Cysteine that I will be running by a different Naturopathic Doctor in about a week.

 

The fortunate thing for Daniel is he had very few vaccinations and none with mercury. He also does not have any fillings so he would have no mercury from that stand point. So I really don't think mercury should be an issue for him. I at least hope I am not missing something that could be a potential source to which I am unaware. Also I am giving him very good probiotics and enzymes that should be keeping any yeast in check.

 

It is so good to be able to, as a community, try to figure this whole puzzle out. Certainly you want to make sure what you are doing for your child will ultimately be of benefit to them and not a detriment.

 

Thanks again for being up on so much. Both you and Faith seem to find some very good articles.

 

Carolyn

[kim]

Carolyn,

 

i guess i remember that now. I think my my long term memory is a little better than short term

 

Will you take a look at the site that you posted, whenever you get a chance and see what you think of the MSM? http://www.advance-health.com/nacetylcysteine.html. Everything that i have read so far seems very safe and i loved the fact that it appears to help with reflux. It sure seems to me that the reflux and ticcy symptoms go hand in hand around here. I have to say (again) tics flairs for the most part are very few and far btwn currently, but that doesn't help much when one hits.

 

I don't know if Warings article is posted here or not. I'm going to include it in case it isn't. It is really worth reading in addition to the article that has been posted here a couple of times. http://64.233.167.104/search?q=cache:8RCav...;cd=7&gl=us

 

There is some contradictory info about the effectiveness of epsom salts. Also, for people that have the sensitivity to sulfur would want to go very slowly with this supp (msm) i guess.

 

 

 

EDIT: I went back thru this thread Carolyn and saw where you said that Daniel was given 3 doses of DT. I'm under the impression that all DT, which is normally used for boosters contains 25 mcg of thimerosal. We you given the impression that this was a thimerosal free vaccine?

 

also

 

Edited out some quotes until i could find the reference articles

[CarolynN]

Hi again Kim,

 

I wonder what the record has been on the forum for the longest thread. We may be soon making a record breaker with the length of this one !

 

Since I read you post regarding thimerosal, I have been on the Internet a lot tonight. You are correct I was told there would be no mercury in his vaccinations. He had his done in 2001 and 2002. What I found on the Internet is the manufactures stopped putting thimerosal in the DT since 2001. My question to you is is this correct in what you have found out too? I am now pretty concerned that perhaps it was in there and I was given bad information.

 

The other thing I am wondering is is it possible, lets assume they did take the thimerosal out since 2001, since Daniel was vaccinated at the beginning of 2001 could he have had an "old batch" that still had it in it. I had his vaccinations done through the county since I only wanted the DT and not the DpT that the doctor's office provided. I wonder how I could even begin to find out what lot number he had been given to see what exactly was in it?

 

Regarding the possibility of mercury going to the brain and the use of Acetyl Cysteine, I found an article tonight on Diagnose Me.com which did refute this claim. For some reason, when I went to attach it in this post it kept asking me for a password to access the article and I could never access it again. But the article stated the claims that mercury could go to the brain with the use of Acetyl Cysteine was unfounded an based on the research of another amino acid and not on its own research. I am going to call the doctor that told me to start using Acetyl Cysteine and ask if he is at all concerned regarding this aspect. He is such a conservative Naturopathic Doctor I just cannot see him having me do something for Daniel that could cause any kind of long term problem. But anything is possible. I can say that Daniel has been on high amounts of the Acetyl Cysteine and I have seen no problems on the surface so far.

 

I did find tonight a lot of other articles that stated using Acetyl Cysteine is very good for getting rid of Mercury in the body and lead too. I found most these articles on sites that were addressing silver filling detoxification. But only one of them did mention the same blood brain barrier concern with the mercury crossing over into it if you still have high amount of mercury in your body. Isn't all so complex! One thing says one thing and another thing says another

 

I will research the MSM and post back to you after I have time to read up on it. I look forward to understanding what this is all about.

 

Thanks again for the vaccination information. I am really curious as to what you think Daniel's chances are that he did have thimerosal.

 

Carolyn

[kim]

CarolynN,

 

I think the concern with moving metals is largely the state of the bodies ability to escort it out of the body once it's moblilized. I think the chance of it going from, say the kidney to the brain would be the worry. I sure am no expert here, and the fact that Daniel was given much lower amts of thimerosal than many kids, well, I don't think I would panic about the use of NAC at this point, whether or not it was in the DT, but yeah, I would have the same question that you do.

 

From what I understand the recommendation was made to stop using thimerosal containing vaccines, but the ones on the shelves were never recalled. The expiration date certainly could have been far enough out, that it was still in there IMHO. They may have manufactured a single dose DT (the multidose vials are cheaper but required the thimerosal as a sanitizing agent) in 2001? I would be almost willing to bet that a county agency would be using the cheaper multidose vials, and did not dispose of them. Did you have any conversation, while there, about being concerned about thimerosal or was the discussion that you had with the Dr. that recommended the DT more about Pertussis? Pertussis has the reputation of being one on the "more reactive" vaccines. The only way to know for sure is to look at his vax record, the name of the vax and manufacturer and go from there, IF they recorded all of that info, which they are required to do, but many times DON'T. That's why any good "informed vaccine enthusiast" will tell you to read the insert yourself. Many times the "office people" will tell things that they believe to be true, but AREN'T.

 

This looks like the vaccine that he may have been given?

 

http://www.immunizationinfo.org/vaccineinf...etail.cfv?id=21

 

Product Name: Diphtheria and tetanus toxoids adsorbed (DT)

Manufacturer: Sanofi Pasteur

Year licensed: 1984

 

If you can find out what year they even started manufacturing the single dose vax, it would maybe be helpful.

[CarolynN]

Kim,

 

Thank you so much for your information!

 

Prior to Daniel being born, I read so much in several older books about vaccinations and the one I was mainly concerned with was the pertussis. So you are exactly right that is why I only did the DT and not the DpT. The problem is, looking back on it now, I did not use the Internet hardly at all then and did not research it from the current information that was available on the Internet regarding the DT. I went off of the advice of a doctor who told me not to be concerned because they had changed the shot. But it looks like he was wrong. I would NEVER had done this had I known mercury was in it . So I have learned something completely new this week from you. I really appreciate it and it makes me wonder if I should have Daniel's metals tested. I seriously thought this was not an issue for him up till now.

 

As I stated before in another post, my other two children have had zero vaccinations and I am sooooo thankful!

 

I will update the post once I talk to my naturopathic doctor regarding any chance of mercury moving from the body into the brain using the Acetyl Cysteine. I plan on calling the doctor's office who suggested I use it and also run it by the other naturopathic doctor I have an appointment with on May 6th.

 

Kim, I still have not read up on the MSM but will hopefully tonight.

 

Carolyn

[Andy]

" YOU KNOW THAT YOU OR YOUR CHILD REACT NEGATIVELY TO SULFUR, I WOULD CERTAINLY RUN IT BY YOUR DOCTOR FIRST. Perhaps someone on the forum may know the answer to this."

 

If I remember correctly sulfer can feed the yeast infection if some one is having gut issues.

[CarolynN]

Hi Andy!

 

Thanks for your input. I did some research tonight regarding the chances of a yeast overgrowth with Acetyl Cysteine (NAC) and what I found was very interesting. I actually found articles saying that it helps cure the overgrowth. I was really surprised to read this. But here are the articles http://www.davidwheldon.co.uk/NAC.html and http://www.fungusfocus.com/html/nac.htm. Now with this said I know Kim and Faith had both posted articles in the thread with information about Autism and NAC. These articles stated that NAC in a person with gut issues could cause more problems. Again it is so confusing when there is different information coming at you regarding these supplements .

 

I found another really good general article on the supplement at this website http://www.wholehealthmd.com/ME2/dirmod.as...A4D3&tier=2 . What I am finding fascinating is how much it seems to help with the respiratory flu!!!!

 

When I posted that note about the warning with sulfur, I put that in because I don't know if it is something that could potentially cause an adverse reaction in someone who has sulfur issues. I was thinking about the person on the forum whose child had problems with Epsom Salts Baths. Most people do not have this issue with sulfur but obviously the potential is there. I was just wanting to be proactive and make people think. Perhaps someone on the forum would know if someone with sulfur issues would know the true risk for someone with sulfur issues using NAC.

 

Have a blessed day,

 

Carolyn

[kim]

Carolyn,

 

I didn't read the links that you provided yet, but wanted to send you this page. Andy might have some opinions on Cutler. He is one voice of many out there, but I do think he is a good one to look to for info. You might want to read his credentials, if you can find that page.

 

 

http://onibasu.com/wiki/N-Acetyl_Cysteine_%28NAC%29

Cutler posts on NAC

 

Glad the vax info was helpful

.

[bmom]

I may be wrong, but it seems like the info. I have read on Amy Yasko's research talks a lot about some of the things that are discussed here. Is that true? If I were to look for a doctor, do you think it would be helpful to find someone who uses her approach? Does anyone know much about her research? I just remember reading about the pathways and the MTHFR gene mutation in her info.