Phasmid Posted March 26, 2012 Report Share Posted March 26, 2012 (edited) Gosh, it has been a long, long time. I can hardly write this... have no idea where to start since it has been so long. Some may remember, my boy fought PANDAS or whatever the heck we call it now since age 4 really. Strep infections documented. In 2008 he had a horrific relapse at age 10. He has had trichotillomania the entire time, even when other tics and behaviors were absent. The last school photo of him looking "normal" was in 2nd Grade. He has had no eyelashes either. In 2010 he had a return of some terrible OCD stuff. Finally, in January 2011 my son had his first IVIG treatment, but low dose. His OCD went away for most part but trich didn't budge. In Sept. 2011 he had high dose IVIG over two days. I am so happy to announce that for the first time since he was 6 years old, my son HAS EYEBROWS!!!!! I was told it would take a long time to show any effect with respect to the trichotillomania. He has eyelashes coming in as well now. I can't believe I am so happy over such a trivial thing, but I know that y'all know what I feel. I hope that this gives HOPE to someone out there... I recall a few others suffering with trich. God bless everyone, Mary Edited March 26, 2012 by Phasmid Link to comment Share on other sites More sharing options...
philamom Posted March 26, 2012 Report Share Posted March 26, 2012 Mary, that's WONDERFUL! I'm so glad to hear it is going well. Great news!!! Link to comment Share on other sites More sharing options...
T_Mom Posted March 26, 2012 Report Share Posted March 26, 2012 Phasmid--Mary, Great news! Thanks for checking back in to tell us! Is your son on abx or anything now? very thankful to hear of his success!!! Link to comment Share on other sites More sharing options...
butterflymom Posted March 26, 2012 Report Share Posted March 26, 2012 (edited) = Edited October 5, 2015 by tampicc Link to comment Share on other sites More sharing options...
Fixit Posted March 26, 2012 Report Share Posted March 26, 2012 Thanks Phas, SOOOO Happy for you!!! Link to comment Share on other sites More sharing options...
bulldog24 Posted March 27, 2012 Report Share Posted March 27, 2012 Congrats! Awesome Link to comment Share on other sites More sharing options...
Dedee Posted March 27, 2012 Report Share Posted March 27, 2012 Glad to hear your happy news! Thanks for checking back in to update us. It's great to hear good news! Dedee Link to comment Share on other sites More sharing options...
EAMom Posted March 27, 2012 Report Share Posted March 27, 2012 yeah! are you in Southern CA? what doc did you use? Link to comment Share on other sites More sharing options...
hawks Posted March 27, 2012 Report Share Posted March 27, 2012 S Link to comment Share on other sites More sharing options...
hawks Posted March 27, 2012 Report Share Posted March 27, 2012 Great to hear such wonderful news. Link to comment Share on other sites More sharing options...
Phasmid Posted March 27, 2012 Author Report Share Posted March 27, 2012 Hey TMom, As luck would have it, he got strep throat two weeks ago, and again last Friday. He has been on amoxicillin 500 , and I think I will keep him on through Strep season now. He did not have a return of symptoms, but he has been a little more emotional, kinda depressed. May not have anything to do with it. Link to comment Share on other sites More sharing options...
Mary M Posted March 27, 2012 Report Share Posted March 27, 2012 After such a long journey, it is nice to see that your ds has had success. Please keep us posted as to this most recent infection and its effects. Link to comment Share on other sites More sharing options...
norcalmom Posted March 29, 2012 Report Share Posted March 29, 2012 Great to hear from you - with such a good update. Glad you are well and healing! Best- Norcal Link to comment Share on other sites More sharing options...
JAG10 Posted May 18, 2012 Report Share Posted May 18, 2012 Phasmid, This is so fantastic!!! I was wondering if you were still using Vitamin C and NAC in the 3:1 ratio? Dr. B at Yale emailed his study of NAC for hair pulling turned out negative. But they did not use Vitamin C with it and I was wondering if you had different results? Jill Link to comment Share on other sites More sharing options...
mom24 Posted May 18, 2012 Report Share Posted May 18, 2012 Hey TMom, As luck would have it, he got strep throat two weeks ago, and again last Friday. He has been on amoxicillin 500 , and I think I will keep him on through Strep season now. He did not have a return of symptoms, but he has been a little more emotional, kinda depressed. May not have anything to do with it. Great news!!!! Wanted to PM message you, but could not. Link to comment Share on other sites More sharing options...
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