Guest pandas16 Posted February 1, 2011 Report Posted February 1, 2011 How many here have Autism in addition to PANDAS?
nicklemama Posted February 1, 2011 Report Posted February 1, 2011 My son was not ASD before PANDAS. He was diagnosed Aspergers at age 6y10m, just before his PANDAS diagnosis. The Aspergers behaviors have disappeared w/ abx treatment for PANDAS.
Kiera Posted February 2, 2011 Report Posted February 2, 2011 My ds 8 had multiple diagnosis prior to PANDAS, 1)sensory dysfunction 2)anxiety disorder 3)speech delay 4)ADD 5)allergies 5)chronic constipation, these are all comorbidities of autism, he just didn't meet the very specific criteria for autism. There is a belief in the world of alternative autism research that infection and immune system dysfunction are among the possible causes of autism so PANDAS fits right in there being an organic cause for behavioral symptoms. Would love to fast forward 20-30yrs to see what the research has revealed about all the above disorders!! For now, just have to plod along as best we can and follow our instincts as to the best treatments!
peglem Posted February 2, 2011 Report Posted February 2, 2011 I think if you have a child like mine w/ extreme autism you are going to have a very difficult time getting a PANDAS dx, even from a PANDAS expert. My daughter is just very difficult to assess and dx.
mdmom Posted February 2, 2011 Report Posted February 2, 2011 My son was dx with Asperger's at age 7 1/2 and just a few months ago was dx with PANDAS. Two of the 3 docs that dx him with PANDAS all agree that he most likely does not have Asperger's. His social delays, behavioral issues, etc. are all PANDAS symptoms.
Iowadawn Posted February 2, 2011 Report Posted February 2, 2011 "A PDD-NOS, autistic traits" along w/ other alphabet dxes over the years ahead of PANDAS dx.
NancyD Posted February 2, 2011 Report Posted February 2, 2011 Also PDD-NOS at age two (followed by PANDAS). Now no longer on the autism spectrum, but DD14 does have Lyme.
Phasmid Posted February 2, 2011 Report Posted February 2, 2011 Not here, ALTHOUGH, my son displayed autistic behaviors during his really horrible acute illness, with sudden refusal to make eye contact, couldn't do anything but watch t.v., echolalia, wouldn't respond to questions, severe hyperactivity where he could only run from room to room- couldn't walk or stand still. It cleared up quickly too.
PhillyPA Posted February 2, 2011 Report Posted February 2, 2011 My son was perfectly normal until the age of five years old. He got pandas and looks autistic. Before we got a diagnosis of pandas, we went to so many specialist. They all said that what he has may look like autism but it is not autism. Five year olds do not get autism.
peglem Posted February 2, 2011 Report Posted February 2, 2011 I'd just like to add that autism is just a set of symptoms.
PhillyPA Posted February 2, 2011 Report Posted February 2, 2011 I agree with peglem. However, if you get autism in infancy, doctors will say it is "autism". You get autism when you are 5,8,10,or 15 - they are going to tell you that it is something else.
peglem Posted February 2, 2011 Report Posted February 2, 2011 I agree with peglem. However, if you get autism in infancy, doctors will say it is "autism". You get autism when you are 5,8,10,or 15 - they are going to tell you that it is something else. Yup!
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