Fixit Posted January 19, 2011 Report Posted January 19, 2011 (edited) I have a dream…. To wake up and have my room clean.. To go into my closet and have floor space to walk on and have it purged and organized… I have a dream …. To not call any doctors today… And skip the pharmacy drive through…. I have a dream… That my floors are mopped…and it doesn't look like a tornado hit. I have a dream …. To not have to put my specs on to read lab reports and food labels. I have a dream…. For someone to have organized the labs, insurance claims and paper work I have a dream… To not have a degree in strep, infectious diseases, immune markers etc... To not collect phlem, fecal matter, or have that precious morning urine cup fall into the toilet… I have a dream … To not have to educate family members and doctors about pandas only to be looked at like I have ten heads I have a dream… To go back to the days of no responsibilities ADD your dreams on here Edited January 19, 2011 by Fixit
lynn Posted January 19, 2011 Report Posted January 19, 2011 I have a dream to be able to work out in the evenings (even for 20 minutes) without everything going to heck in a handbasket. Then I might be able to fit into my pre-PANDAS clothes again.
Stephanie2 Posted January 19, 2011 Report Posted January 19, 2011 (edited) Oh, where, oh, where do I start? I have a dream that I am not so worn out by strep/pandas today that I am getting nothing accomplished. I have a dream that I could go back to the days of DINK, double-income, no kids! I have a dream that I could see my friends again, or heck even my siblings would be nice. I have a dream that I could go on vacation...WITHOUT kids, supplements, all the back-up meds in the world and gluten free food. I have a dream that I do not have to dispense 27 meds/supps per day per child and then clean at least 40 cups and syringes at the end of it all. I have a dream that I could go back to work and not be so broke. I have a dream that friends and family didn't think I have lost my mind. I have a dream that I could have my almost 3yo's "baby" dedication sometime soon! I have a dream that my almost 3yo could say more than one word at a time, AND that we could understand most of those one-word sentences I have a dream that I wasn't on a first-name basis with all 6 staff members at CVS and the staff at 3 compounding pharmacies. I have a dream that insurance would cover my phone consults, which tend to be 2-3 times per week! Speaking of insurance... I have a dream that insurance would cover supplements and IVIG. I have a dream that I could sleep alone in MY bed, beside my HUSBAND. I have a dream that I could sleep. I have a dream that my boys will grow out of pandas at puberty!!!!!!! Edited January 19, 2011 by Stephanie2
Phasmid Posted January 20, 2011 Report Posted January 20, 2011 I have a dream that some day I will spend time reading something other than posts on this forum...
Fixit Posted January 20, 2011 Author Report Posted January 20, 2011 I have a dream that some day I will spend time reading something other than posts on this forum... OK...LOL
NancyD Posted January 20, 2011 Report Posted January 20, 2011 I have a dream that someday I can dream...
GraceUnderPressure Posted January 20, 2011 Report Posted January 20, 2011 I have a dream that some day I will be able to have a conversation with someone about a subject that doesn't have anything to do with my kids' "issues"... I have a dream that some day I won't have so many things juggling in my brain that I can actually think clearly again... I have a dream that some day REALLY SOON a cure will be found for autoimmunity...
Phasmid Posted January 20, 2011 Report Posted January 20, 2011 I have a dream... that someday, my brain will forget all that I have had to learn about disorders and diseases and syndromes and symptoms and infections and medications and treatments, so that I will go into a doctor's office and sound like an average parent, rather than being asked if I'm a doctor or nurse because of the way I talk, with terminology and textbook references and treatment suggestions rolling off my tongue like one of them.
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