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Posted (edited)

I have a dream….

To wake up and have my room clean..

To go into my closet and have floor space to walk on and have it purged and organized…

I have a dream ….

To not call any doctors today…

And skip the pharmacy drive through….

I have a dream…

That my floors are mopped…and it doesn't look like a tornado hit.

I have a dream ….

To not have to put my specs on to read lab reports and food labels.

I have a dream….

For someone to have organized the labs, insurance claims and paper work

I have a dream…

To not have a degree in strep, infectious diseases, immune markers etc...

To not collect phlem, fecal matter, or have that precious morning urine cup fall into the toilet…

I have a dream …

To not have to educate family members and doctors about pandas only to be looked at like I have ten heads

I have a dream…

To go back to the days of no responsibilities

 

ADD your dreams on here

Edited by Fixit
Posted

I have a dream to be able to work out in the evenings (even for 20 minutes) without everything going to heck in a handbasket. Then I might be able to fit into my pre-PANDAS clothes again.

Posted (edited)

Oh, where, oh, where do I start?

 

I have a dream that I am not so worn out by strep/pandas today that I am getting nothing accomplished.

 

I have a dream that I could go back to the days of DINK, double-income, no kids!

 

I have a dream that I could see my friends again, or heck even my siblings would be nice.

 

I have a dream that I could go on vacation...WITHOUT kids, supplements, all the back-up meds in the world and gluten free food.

 

I have a dream that I do not have to dispense 27 meds/supps per day per child and then clean at least 40 cups and syringes at the end of it all.

 

I have a dream that I could go back to work and not be so broke.

 

I have a dream that friends and family didn't think I have lost my mind.

 

I have a dream that I could have my almost 3yo's "baby" dedication sometime soon!

 

I have a dream that my almost 3yo could say more than one word at a time, AND that we could understand most of those one-word sentences

 

I have a dream that I wasn't on a first-name basis with all 6 staff members at CVS and the staff at 3 compounding pharmacies.

 

I have a dream that insurance would cover my phone consults, which tend to be 2-3 times per week!

 

Speaking of insurance...

 

I have a dream that insurance would cover supplements and IVIG.

 

I have a dream that I could sleep alone in MY bed, beside my HUSBAND.

 

I have a dream that I could sleep.

 

I have a dream that my boys will grow out of pandas at puberty!!!!!!!

Edited by Stephanie2
Posted

I have a dream that some day I will be able to have a conversation with someone about a subject that doesn't have anything to do with my kids' "issues"...

 

I have a dream that some day I won't have so many things juggling in my brain that I can actually think clearly again...

 

I have a dream that some day REALLY SOON a cure will be found for autoimmunity... :(

Posted

I have a dream... that someday, my brain will forget all that I have had to learn about disorders and diseases and syndromes and symptoms and infections and medications and treatments, so that I will go into a doctor's office and sound like an average parent, rather than being asked if I'm a doctor or nurse because of the way I talk, with terminology and textbook references and treatment suggestions rolling off my tongue like one of them.

:P

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