sptcmom Posted January 3, 2011 Report Posted January 3, 2011 As many of you guys know DS9 now has PANDAS and Bartonella. We recently switched from augmentin 600ES bid+ Biaxin 250 bid + bactrim 240 bid TO Zith 250 once a day. I was VERY nervous about this. And jinxed myself I guess because we had THREE strep exposures in school and DS ramped up quite a bit with motor tics, mood libility, hyperactivity, exhaustion etc and I increased his Zith to 250 bid. I am doing about 750 billion to one trillion units of probiotics daily. DS is doing better overall but I am not very knowledgeable about zith doses for PANDAS kids since we've been on Augmentin thruout. Does zith 250 bid for a 52 lbs 9 year old sound crazy high? Should I go back to once a day? How about yeast? Can I do Oil of Oregano spaced a couple ours from the Zith? Does Oil of Oregano interact with Zith that anybody knows of? Please help Thanks so much Jodie
PhillyPA Posted January 3, 2011 Report Posted January 3, 2011 It doesn't seem crazy high to me! Give it a try for a month or so and see what happens.
Fixit Posted January 3, 2011 Report Posted January 3, 2011 when i put ds 80bl on zith it is at 250... i don't think that was enough...after i took him off and put back on...i started at 250...pulsed upt to500 for a week and then back down....and the then off for a week... it's a little bit of my own rythm on this at the moment...as ds has been on so many abx his life...his gut is in jeopardy at any moment... i found this with some other stuff i am doing(hd vit c and (parasite cleanse which also deals with candida at same time..will post this later)) seems to be good for him and then the week off, i think is good for his belly..i tried to time week off with week off from school... and as per docs and pharamist i talked to...zith lasts for a week in system... i think it would be ok short term...but maybe you can get someone to write a script for 375, for your higher dose.... also i heard you can break zith pills..not time released....
sptcmom Posted January 3, 2011 Author Report Posted January 3, 2011 Thanks for that tip Fixit. I was thinking of breaking the 2nd pill in half so meaning pulsing at 375/day for a week then back to 500/day for a week or maybe I can hold him at 375/day and herbs. Any info on Oil of Oregano? Can I do it with Zith? I mean spaced apart but it does help with candida overgrowth. Jodie
philamom Posted January 3, 2011 Report Posted January 3, 2011 Hi Jodie- My dd is currently on Zith 250 daily (plus others) for Lyme. Before we received the lyme diagnosis, she has at times, taken Zith 500 daily. Is your plan to treat the Bartonella at this time? I don't think the Zith works as a cyst buster--correct?
sptcmom Posted January 3, 2011 Author Report Posted January 3, 2011 Hi Jodie- My dd is currently on Zith 250 daily (plus others) for Lyme. Before we received the lyme diagnosis, she has at times, taken Zith 500 daily. Is your plan to treat the Bartonella at this time? I don't think the Zith works as a cyst buster--correct? No not as a cyst buster I don't think. Our LLMD hasn't mentioned that part yet. She treats in layers, one at a time and therefore has monthly follow ups.
sf_mom Posted January 4, 2011 Report Posted January 4, 2011 Jodie: DS#1 is 54 pounds is on the following: 250 m.g Azithromycin, 500 m.g. Alinia, 11 ml Cedax (pulsing) and 1,800 m.g. Olive leaf Extract per day.......... We are adding the Cedax for Bartonella two weeks on and two weeks off. We switched from Oil of Oregeno to Olive Leaf Extract 3 to 4 weeks ago and did notice a herx for about 10 days.
sptcmom Posted January 4, 2011 Author Report Posted January 4, 2011 Jodie: DS#1 is 54 pounds is on the following: 250 m.g Azithromycin, 500 m.g. Alinia, 11 ml Cedax (pulsing) and 1,800 m.g. Olive leaf Extract per day.......... We are adding the Cedax for Bartonella two weeks on and two weeks off. We switched from Oil of Oregeno to Olive Leaf Extract 3 to 4 weeks ago and did notice a herx for about 10 days. Thanks Wendy.I am ok with high dose abx but this Zith thing has me stumped. I guess my dilemma is about Zith. I seem to get the feeling that most docs keep the dosage low and am not sure why. Most moms on this forum have always reported best results on a full dose abx. DS was on 2000 mgs combined with abx but Zith was never part of that combo. Now with our LLMD recommending Zith 250 mgs only I am a little confused. DS is doing better with 250 twice a day. Mostly want to find out if you guys have had any bad outcomes with Zith 250 twice a day or is it done commonly and seems ok as long as I keep up the probiotics. I don't want to go into C.diff or worse. Just wanted to get some reassurance that moms have used Zith 500mgs daily with comfort. Jodie
sf_mom Posted January 4, 2011 Report Posted January 4, 2011 Jodie: Our son also did better on the 500 m.g. of Azithro per day prior to Lyme diagnoses. BUT, remember what got us to see an LLMD was 'blood in stool'. I too was concerned about C Diff at the time due to higher dose antibiotics. It turned out to be an intestinal parasite that he couldn't resolve on his own. So, for us the answer was multiple antibiotics not higher dose. I would think you'd be covered with the 250 azithro and A - Bart. As you know, I started the A-Bart on the 27th and the shooting pains have been much worse with the return of severe headaches... Thankfully my fatigue is better. -Wendy
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