JAG10 Posted October 15, 2010 Report Share Posted October 15, 2010 Is it possible for those who are sharing their background knowledge about lyme disease presentation to be more discerning perhaps by utilizing a rating scale system? Something like: 5-Very Likely 4-Likely 3-Just as Likely as Unlikely 2-Unlikely, but possible 1-Very Unlikely, but possible 0-No association whatsoever Can we try this? Let's look at some symptoms or markers and see if this moves the discussion forward. Right now, it feels like those that are sharing their Lyme knowledge are lumping together 1-5, and if it is not a 0, then we hear "lyme chime." If I were going to do this for PANDAS for example, I might say: Separation Anxiety-5 Elevated CAM K-5 Handwriting deterioration-4 Significant history of positive strep rapids/cultures-4 Eating Disorder-3 ASO/DNAseB titer rise-3 Insomnia-2 Trichotillomania-2 Livedo Reticulitis-1 Suicide attempts-1 Tumors-0 Dwarfism-0 Please don't cyber-shoot me! It just seems like, perhaps, a frame of reference and perspective might help the conversation. BTW, my dd10 was one of like 2 or 3 kids I've heard of on this board that had livedo reticulitis and it went away with IVIG, so I would say based on what I've read posted that LR is very unlikely, but possible and related to autoimmune dysfunction. Link to comment Share on other sites More sharing options...
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