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(just realized I originally posted this on learning disabilities - Oy.) Dd6 has been running a consistent (day and night) fever of 101. Treat with ibuprofen, down a little, back up. No sickness- no cough, no sore throat, no mucus, eating a lot. She has been home- no one here sick. She is famous for low grade fevers all her life, come and go, but never over 99.5 We are only on BEG 3x a day, 2nd week - doesn't feel like it is from this- some Byron White drops which I have backed down on. Not sure what to do- we are suppose to start Rifampin and Cipro for her after Christmas- Hate to just give my old standby Azith. Any thoughts?

Hi- Dd6 has been running a constant fever of 101 for 2 days- morning- afternoon-night- if I treat with ibuprofen, goes down a bit, then comes back up. No 'sickness'- no cough, no mucus, no sore throat. Only thing she is on right now is BEG spray 3x a day, 2nd week. Could it possibly be fro this? Doesn't seem likely to me. I have many antibiotics here- but I don't want to really put her on one (my old standby Azith.) I am suppose to start her on Rifampin and Cipro. after Christmas- backed off her Byron White herbs a little, this is not from that. This child is famous for unknown fevers, even as an infant, but they are always low grade, 99.5, come and go, now we know from Lyme and co. But- this one is stumping me/concerned. Any thoughts?

I am so sorry. I have no advice, but understand where you are at, we have had NO insurance help with any of our treatments, and are not wealthy. Sending you good thoughts and PV's-- I hope it works out---

Thank you for posting that, RNmom, needed to read it. I am also weary of the herxing with dd lately, been rough. And of course, hard for me to pinpoint, is it the BEG spray, is it Byron White drops, and I always think PANDAS, because it all screams PANDAS symptoms. No strep or sickness anywhere, not even a sniffle, but today she had her famous fever 101. Anyway, we both are to start Cipro and Rifampin- yikes. Looks like tomorrow is the day- hope she is okay for Christmas. Tempted to wait until after. Hang in there Wanda-me too.

Our Dr. recommended dd and I take the liposomal glutathione - liquid- it is supposed to be a better delivery system. We do a teaspoon every other day- I see reaction/die off type from her on the days she takes it (this is what I believe I see- but it is difficult with her- a lot of back and forth.) I personally don't feel anything from it- but take it for improved detoxification. There are also a glutathione suppository. (Not for a child, IMO)

My dd6, tested positive first. I was coming from a NO WAY Lyme mindset. When I read all the symptoms, I had just about everything (memory loss, chronic insomnia, chronic fatigue I used to push through with coffee and cigarettes anxiety, things dropping from my hands- no bad knees or joint pain- although I have nerve damage) Anyway, I had secretly wondered whether I would be dx'd with alzheimers or MS when I got older- I blamed everything on my stressful life, age, etc. At our first LLMD appt. for dd, he asked if my daughter had ever really 'regressed' wax and wane in severity, yes! But.... no real regression. She came out the gate very different than my other 2 children. Anyway, I mentioned I had some symptoms, and the Dr. looked up, bore his eyes into mine, and said: Let me guess: This, this, this, and this. He had me down pat. Did the full panel Igenex at his office. Came back sky high positive Bartonella, the WB lit up on all the Lyme only bands- went on to do the Lyme PCR blood test, which found Lyme in my blood, positive. Looking back, it is all there- I can see it in my past- I'll be honest, treatment is not fun, I struggle. But, I want to be around, whole, sound mind, for my kids when they get older.

Great! Not great the Myco P, you know what I mean, great you have an answer!

Hate to add this, sorry, gross, but when I hear teeth grinding, waking up at night, and we've just come off a full moon, I think parasites. .02 cents from the peanut gallery. Hang in there, hope Thursday brings some clarification.

By the way, just my own experience with Epsom salt baths, as a person with junky stuff in the body- I started Epsom salt baths for the first time 4 months ago- almost passed out on the first one, lasted about 7 minutes. Now, I still do not like this bath, in fact the only thing that keeps me in the tub for the full 20 minutes is the fact that I've used 2 cups of high grade Epsom salts, and 1 cup dead sea salts $$$ Sometimes I am spent after it, and need to lay down for a bit. Mine are very warm temp, cause sweating, drink water throughout. So yeah, they can cause an effect, IMO. But, good way for some detox.

Hi- I wasn't aware you were referring to an Epsom salt bath- if that is the case, yes, this is a detox method. Most of the time it calms- sleepy- However, if starting off with them, can feel ill in the beginning -

'Turn the Corner Foundation' (google) Is a great website, and if you email them with your request, they are very good at getting back to you with a list. HTH.

Awesome!

Thanks for the information--- I think we'll just stick with the regular sugary stuff- seems to be working- I know it can be compounded with stevia as well, but my pharmacy bills are high enough right now- I try my best so dd gets no other sugary food, nor straight juice, and trying my best to stay off other sugar, too. Hard when DH is a chocolate fiend, but I'm doing pretty good. We did see our Dr. on Monday and he examined the nodule/cyst on my neck- and with the other 'complaints' I had, that's when he advised I start taking the powder 2x a day, or we could slow down treatment. So, 2x a day, and the cyst is going down little by little...

Are you going? I had seen this someplace earlier, thought about how great it would be to attend, but it is a really long drive for me...

Our last Dr. offered this to me for my dd, when we were going through a 'mean' spell, shall we say- This is the nice love hormone nasal spray, right? I passed/never tried it, I didn't want to start messing with hormones. The Dr. didn't say anything about testing markers for it, or it helping OCD- but I have heard some positives for some kids using it in the bio-medical community.

Alright, I am going to add one thing- I have been faithfully taking the powder 2x a day since Monday- the nodule that appeared on the side of my neck 4-5 weeks ago, which has been freaking me out a bit, (had not changed size while present- just poof! Had it one day- here it has stayed) is now getting noticably smaller- flattening- since Monday, and I've done nothing different but the powder.

My dd is 6, in first grade. Our Doc did mention 3x a day for her, I said completely not possible, we just do 2x. The bright yellow powder right out of the can is rather sugary- I mix a full scoop up for her in about 4 ounces of cran/grape juice, give with a straw. I'm not that crazy about it- sugary, and dd and I are on the thin side, I worry about the pulling fats- but our Dr. really believes in this stuff- we'll see if we can cut down/ get off next month. Very cool you are feeling much better with it- I can't really tell---

I'm glad it is helping you! My dd has been on it 2x a day- I give it in the morning before school, an hour after any meds, and before bed, an hour after any meds/supps. I was told to take it, too, and got lazy about it, I guess because I wasn't sure I have a mold problem (I know it is not just for mold) Anyway, had been suffering a lot this last month- nodules on my neck, scalp, exhausted, dizzy, etc. On Monday, our LLMD told me I need to do 2x a day for detox, and perhaps I wouldn't be feeling so lousy :-/ So I am, too.

Allergy Research Group brand makes it without dye. (not using it, just looked it up) HTH.

Yes, our Metamatrix stool test came back high staph in the gut- I was surprised, she has never had a skin staph infection of any kind- Then we did some alternative testing (very gifted person) and she has high Macrons on that- our Dr. said if it's in the gut, it is in the nose- and by using the spray, it will also treat what is in the gut/body. She swallows capsules for me, and agrees to yucky herbal tinctures given by syringe - but nasal spray FREAKS her out- Our Dr. kindly told her she has a choice between nasal spray or shots - (to help me out) We start the spray in a week- wish me luck, but is HAS to happen. I will also be doing it- man, if it could give me the energy like others have reported- the chronic fatigue is killing me. Thanks for listening- S.

P.S. We did find Macrons with a Metamatrix stool test showing staph in the gut, and alternative testing for her came back high Macrons :-/

Glad you found out what it was! My dd attends public school, is beautifully behaved and calm there, but boy howdy once she hits my car... Also thought I'd mention I've been reading some back posts on Macrons and Beg spray- Thanks for what you've shared, had our LLMD appt. yesterday, we start Beg spray- we also pull more 'Shoemaker' tests come January-

Well, from my simplistic point of view, I don't think that is the case at all- from what our old DAN! Dr. said about the mutations, and our current Dr. it has more to do with the body's ability to detox out metals, infections- What they have found in the autism community (and Yasko's information) is that an overwhelming amount of autistic children have common mutations- C677T and A1298C, I believe- and when the MHTFR mutations were 'corrected' children began to have gains and recovery- why the MB-12 shots are so popular. My own personal view of autism, in general, not always, is that it is medical conditions bringing about the condition- heavy metals, viruses, infections of bacteria and fungal, neurotransmitters, etc. My views are in line with the bio-medical, Defeat Autism Now community/Doctors. My point- is that the MHTFR piece, where mutations are present, if corrected, are shown to have the immune and detox system working more effectively. My own daughter, who is a grand artist and very good student, if I thought she would lose the qualities while helping her system detox better, I wouldn't touch it with a 10 foot pole! Hope this makes sense.

My daughter has distinct issues on BOTH sides of that chart-- I liked finding out if/what her actual gene mutations are, it made it clearer to me why some supplements were a fail, and other one that would be helpful. *sigh* I don't know, nothing is easy about any of this.

Well, there is a test you can get run through Labcorp to test both of your genes to see if you have a mutation- you get one gene from each parent. We had the test run about a year and half ago, my dd has a double mutation A1298C. Trouble with detoxing (again!) Once I have had this information, I've been studying Yasko's sight, googling- some of it is sad- can mean likelihood of miscarriages- heart disease, runs rampant on each side of DH and I- Anyway, have had some input from our Dr. I have also done trials of supps- found out methyl B-12 huge no- but found a need for colalamin B-12 from alternative testing, giving drops of that, folacal, and I bought Yasko's RNA formula for her mutation, started giving it today- All this to say, IMO, if there IS a mutation (and not everyone has it) I believe it should be addressed, if there are health issues. I think the first step is identifying what the 2 genes are- Yasko has a different test, that is much more detailed, looks at more genes connected in the process.