SSS

The big shame was when they would inject multiple vaccines into a young child/infant, and give Tylenol for pain relief/comfort, and compromising the liver to filter out all the toxins.

I have only used the Itires (lymph drainage) our Dr. recommended it. I have given some to dd on occasion. Can't remember how much, sorry, however I took some hefty doses when I had the nodule on my neck come up- which has now left, when I starting using binders 2x a day. I found it mellow- although I haven't had a drink in 20+ years, so it did taste like a shot of vodka, I took it straight. With a little water, it doesn't taste like that. It is homeopathic, and I do drink coffee and use mint toothpaste, don't know if that cancelled some out for me.

Based on our experience with dd on Tindamax, I'd say you are doing great with it! It was a doozy here, in fact, the most significant herx ever- we ended up going off of it after 4 weekend attempts- not there yet. Hang in there- I was disappointed, because I hear of wonderful gains/breakthroughs from it.

Susan, the CMS powder is a prescription- cholestyramine powder. Does heating pad help her knee pain? Hope it clears soon-

When I had a bout with bad nausea, I tried that chewy ginger candy - I don't care for ginger, but these are somewhat sweet, flavored with apple-but quite ginger-y found in candy section at grocery store. Helped- kept my mind off it somewhat. It was starting Doxy that made me very nausea- taking it in the middle of a meal helped the most.

Do you have any oral binders? We are currently still using CMS powder 2x a day, but also have bentonite caps and charcoal here. When things get 'bad' here with dd, I break out Burbur drops, gentle drainage drops, Epsom salt cream (kirkman's makes a good one) start massaging her with it- feet, back, legs. Glutathione. Milk thistle. Extra drinks. Bowels moving. Of course, motrin. Sorry about her knee :-( Hope she feels better soon.

LLM, how did you test your DS's copper? Is it a blood test, or comes with the KPU results? Thanks-

No worries, we don't have Lyme here. Ha Ha Ha Ha Ha! Interesting article, thanks for posting.

I am taking the Longvida brand of curcumin. I have Enhansa (another brand) here as well, but like the Longvida better. Our last Dr. recommended the Longvida brand- I guess he knew/talked to the guys at UCLA who patented it- the delivery system is better.

Thank you for sharing all of your mold knowledge and helping others with it- awesome your family is better.

Familyof5, may I ask: Did you and your family also have positive Lyme and co-infections? Did you all have to treat for that, as well? Thank you.

By all means, follow what you and your Dr. think is best, and maybe this is none of my business, but when you write your child needs to gain 11 pounds to even make 1% on the weight chart for his age, that is scary to me :-/ My dd started Azithromycin (alone) as her very first antibiotic, had some wows! at first, then backslid horribly at week 4-6. Our Dr. at that time then switched her to Augmentin-by itself, she stopped eating. I tried to push through, but on the 3rd day, when she slid off her chair at the dinner table and curled into a ball on the floor, I said no way, pulled her off for good. I'm sure you know all the fatty foods- Hope he turns a corner for you- PV's---

Some individuals have their own set of beliefs on how to cure/get rid of/it was never really there, it's truly something else/ Lyme disease. Here, the article indicates she believes it is food and diet alone. Andrew Cutler, and the AC chelation folks gang, believe it is all mercury and you just need to chelate for 3 years and the body will be fully restored, no problems left. Others believe strictly constitutional homeopathy will be the cure all. I've (for my dd) have done all 3 things (couldn't chelate past 5 weekends tho- exploded with bacteria/pandas) Did full on strict food protocol for a solid 2 years, and worked with 2 of the best homeopathics available- and here we are with Lyme and co-infections treating with antibiotics, herbs, many immune system support supplements, the best, healthiest food I can get in, and about a $300 a month probiotic bill. So, I don't know. Maybe the other avenues may work for some, didn't for us. The LLMD is the last house on the block here.

I have wanted to hear feedback on this topic, but also feel cautious. I am very, very grateful for our LLMD- it is so ludicrous to try and get treatment for this disease. I took dd and myself to get blood testing today- 2 separate labs will not send to Jewish hospital- cannot get these tests done where we live, and these tests I do want to track and get done. We both have orders for other testing- no, not CBC or liver checks, which yes, I do find imperative - but rather further mold testing tests, which I thought I communicated I did not want to go further with- more mold tests to the tune of $2,600. We won't be getting these done. I ordered RN multi immune system complex supplement, as I feel a need and desire for this to take. Didn't 'ask or check' Do you have 'input' with your treatment- say you feel a certain co-infection is at the forefront- do you say, I want to work on this longer? What if there are supps, etc. you are not comfortable with- I have been doing bio-med with my dd for 2-3 years now- I research like crazy, and have honed an intuition, if that makes sense. I certainly don't think I know it all, and do take direction, and follow directions well. Wondering how your recovery decision making process goes.

I had trouble getting Labcorp to do ours - had our favorite tech been there, she might have done it- I ended up getting a courtesy draw from a hospital - May want to call-

Thanks for answering the testing part to Ifran, LLM- so much better at it than I am. The HLA is tied to the Shoemaker mold thing- dd having 1 'dreaded', one of the worst- looking back makes sense, I've stopped protocols (not lyme ones) in the past, die off too much. Then again I think: would we even be this sick if our bodies didn't have trouble detoxing, anyway? The HLA test cost me $600 - before deductable met- I am on the fence about getting it for me- but I might, since there is a good chance she may have got the gene from DH- he has the constant respiratory issues, despite being cardo fit- whereas I have none- no allergies- and since we've cleaned our house up of possible mold,' if it is him with 'dreaded' he needs to detox it out.

Yes, 99% sure they are indeed the Bartonella stripes, look exactly like it, brand new, this is her very first antibiotic combo for Bartonella specifically- we had only been on some B. White A-Bart drops previously, and had only gotten to 5 drops 2x a day.

Oh, and I'm sure you know this, but I have to fit massive probiotics around all this so she doesn't get gut infections which mask everything with bad behavior here anyway, Trying to squeeze in glutathione for detox, B vitamins, zinc, l-taurine, fish oil- yada yada- lots of work. But I would love this girl well (love her anyway, of course, but YKWIM) As far as tics, we have vocal ones, either die off or exacerbation.

My dd6 reacts a lot too- sensitive- we did find out with HLA testing that she has one 'dreaded' gene- meaning she doesn't detox neurotoxins from Lyme or mold well- and some MTHR genes that need help, too. I have been where you are, honestly thinking 'yeesh, I should just take her off everything' and I have, and I get maybe a day or two break, and then it all comes back anyway. Just added Rifampin for her today, first time, she's been on Cipro about 4 days- well, an hour after Rifampin, we had a scary exorcist moments, and later today I see purple marks I've never seen on her back. I want to keep her on this, but detox here has to look like this: 2 hours after antibiotics, I dose her with CMS powder (binder) If I didn't have CMS powder, I'd be using the Bentonite caps I have here, or charcoal. But 2x a day. Then, in the middle of the night, I wake her for a few moments to get bowel movement supps in- Oxy mag or Oxy powder. I have burbur drops, gentle drainage drops- Epsom salt cream I rub on her, she won't take the bath- whatever I can find. I am not as far along as you, and I'm just throwing stuff out- it's hard, I know. Hang in there--

Thank you for the suggestion- I did try time released melatonin about a year ago- very negative experience- it did not put me to sleep, but rather I was unable to move, but my mind was awake, I layed there and felt 'trapped'. Ugh. Afraid now of melatonin. Dd is not on time released. I have had this type of insomnia for years- was given Trazadone to take before bed a few years ago, (type of antidepressant) low dose- helps to fall asleep, but I cannot stay asleep. (TMI) But I also have frequent urination- Will ask for help next appt.

Hi- I am also dealing with fatigue, but can't get a good nights sleep to save my life. Man, to sleep past 4 hours would be heaven- in fact, it is so bad, I am thinking of asking for something prescription to help me. Thankfully, dd6 sleeps through the night 95% of the time with 1 mg. melatonin. My thyroid panel has always checked out normal, but I have started taking drops of adrenal cortex in the a.m. I am also making sure I supplement B vitamins in the morning. SpectMom mentioned Researched Nutritionals, Dr. B's line of supplements- I just purchased Transfer Factor Multi-immune - I am going to try this- see how it goes for a month- I want to try next the Researched Nutritional ATP after, but perhaps I can start sleeping through or won't need it- but it is out there- although it is a big commitment at 10 caps a day for the first 2 months- that turns me off- but we will see how the next 2-3 months go- The fatigue is a hard one-on one hand, all the good sleep helps the body repair.

Ah, another 'not alone' moment. We were unable to leave our Christmas tree lights on for any extended period this season, dd was afraid they would burn out. But happy that was our only mild OCD bit for the holiday- God bless everyone!

I did, thank you, it is actually a double post, darn small iPhone. My girls came down with a hard viral infection, hopefully on the way out. Merry Christmas, and Happy Holidays!

Thanks for asking Julia. It's sort of a strange thing (BEG) the first 3-4 days, immediately after taking it, I would see die off, but less and less... Now she is reminding me she needs to take it. I can't say I see symptoms I can directly relate to the spray necessarily- but it is hard with her to tell, the way she cycles. Broke out my at home strep tests tonight, just in case, all negative ;-) I wish everyone a wonderful holiday, and thanks for all the support--

Well, my other daughter now has a fever of 100. Looks like we have some kind of bug here-- Thanks-