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You do a lot of Lyme tests! I haven't heard of people actually using testing to see how their Lyme is progressing - CD57 for adults, yes. Your pattern of testing is hard to make sense of - some things I wondered: Did you treat any co-infections? I think if you are looking for a test for confirmation (and I get that, I really do) You could maybe pull him off ALL antibiotics for 2-3 months, and then do the 'new' Lyme test, which sounds like a viable test.

Thanks for the detailed update, enjoyed reading it and learning from your journey-- and wonderful to hear the progress :-)

Thanks, sounded too high to me, I'm going to take it down.

Hi- dd6 and I very recently (2 days ago initial appointment) switched our Lyme Dr. I am feeling optimistic, although know there might be hard treatment in front of us. Anyway, one of the things prescribed for dd6, 46 pounds, was Amoxicillin. 2,000 mg a day. She was on it before at 1,500 a day. Online search I found printed: 'Never more than 1,500 mg a day' (for serious infection.) Just wondering if anyone, or their child, has taken more than 1,500 mg a day? Thank you!

I have read malic acid is the chelator for aluminum.

If you decide to remove 100% casein (all dairy) the good news is that it completely leaves the body in 3-4 days, unlike gluten, which can take months. Also, be careful not to substitute going heavy on the soy products as a replacement- then soy can become an issue (that happened to us when we did this 2-3 years ago.)

Susan, that's GREAT! Thanks for providing a detailed update, I could relate to it.

I tested positive for bartonella on the Igenex antibody test. Dd did not, but she has it.

Sounds like both tests were the Labcorp Western Blots? If it were me, I would go ahead and pay for testing through Igenex. This is what we did when dd's Labcorp Western Blot came back with IgM 23 as the only band positive- we both then went forward with the Igenex testing, which further clarified we both have Lyme and co-infections.

Hmm, I'm not sure, but you could call Igenex and ask them about it. My WB from Igenex did have specific lyme only bands come through, but it was the Igenex PCR blood test that came back positive...you could ask them about different strains for the PCR test, too--

Yes, my dd was also not put on Doxy for the same reason- so there are others... I was on Doxy for about 3-4 months, and did go to an extra trip to my dentist when I saw some staining on back teeth- he was able to clean it off, but gross.

I have a book here called 'The Lyme Disease Solution' When looking up Erlichia/Anaplasma, this particular author/LLMD recommends Doxycycline and Rifampin.

Because I had a positive bartonella test out the gate, our Dr. had given me Levaquin (by itself) for 6 weeks- it was a doozy, but hit bartonella for sure. Since then, I did 4 weeks of Rifampin, was feeling great about 2 weeks into it, a deep relaxation in my mind I hadn't felt in I don't know how long. Got pulled off it. Lost the gains I had been feeling. Weeks later, put back on Rifampin- it's been a week and a half back on, and I am herxing horribly-probably the worst week I've had- BUT- it feels and all the symptoms flaring now are babseia, which I have never treated. We are seeing a new Lyme Dr. on Tuesday and making a switch. All of this back and forth isn't working for me (us.) So, I guess if bartonella is a standalone Lyme infection, which I am not sure is possible, any of the standard bartonella antibiotics will hit it, but if there are other infections there, too- well, it's bloody complicated and you can stir up some serious stuff- which is why it's very important to have a knowledgeable Dr.

I believe long term use of antibiotics causes magnesium deficiency. The rub is, magnesium sometimes decreases the effectiveness of the antibiotics. I know magnesium is listed as one of the (in some people's experience) effective supplements for mood improvement/anxiety relief, OCD treatment. *I have never heard that correlation between antibiotics and magnesium. I do know Lyme and co. can bring about magnesium deficientcy. So glad it is helping your daughter!

My dd has had yeast issues way before we introduced antibiotics for pandas- leaky gut, food intolerances, etc. Some say persistent yeast infections could be a sign of heavy metal toxcity. Anyway, it's a hard one once it keeps coming back- diet is a big factor, too- more protein, less carbs and of course obvious sugar in the diet. Hard with a littler kid (big kid too, probably) We've done quite a few anti-fungals, and I give tons of excellent probiotics- but yeah, it's been an issue here forever. ETA: We switched to cooking and using organic coconut oil for just about everything- and sometimes the girls will eat a bit- while I think it's a grand oil for health, I don't consider it a true anti-fungal fighter.

Good stuff, thanks.

I wonder when you cut up the pieces of the body (infections) and take them away, you have to take them to three separate corners of the earth like you do for vampires? (sorry, I am whacky as of late.) That is a good analogy- I enjoy reading better health guy's website. We are seeing a new Lyme Dr. next week, and will probably make a switch. Be interesting to get a new pair of us on us and perhaps change our course, trying for those greener pastures.

Yes. You do need to leave. You need to check into the nicest local hotel you can find, make sure it has a spa and good room service. ;-) Sorry you are feeling lousy! Strep just went around dd's class, but she in on Azith. and Septra, so I am not sweating it. (not really, ha ha.) Maybe stay away from him the best you can until you have 2-3 days of antibiotics under your belt.

Just one hint: Make sure you have some tounge depressors! Trying to get a home swab on my dd without a tounge depressor is near impossible, and they didn't come with my kit.

Viva la France! Thank you.

The confusion is most likely 'brain fog' a big symptom of Lyme.

Our LLMD- but any Dr. can sign it, although the results go to that Dr., and you get the results from them-

It is a urine test- one time catch, you have them wake up and urinate, then no eat or drink, until you get the 2nd urine of the day (for the test) Kit comes with all you need to mail back. Needs a Dr. signature- google 'neurotransmitter test'

I actually find it disturbing- she is really high in many things, so the Dr. said over the phone- don't have a copy of the results yet- and it sounded like he couldn't believe how high the dopamine- I don't know where to go with that. The neuroscience supplements didn't help her. I actually started her on .50 dose, 1x a day, after school, on Clonidine. It slows her down- which I hope will allow her body to chill out and maybe heal better.

We tried 5HTP and it had a negative effect- but that was just us. We also recently had the neurotransmitter test done, I don't have the results, but it said dd is producing way too much dopamine, and also too much seratonin. It gave a recommendation for another neuroscience product, another fail, but it had an herb in it, and she doesn't react well to a lot of herbs. What it did have in it was phosphatidylserine (PS 100) which I happen to supplement separately, and it is a nice positive. I'm sure I didn't help you here. All this to say I think it is individual, and perhaps if the seratonin is lacking, 5HTP might be a good one- unfortunately, they are pricey supplements for trial :-(