kim

Anna, The article that I posted the link to, in the previous post makes it sound like the test results can give you at least an idea of how long ago the virus was acquired. I just scanned it, but, maybe you can take another look at it. It talks about current, and infection in the recent past. If there is a way to determine the time frame, in relationship to the onset of her tics, I would think that the Neuro could at least take the time, to explain that to you. If not, maybe your reg. Dr could? Boy, those people can get lazy and closed minded for one heck of a price per hour. From the article It is important to realize that the Epstein-Barr virus, like all the human herpes viruses, does not totally leave the body after the patient recovers from illness. With EBV, the virus will intermittently recur in the saliva of people without any symptoms. Such people will have a test pattern of previous infection. It is this group of people who can transmit EBV to others without themselves being ill. Abnormal results The results for current or recent infection are: antibody to EA = positive antibody to VCA IgM = positive antibody to VCA IgG = positive antibody to EBNA = negative. Without the pattern of the three antibodies, it can be difficult to be accurate in interpretation. The presence of antibody to VCA IgM is the best single test for current or recent first time infection.

Michele, I think you forgot to include the link? Sharp abstract http://www.sciencedirect.com/science?_ob=A...fbd7a91d920d558 edit... whoops, hope that works now

http://www.foxnews.com/story/0,2933,309461,00.html I hope the parents stay on top of this. I'm afraid there may be an explanation, but the bolded sentence is the real question. Will they ever point the finger to it? If these people received Gardasil, a meningitis vaccine, a thimerosal containing flu vax, then a virus or infection went thru the school, does anyone really think, they would say anything other than, there's no proof that vaccines played any role in any of this? On another note, there have been reports of schools being closed here, because of mercury spills. I guess some chemistry classes (?) keep some of it around? My son was telling me, that a couple of years ago, some got spilled in his Jr. High school. He said the teacher, just wiped it up, and threw it away. I wonder how many teachers would be tempted to do something similar? What is this stuff still doing in classrooms? I guess this could be caused by many things. I just pray something useful will be discovered, and mostly that these children recover quickly.

I'm so glad Cheri, responded to the whole matter of "you know who." I was only here for the last of her appearances, and I agree about there being some valuable info there. The question was, why the rude tone directed at some of our posters? There IS emerging evidence of why some of our "methodologies" are helping our children, IN SPITE of the mainstream attitudes. This was really a good article that seems to relate to the discussion. When these neuro's ask our children ( heaven forbid, it's a neurotic Mom who only sees whiplash as a problem) the question about how do THEY feel, it just burns my ****. These are the people and products, that we have to turn to, when a tic is sending your kids desk across the floor in school? Yea, shame on all of us! http://www.chicagotribune.com/features/lif...1&cset=true Don't mistake mainstream meds for kids as proven Julie Deardorff | November 4, 2007 Whenever I write about nutritional, natural or alternative treatments, a skeptical conventional doctor inevitably asks for studies showing that the "remedies" are effective. It's a puzzling double standard.

In addition to above post...worth a minute to take a look at http://www.forbes.com/2006/02/24/cz_mh_022...thisSpeed=25000 main page http://www.forbes.com/technology/2006/02/2...llingdrugs.html

Such an excellent website http://www.vaccinationnews.com/Opening.htm Scroll down to Picks of the Picks, for daily news. * ►November 6, 2007 - Tougher than MRSA, they beat most drugs - Philadelphia Inquirer - "The rise of these resistant bugs 'is really scary,' said Henry S. Fraimow, an infectious-disease expert at Cooper University Hospital in Camden." Comment from Teresa Binstock: In retrospect and despite warning from early antibiotic researchers, the problems caused by overusing antibiotics parallels the problems caused by excessively fundamentalistic worshiping of vaccinations. Vaccinating sick or recently sick kids is problematic, as is ignoring genetic findings of inter-human differences in detox and immunity. If adverse sequelae are the goal, then One Size Fits All is supportive strategy.

This is a comments from yesterdays article http://abcnews.go.com/GMA/comments?type=story&id=3825976 tlk, . If there isn't a drug, that has been throughly "sold" to the Dr. as a "cure/approved treatment," they aren't interested. The whole system is set up, where they can't practice medicine and healing anymore, even if they wanted to (and I do believe there are those that want to, and are frustrated too). They are at the mercy of the insurance companies and law suits if they step outside of the established guidelines of approved treatments. But, who is approving the treatments? Those who stand to profit the most in many cases. Besides, reg Dr.s just aren't schooled in vit/minerals/nutrition. There is a huge amt. of money in sickness. Just look at what some of the best selling, profit making drugs were last year.

Anna, I was afraid they were going to say that. The best you can do, is make copies of info relating to all of this and fax or take it to them. This research will not be far enough along for years, possibly, to help any of our kids. I know there is alot of talk about clearing virus on the autism bds. Google virus autism and start reading. I know some have had success with rx antivirals, some use olive leaf extract etc. Problem is, is there anything active here, is it a problem with antibodies, or as Bmom posted, is it a trigger, for something else, that goes awry?

Just thought of another one. My sons best friend all the way back from preschool (now 14) has had two incidence of tics. Mouth stretching and wrist shaking. One flair was after mono, the other after chicken pox. VIRUS

bmom, You are so proactive! I had to laugh, thinking of how nerve wrecking, it would have been to get him on the line. Poor man, would have never gotten off the phone, if it would have been me who would have gotten him. I think there is an email address, for him somewhere. Everyone, will have to keep their eyes peeled for any info, on his work. Thank you so much, for posting his remarks! kim

Anna, I wanted to add, that a young school teacher friend of mine, has experienced a mouth stretching tic, and has a bit of an eye roll. She also has been experiecing anxiety/depression. She tested high for EPV virus antibodies too. I'm thinking a viral panel, is probably a good idea, for our kids.

Anna, Way to go Anna! http://www.healthatoz.com/healthatoz/Atoz/..._virus_test.jsp

I have been reading my eyeballs right out of my head, on this subject. Almost, have to push them back in to try to sleep I can't seem to wait for the good Dr. to complete his studies! I have psorisis on my elbow, and the back of my head. We have parents who have talked about RA, lupus, restless legs, etc. I'm positive injecting kids with multiple vaxes, not to mention the questions surrounding thimerosal have played a part in all of this. The effects of aluminum (one article talked about injecting alum into one arm, the antigen into the other, and getting a heightened immune response THEY KNOW that alum heightens an arm of the immune system, and that it can play a role in allergic disease. Then, there is the issue of genetic susceptability. Also, the measles virus being found (vax strain, not wild) in the intestines of some children, is almost as controversial as the thimerosal scandal. So, I keep reading Appanrently, NK cells are usually found, where there is virus, but....I had to see what I could find regarding strep. This sentence caught my attention. NK cell deficient mutant mice were also more resistant to S. pyogenes than were the corresponding control mice Wonder if it applies to kids too? This is a copy of an email that I sent to a friend, this morning.

Wednesday, November 07, 2007 'Twitching' Illness Hits Several Students, Staff at Virginia School http://www.foxnews.com/story/0,2933,308958,00.html VINTON, Va. — A mysterious illness causing an odd "twitching" symptom has stricken several students and a staff member at a Virginia

Cheri, I walked away, and had to come back and google Tregs+dopamine (thinking about your question, regarding "previous TS research"). I haven't even begun to think this through, but it sure looked interesting http://bloodjournal.hematologylibrary.org/...tract/109/2/632 CD4+CD25+ regulatory T lymphocytes (Tregs) are specialized T cells playing a key role in the control of immune homeostasis. Here, we show that human Tregs constitutively express tyrosine hydroxylase (TH, EC 1.14.16.2 [EC] ), the rate-limiting enzyme in the synthesis of catecholamines, and contain substantial amounts of dopamine, norepinephrine, and epinephrine, which are released upon treatment with reserpine.

Cheri, Due to time constraints and the complexity of these issues, which I obviously am not capable of understanding, I'm just going to post here what I find, to see if we can piece anything together, a little at a time. Let's say that in a case where there is such a clear picture of family history (possibly another subset) that it is a genetically inherited dysreguation in T regulatory cells, for what ever reason. This part of your question, had me completely stumped. I am aware of the theory that estrogen is protective in a situation where mercury/thimerosal is thought to cause immune system dysregulation, but had no idea, how it may apply, if mercury exposure was not the suspect. But, look at this. http://www.sciencedirect.com/science?_ob=A...7b0cafa3743a7b3 Estrogen (E2) upregulates the FoxP3 gene that marks regulatory CD4+CD25+ T cells (Treg cells). However, E2 also inhibits the ability of antigen presenting cells (APC) to activate T cells. I don't think that it is a specific virus, which might trigger a problem (what Dr. Sharp referred to in the lecture) but possibly any viral infection, that could trigger neuro problems, in a genetically susceptable subset? If estrogen is involved in the Treg process, couldn't that account for the higher incidence in males, even when looking at previous generations, which wouldn't necessarly be exposed to things that could be triggering a higher incidence, at a younger age, in our current generation?

yes, Faith, I agree that these things are starting to be looked at more closely because of the sheer # of people affected. Sadly, it's become prevelent enough that it's drawing attention from people who more than likely would have continued to ignore, if it didn't affect them personally. This is a newer study with immune markers discussed again. http://www.ncbi.nlm.nih.gov/sites/entrez?d...l=pubmed_docsum Decreased numbers of regulatory T cells suggest impaired immune tolerance in children with tourette syndrome: a preliminary study.

This is not normally the type of article, that I like to share, but the suggestion that this issues may be taken out of parents hands, and the sodium borate stuff, gave me chills. Also, in light of genetics, that may suggest problems with VIRUS in people with tic syndromes, is this something that we want to risk injecting which causes an immune system response that is not natural, along with other live viral injections, such as measels, mumps, rubella and varicella? http://www.healthtruthrevealed.com/full-pa...mp;page=article No idea who the person is that wrote this, or the accuracy...but for anyone considering, would be worth checking into!

I have listened to this several times (struggling to understand) I'm tempted to burn this, or at least the last part, and take it to any future Dr.s. It's so good to see that someone is looking in the direction of the immune system. I guess this man really may be interested in getting some real answers, since his daughter and his best friends son, both have TS. It was confusing, because I couldn't read the charts and you couldn't tell what he was pointing at while he was talking. What I was able to come up with so far (I think) is that he tested over 100 kids. Some had epilesy, daily chonic headache etc. He said in kids with TS, he found 8 genes that identified the TS kids. Ok, that part was easy...but, then he goes on to say, that when he looked at those genes, some were low expressers, some were high, and there were a few, that were very high. He says that NK (natural killer) and CD8 cells were high in the whole group (again, I think that's what he's saying, it may have been 1/2 of the group) I have also, done a little reading on IL 24, which in the same family as IL 10. He talks about PANDAS a little. Seems to think that it truly exists, but in a small %. Then he talks about NK and CD8 usually being elevated in the presence of a virus. He says the explaination could be, that it is just their genetic makeup (high expressors of these genes), or there may be a virus involved. He talks about a subset of autistic kids having this same profile. He says that there are estimates as high as 1 of 50 people affected by TS/chronis tics reported in Europe, talks about problems with executive functioning (a lack of focus and organization) and how this can be the most debilitating part of the syndrome, for some. Is sounds like this is a big problem for his daughter. Then he points out, how important reseach is, with such high estimates of people affected. Yipeeeee He says that the autoimmunity link has never been studied. He mentions RA and lupus, graves, etc. If I remember right, he mentions recent connection to restless leg syndrome. This article was helpful....looking at NK and CD8 http://www.hhmi.org/cgi-bin/askascientist/...%2Fans_026.html He does mention B cells (make antibodies), neutrophils...kill bacteria, and gene expression in different subset of ts, completely different from every other kid.

Pesosmom, What a great post to read. It's a wonderful thing, when you see those improvements, isn't it! Kim

Patty, That candy mud pie, is a great idea. I bet I could get my youngest son to go for that. Tell your son, thanks for me!

Emma, You might want to save this site, to your favorites/bookmark. It has good vit, mineral info. http://lpi.oregonstate.edu/infocenter/minerals/manganese/ We use Bontech vits, and they don't contain any manganese. We may end up swithcing to a multi, with other individuals added, at some point. Personally, I would probably stick with a lower amt. as opposed to something like 15 mgs.

trubiano, Try here....also, you may want to take a look at Wilson's disease. Not saying you have it, just to get an overview of symptoms assoc. with high copper http://www.alternativementalhealth.com/articles/walsh.htm#Co Home page for this segment http://www.alternativementalhealth.com/articles/walsh.htm#Co well worth reading

Emma, This thread has a little more mang. info http://www.latitudes.org/forums/index.php?...tion+diagnostic

Anna, Here is the Bontech website http://www.bonniegr.com/ Also, with the info you provided in private message, I'm wondering if this is a term that was mentioned by any of the Drs? Benign Fasiculation syndrome....just google this, you can get a good overview of symptoms This is a web group that may be of interest to you. There is one post with links to a couple other forums. If you can really get a handle on what most closely matches your daughters situation, it may be easier to find the right supplement program. http://www.medhelp.org/forums/neuro/messages/31935.html Let me know what you think! Kim