kim

Cheri, I don't think I would have posted what I did, if your response to Michelle wasn't there for everyone to see, first. I always have a little alarm bell go off, especially when I see phenylalanine, because of the dopamine precursor stuff. I know you would never suggest ignoring the doc's recommendation, and were only pointing out why some amino acids may not be ideal for movement disorders! I would love to continue this discussion about dopamine though (on another thread..so we don't clutter up Michelle's), if anyone has the time to dig up some studies and discuss them. It just does not appear to be a cut and dry situation to me.

Michelle, Cheri doesn't want to contradict your doc, and I sure don't want to sound like I'm contradicting Cheri. She probably has more experience with amino acids than I do with the kids. I do want to add a couple of comments though, as this is a topic that I have many questions on. The increase in dopamine and the relationship to tics, gets quite confusing. You had mentioned that one Dr. felt the ADD symptoms may be a bigger problem for Andrew. It has occured to me many times, that people who have tics and ADD/ADHD together have the problem of trying to figure out which medications to use...which is simply a docs best guess and trial and error in most cases. They really don't know exactly how most of these meds work. Take Ritalin for instance, it's thought to work by increasing dopamine. Dopamine is involved in the ability to concentrate etc. We have at least one parent here who reported a decrease in tics while her daughter was taking ritalin. I"m not trying to make a case for ritalin or any prescrip med for these disorders, believe me, but I just have a hard time, sorting out what effect dopamine has on tics. Some people experience a decrease in tics when they start a prescript med that blocks dopamine receptors/production or whatnot, but.....those effects don't always last. They can also lose their ability to concentrate, feel mentally numb etc. There are different types of dopamine receptors in different areas of the brain, sooooo It's kind of a balancing act trying to figure out, what may be a problem relating to dopamine, serotonin, epinephrine, norepinephrine, cortisol, glutamate, on and on. Also, since you know my concerns regarding vaccinations, we have to remember that Bonnie's son and some of the older TS/tic people/kids, may not be dealing with the all of the same damaged pathways, that the younger kids are, that were given such a heavy schedule. There are just so many variables. Personally, if testing showed that these amino's were low, I would take them exactly as prescribed. I don't know how much more expensive the compounding is, compared to individuals but I do know how hard it is to get so many things down these kids. I guess that's a toss up. If you feel the compounded are making things worse, it's going to require another consult with Dr. and a new formula, but getting the right dose with the individuals may be hard too. I think part of the reason that i feel i would just go with your Drs. reommendation (at least initially) is because of his credentials too. Some DANS that are not nearly as involved in this reseach as yours seems to be. I'm so glad you are sharing all of this info Michelle. What ever you decide, I hope you will continue to keep us updated with what you're seeing. It's such a learning thing here, as more and more is discovered with what is happening with these children. just a blip from wiki regarding ritalin http://en.wikipedia.org/wiki/Ritalin Methylphenidate is a central nervous system (CNS) stimulant.[10][11][12] It has a calming effect on humans who have ADHD[citation needed], reducing impulsive behavior, and facilitates concentration on work and other tasks. Adults who have ADHD often report that methylphenidate increases their ability to focus on tasks and organize their lives. Methylphenidate has been found to have a lower incidence of side effects than dextroamphetamine, a less commonly prescribed medication.[13] When prescribed at the correct dosage, methylphenidate is usually well tolerated by patients.[4] The means by which methylphenidate helps people with ADHD are not well understood. Some researchers have theorized that ADHD is caused by a dopamine imbalance in the brains of those affected. Methylphenidate is a dopamine reuptake inhibitor, which means that it increases the level of the dopamine neurotransmitter in the brain by partially blocking the transporters that remove it from the synapses.[14] An alternate explanation which has been explored is that the methylphenidate affects the action of serotonin in the brain.[15]

Michelle......I was scrolling through the "articles" thread looking for an amino acid article that I think is posted there and ran into this article. I thought of you because I know that you are struggling with the vaccine issue for your daughter. I'm sorry with everything that you're dealing with, that you have to struggle with this decision too. I just so fear the whole process of vaccination for some children. I went through what you are with my neice and that decision. I found the level of ignorance surrounding vaccines in the pediatricians that we saw (4 of them) to be mind boggling. It was like they were all reading from the same script. The decision became much easier, once we really got fimiliar with the diseases that are vaccinated for. Anyway, since this article is rather specific to TS, autoimmune issues, autism, I thought maybe you would want to read it. http://members.jorsm.com/~binstock/vin.htm

Nick's Mom, First of all, don't feel dumb! Believe me, we all get overwhelmed and frustrated at times. There are bds. that I read where I feel really lost too. Some of the bio med moms and dads know things inside and out where I just I wonder if you can tell why your son had to discontinue the supplements that you were giving when he was started on the anti biotic? Was it a matter of something interferring with the antibiotic? Are you giving a pro biotic? Did your son's tics just start out of the blue, or was there an illness assoc. with the onset? I think that my son, who is now 15, is so much more willing to at least try to follow some suggestions in regards to diet etc, is because he knows how much things improved when we started Bonnie's vitamins, enzymes, diet restrictions etc. You tell Nick that there are others who understand his anger. It's hard to be a young adult and deal with something that there is so little understanding of. But as Chemar always reminds us, this too shall pass. Have you tried the pinned thread at the top of the forum titled "FINDING MEDICAL HELP?" There are some links to places where you can get Dr.s names that are in the area's that you're interested in.

Laurie, The link is working now. Also, in regards to your remark (let's see if I can not screw this up) I'm not sure about direct parallels, but i think it's safe to say, some very common ground. http://www.medicalveritas.com/MarthaHerbert.pdf Is there a genetic overlap between autism, Tourette’s, and autoimmune disease? Oh, it’s interesting, there’s a lot of work that goes on in autism research on what’s called “comorbidities.” So many of the psychiatric autism researchers will study overlaps between say autism, obsessive compulsive disorder because of the possessiveness, tic disorders, because of the repetitive movements, and so forth. But Kevin Becker who’s a scientist at the National Institutes of Health did a very interesting study where he over-laid the genomes—the areas of the genomes on the different chromosomes where findings have been identified, and he did it for autism, Tourette’s, and autoimmune disease. He’s also done it in other areas like diabetes in other papers. He found an enormous amount of overlap to the point where you wonder what is it that, given so many similar genetic vulnerabilities, leads one person to be autistic and another person to have Tourette’s. Because it looks like there’s a whole set of shared vulnerabilities. And in other work that Dr. Becker has done – he has a very interesting paper called, Common Variants, Multiple Disorders – basically showing that a whole set of genes can contribute, presumably through vulnerability-type mechanisms, to dozens of diseases. These genes are not specific for any one disease. They set you up for something more generic. Autism, Tourette’s, and autoimmune disease all potentially have immune system contributions. So that may be one piece of this. I don’t think they really fully understand all of it. But, we are learning these days that inflammation is a common feature in an incredible range of diseases that we didn’t appreciate before. Even heart disease and obesity have a substantial component of inflammation. So, I think that our ideas of what causes disease and what is specific about a disease definition are going to have to undergo a substantial change. This is something that an area called “functional medicine” talks about a lot. It talks about the differ-ences in function and highlights how blurry the boundaries are between disease entities and how much overlap there is in many of the biological or pathophysiological features underpinning what goes on as a person gets worse in many of these disease processes, including autism.

Laurie, See if there is any help here http://f1.grp.yahoofs.com/v1/EGxLR1Xjn4lcU...cpicolinate.pdf If you find something, please post the important parts. It's been a while since i read it I also JUST realized that the zinc picolinate that I have been using with my youngest son has 2 mgs of copper in it. I was so happy to find the picolinate locally 30 mg. dose, that I missed the fine print.

Then from this study We previously demonstrated that antineural and antinuclear antibodies were present in sera from a subset of patients with Tourette’s syndrome (5). In the present study, sera were selected on the basis of their rank order for either IgG or total antibodies against either nuclear or neural protein(5). Sera at or above the 75th percentile were identified as having a high autoantibody level, while sera below the 75th percentile were identified as having a low autoantibody level. The study subjects included 12 Tourette’s syndrome patients with high autoantibody levels (seven male subjects and five female subjects, age range=10–19 years, mean=14.4) and 12 Tourette’s syndrome patients with low autoantibody levels (nine male subjects and three female subjects, age range=14–40 years, mean=21.5). Twelve comparison subjects with sera with staining intensities below the 75th percentile for both antineural and antinuclear autoantibodies were also selected (six male subjects and six female subjects, age range=11–35 years, mean=18.2). No subjects were taking psychostimulants at the time that blood was drawn. Twenty-seven subjects were taking no medication, six were taking neuroleptics, and three were taking clonidine. The effect of medication on stereotypies was assessed, and no differences between groups were found (Kruskal-Wallis H=0.95, df=2, p=0.62). Evidence for recent exposure to streptococcal infection was also assessed. No differences were found across the three groups for levels of antistreptolysin-O titers (F=1.21, df=2, 33, p=0.26) and anti-deoxyribonuclease-B titers (F=1.54, df=2, 33, p=0.23).[/b] A number of autoimmune disorders are caused by humoral factors. This mechanism has also been proposed for a subset of subjects with Tourette’s syndrome and obsessive-compulsive disorder (OCD) (1–6). The therapeutic benefit of removing autoantibodies was suggested as the mechanism for the positive response to plasmapheresis in individuals with poststreptococcal-associated Tourette’s syndrome or OCD (11). In the present study, however, none of the six Tourette’s syndrome patients with high levels of antibodies for whom adequate data were available (pediatric records, extensive parental interviews with the National Institute of Mental Health forms for assessment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections [PANDAS]) met the diagnostic criteria for PANDAS Does this mean that strep antibodies were not the culprit or that the diagnostic criteria for PANDAS in not accurate? Someone made that remark recently that an associate of Dr. Murphy's (?) made the comment that titers were not what they were relying on, but the abrupt onset of symptoms in relationship to a strep infection. I know some of these studies show that people without evidence of autoimmune disease have these antibodies too, so they are not necessarily a definitive marker either (just my understanding). Again, the question of, what other illness may cause these antibodies to form?

Here is what I find interesting..and a little alarming from this study http://www.sciencedirect.com/science?_ob=A...2c7f3b1d1e86272 Results: TS patients had a significantly higher mean rank for total antineural and antinuclear antibodies, as well as antistreptolysin O titers. However, among children and adolescents, only the total antinuclear antibodies were increased in TS patients compared to age matched controls. Does this suggest that in older people with TS, that antineural antibodies develope at some point? This is interesting too http://www.springerlink.com/content/p0670q4371q57171/ Summary It has been proposed that antineural antibodies were present in patients with Tourette’s syndrome (TS) and other neuropsychiatric disorders. The purpose of our study was to investigate the presence of antineural antibodies in the individuals with Tourette’s syndrome and the family members of TS patients. The sera of four TS patients with no current streptococcal infection, their tic-free family members including father, mother and sibling, and a age-matched control group who were tic free were assayed for antineural antibodies directed against rat tissue and neurons in primary cell culture. There were prominent antineural antibodies present in TS patients and their first-degree family members, but not in the control group. Western blotting showed proteins of about 120 kDa in their sera that were not present in the sera of controls. The preliminary results of our study suggest the importance of genetic vulnerability in the immunological pathophysiology of tic disorders. Future studies should investigate the interactions of genetics, environment, infectious agents, and immunity on symptom expression in families with tic disorders This was only 4 patients. I'm wondering what their age was?

Whoops Lisa, I screwed up the quote part of that last post. I had the Baylock interview (well worth the read though!) copied apparently. I'm also wondering if ANA testing is exclusive to strep, or can these antibodies be caused by other infections as well. I know it is a seperate test from Streptozyme. I don't have time right now to read the links you pasted, but will get to them later. Look at this study http://www.sciencedirect.com/science?_ob=A...2c7f3b1d1e86272 I'm wondering what this means Conclusions: TS patients had significantly higher levels of total antineural and antinuclear antibodies than did controls. Their relation to IgG class antineural and antinuclear antibodies, markers for prior streptococcal infection, and other clinical characteristics, especially chronological age, was equivocal.

I have a question for the PANDAS moms too Lisa says I'm wondering if the test for anti nuclear antibodies are tested too, in PANDAS kids. I did a little looking around. It sounds like this is a separate test from the ASO anti DNASE testing. It also looked like those two could be normal for age, expected strep exposure etc, but the ANA high?

cross post from autism info...thanks Tereasa FDA: Flu Drugs Affecting Kids' Behavior 11:36 PM PST, November 23, 2007 http://www.latimes. com/news/ nationworld/ nation/wire/ ats-ap_health10n ov23,1,716696. story WASHINGTON — Government health regulators recommended adding label precautions about neurological problems seen in children who have taken flu drugs made by Roche and GlaxoSmithKline. The Food and Drug Administration on Friday released its safety review of Roche's Tamiflu and Glaxo's Relenza. Next week, an outside group of pediatric experts is scheduled to review the safety of several such drugs when used in children. FDA began reviewing Tamiflu's safety in 2005 after receiving reports of children experiencing neurological problems, including hallucinations and convulsions. Twenty-five patients under age 21 have died while taking the drug, most of them in Japan. Five deaths resulted from children "falling from windows or balconies or running into traffic." There have been no child deaths connected with Relenza, but regulators said children taking the drug have shown similar neurological problems. While FDA said it isn't clear whether the problems are directly related to the drugs, it recommends adding language about the possible side effects to labeling for physicians who prescribe Tamiflu and Relenza. Besides being a drug side effect, the agency said the behaviors alternately could result from an unusual strain of flu or a rare genetic reaction to the drug. Company representatives were not immediately available for comment. * - - * New Warnings Urged For Flu Drugs' Labels By Christopher Lee Washington Post Staff Writer Saturday, November 24, 2007; A02 http://www.washingt onpost.com/ wp-dyn/content/ article/2007/ 11/23/AR20071123 01658.html Food and Drug Administration experts are recommending new label warnings about possible dangerous psychiatric side effects of influenza drugs Tamiflu and Relenza, according to FDA documents. The documents, posted on the agency's Web site yesterday, were prepared for a meeting Tuesday of the FDA's Pediatric Advisory Committee. Studies revealed 596 cases in which patients who took Tamiflu experienced "neuropsychiatric events" such as delirium, delusions or hallucinations. The episodes sometimes led to impulsive behavior and self-injury. Tamiflu is made by Roche Holdings. The problems tended to occur within 24 hours of first taking the drug, and the majority were in patients younger than 21, mostly in Japan, according to the documents. In five cases involving pediatric patients, the reported delirium resulted in death, and there were three reports of suicide in adults. "In the remaining reports of delirium with impulsive behavior and self-injury, patients were attempting to flee or escape from windows or balconies and were unsuccessful in their efforts," the FDA documents say. "In addition, there were a few patients who became aggressive or violent and/or performed acts that were injurious to themselves (e.g. banging head against wall) or others (e.g. child tried to strangle mother)." Tamiflu, available in pill and syrup form, can treat the symptoms of seasonal influenza. In a bird flu pandemic, many experts believe the drug could help reduce the length and severity of symptoms. Safety concerns about Tamiflu arose two years ago after reports of 12 deaths and 32 cases of psychiatric problems in children in Japan. Labeling for Tamiflu in the United States notes that self-injury and delirium have occurred primarily among pediatric patients. Now FDA regulators are recommending that U.S. labeling be updated to note that "fatalities have occurred in adult and pediatric patients in Japan, the onset may be abrupt, and fatal events have occurred even while the patient was being monitored." Regulators cautioned that no causal link has been established between the drug and the abnormal behavior, and that delirium and other problems can be complications of influenza itself. Roche spokesman Terry Hurley said reports of abnormal behavior were "infrequent. " "If the FDA concludes that it is valuable to place additional details on the label with regard to specific adverse event reports, then Roche is open to that consideration, " Hurley said in a statement. Regarding Relenza, an antiviral drug by GlaxoSmithKline that is in the same class as Tamiflu, FDA experts said studies turned up 115 cases of psychiatric problems, including 74 cases in patients younger than 21. Seventy percent were from Japan. No potentially related fatalities were reported. Because Relenza, which is inhaled by mouth, is not easily absorbed, experts said the problems probably were related to the influenza rather than the treatment. Nevertheless, they recommended updating Relenza's label to note that "postmarketing reports of hallucinations, delirium and abnormal behavior have been observed in patients" receiving the drug for treatment of influenza. The label currently does not warn of psychiatric side effects. Glaxo spokesman Jeff McLaughlin said, "A review of clinical trial data and postmarketing reports demonstrated no evidence of a causal association between Relenza and neuropsychiatric adverse events." William Schaffner, chairman of the Department of Preventive Medicine at Vanderbilt University School of Medicine in Nashville, said the proposed warnings are "prudent and appropriate. " Schaffner noted that in Japan, where Tamiflu and Relenza are used not just to treat influenza but to prevent it, some children are on the drugs for as long as seven weeks. In the United States, the drugs primarily are used to treat illness, and children typically are on them for five days or less. "We still don't know whether there is a causal relationship between the exposure to these events and the drugs," he said, "but we use these drugs differently than they do in Japan." Post a Comment View all comments that have been posted about this article. * The material in this post is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes.For more information go to: http://www4. law.cornell. edu/uscode/ 17/107.html http://oregon. uoregon.edu/ ~csundt/document s.htm If you wish to use copyrighted material from this email for purposes that go beyond 'fair use', you must obtain permission from the copyright owner.

First, I need a better understanding of tyrosine hydroxlase. I want to know how infection/virus can affect dopamine expression, I'm just going to do this a little at a time, in case there is anything here that helps. I usually end up with a bunch of links and excerpts on a note pad, and can't explain what I found, anyway, so I'm just going to try here. From http://en.wikipedia.org/wiki/Tyrosine_hydroxylase Tyrosine hydroxylase or tyrosine 3-monooxygenase is the enzyme responsible for catalyzing the conversion of the amino acid L-tyrosine to dihydroxyphenylalanine (DOPA). DOPA is a precursor for dopamine which in turn is a precursor for norepinephrine (noradrenaline) and epinephrine (adrenaline). The enzyme, an oxygenase, is found in the cytosol of all cells containing catecholamines. This initial reaction is the rate limiting step in the production of catecholamines So what is Reserpine? http://en.wikipedia.org/wiki/Reserpine and

Interesting article on glutamate too http://www.lockergnome.com/news/2007/01/17/brain-cleaner/ J Child Neurol. 2007 Nov;22(11):1308- 1311. Blood Levels of Mercury Are Related to Diagnosis of Autism: A Reanalysis of an Important Data Set. Desoto MC, Hitlan RT. Department of Psychology, University of Northern Iowa, Cedar Falls, Iowa. cathy.desoto@ uni.edu. The question of what is leading to the apparent increase in autism is of great importance. Like the link between aspirin and heart attack, even a small effect can have major health implications. If there is any link between autism and mercury, it is absolutely crucial that the first reports of the question are not falsely stating that no link occurs. We have reanalyzed the data set originally reported by Ip et al. in 2004 and have found that the original p value was in error and that a significant relation does exist between the blood levels of mercury and diagnosis of an autism spectrum disorder. Moreover, the hair sample analysis results offer some support for the idea that persons with autism may be less efficient and more variable at eliminating mercury from the blood. PMID: 18006963 PDF of full article...thanks autisminfo group http://f1.grp.yahoofs.com/v1/EMFBR-lagYqxr...0Nov%202007.pdf

Michelle, we had discussed testosterone/estrogen on another thread. I ran across this (I have been looking at all of these immune markers..trying to make heads or tails of all of it!) I wondered what your RA symptoms did during pregnancy? Were they supressed? The other thing I have come across recently was the relationship btwn strep and the onset of RA? Have you done any research on that? Did you have a history of repeat strep? http://www.sciencedirect.com/science?_ob=A...7b0cafa3743a7b3

Would anyone like to try to help to break this down? http://bloodjournal.hematologylibrary.org/...tract/109/2/632

Tom's mom, I'm so sorry that I didn't reply sooner. It looks like you have gotten a lot of good advice and replies. Honestly, I do worry about the reactive foods. My youngest son tested highest to cows milk and peanut...two of the things that he actually eats. I just didn't and still don't have the guts to totally eliminate them from his diet. Really, I'm afraid I will flare tics if I radically change things for him. I know this flies in the face of everything that we read here. I'm not even sure I can explain it. Tics for the most part, are not his problem. It has been more of the bedwetting, inability to eat normally, that have been worse. At one point, I did see a tic reaction within minutes of eating pretzles. The enzymes help with the frequent stomach aches/reflux symptoms and seemed to help with tics after wheat. I'm in the process of seeing if I can get him to see someone to work with him on oral sensitivities. I'm not sure that I want these kids anywhere near "mainstream" medical people (need a referral from MD), but there is a little part of me that wants to see what he can "do" for someone else. Everytime he tries a new food, he'll literally gag to the point of vomiting. I have read several times that metallothinine deficiency affects taste/texture sensitivity. I'm not sure that this child isn't avoiding other things (like other forms protein) because his system can't handle it. B12, zinc and I believe taurine have been essential to his overall health, IMO. I had no idea, that children with these limited diets were so lacking. If you want to add a multi b, you may want to use what Chemar gives her son. The royal jelly is supposed to be a great source of B's. Just start low and work up. Kids can handle B's differently. I'm not sure how royal jelly is supplied, but if you have options, go slow. The question about the multi, is a good one. There are a few suggestions here, you may want to use the search feature to see what others have suggested. This is an article that is load with info. I have it copied and read back through it every now and then. There are so many references to things discussed here often, that I think everyone will get something out of it. It's funny how you pick up on things the 3rd or even 4th time you read something. Also, I'm always on the lookout for what will eventually be discovered genetically, that will lead to treatments that will help the most, for individual situations (that's why I follow Yasko as much as time permits!) http://www.newtreatments.org/fromweb/sulfur.html almost forgot...from response to Kallik on another thread

Kallik, If your son is constipated, you might want to try some of the citrate forms of calcium/magnesium. They can promote looser stools. If your son has any signs of gut problems, just a "heads up," go slowly with the enzymes. There are chewables and capsules. My youngest son had some pretty bad stomach pain when I introduced them. It didn't last long, but it was very obvious that those enzymes were working on something. If you throughly read through these sites, you will get a better handle on the whole thing. Just use the menu on the left. http://www.enzymestuff.com/ These are the enzymes that we use. After reading through the site, you can click on the pictures of the bottles in the upper right, to get a brief overview of what each one works best for. I know it can be overwhelming. http://www.houstonni.com/

Becky, I'm wondering if you have any history of autoimmune disease on either side of the family? Also, do you notice anything different about the kids when they are sick? Like never sick, never fever, or sick a lot, worse/better with illness? Have you ever had anyone's zinc level tested? I think I could ask you a million questions, but I better stop right there. With the move and all, I bet you don't feel like sharing life story on 3 kids! I do notice that you say that your older son had a bad reaction to DPT. That's part of the reason that I'm asking about any patterns with illness that you may have noticed. This is an article that might be of some interest. I happened to catch this story on the discovery channel. Interesting reading/watching , in your spare time http://www.pbs.org/wgbh/nova/genes/?campai...enes_2007-10-16 There is a watch on line, option across the top.

Thank you all SO much for well wishes, and suggestions/support. I have been reading every single remark, believe me. I just have had so little time to reply.

Cheri, I'm not sure if this has been posted here either as I have posted and discussed this at length in a couple of other places. This is a page, I know I have posted here before. I hope everyone takes some time to scan as often as pssible. It has headlines, updated daily with news regarding vaccines and a lot of the propaganda that is being foisted on parents. There are numerous artcles relating to the story you just linked to. http://www.vaccinationnews.com/Opening.htm I can't tell you how dangerous I feel this practice is, especially in light of the issues that our kids deal with. There are so many unknowns in relationship to the immune system and surrounding TS/tics. I would gladly spend time in jail, than see my boys injected with aluminum, multiple antigens, and to borrow a phrase from another mom, over my cold, lifeless ,dead body...mercury There is no one in this household, that will be receiving any type of vaccine in this lifetime.

Deedee/Michele, Do either of you feel that your kids tics are less abrupt or jerky than what some tics seem to be? I never really knew the meaning of the word chorea. Just came across it recently. I had described a movement my youngest son was doing in a PM to another parent recently. He was making a fist and swinging his wrists outward. It almost looked like he was doing it to music. He also will spread and stretch his fingers, and do a shoulder roll with a little neck stretch. They are just such subtle movements. They don't stand out as being jerky tics. He did have 1 brief episode of head shaking, similar to what his older brother has now, but it was short lived, quite a while ago. Just curious. I have also wondered if the abrupt onset of PANDAS is really necessary criteria. Michelle, would you say that your son has an explosive onset of symptoms with his strep infections? Deedee?

Thanks for the kind remarks Michelle. I wanted to mention that I was giving my son mag citrate. Not seeing improvement. Started giving him mag taurate, better. Also Michelle, if you start having a tough time with behaviors or flu like symptoms (can even include a rash or fever) with die off from nystatin, you might want to try activated charcoal. I think I recently saw Source Naturals recommended. At first, I thought it sounded like a nasty thing to have a child swallow, but it appears many parents, who I consider very educated, many with DAN drs. use this with highly sensitive kids with many medical issues. The only real warning I have seen regarding it's use, is not to give it near supplements or medications, because it neutralizes darn near everything. As with anything, you may want to run by your Dr. if you decide it's necessary. It is supposed to be quite helpful. Faith, If you check the VAERS website, I'm sure you would find many adverse events reported after the flu shot. If I get a chance I'll try to pull that page up. An adult male on another forum made the remark that he felt his symptoms had been worse, after recently receiving a flu shot. Calicat, A friend of mine sent this link to me a tonite. She said it would make me explode. You may want to have some duct tape handy, if anyone in your house is sleeping. Maybe in the future, some of us will meet, wearing stripes. think it would be called, "refusal to vax until more is known about the immune system" prison. I included my response to her. http://www.prisonplanet.com/articles/novem...107Immunize.htm I'm hardly even surprised. If parents don’t ban together, we can’t stop this. I wish more parents were aware of exemptions, but they’re working overtime to get rid of those too . It seems as if the more they get away with, the more bold they become. I'm thinking this might be a stupid move though. I don't think parents like to be bullied in this manner. They push too hard (I had read in a different article that the majority of the kids were behind on hep b and varicella) and they may end up with a whole bunch of teed off parents, that WILL start questioning what is really going on here. We can only pray. I got a letter home from the school yesterday. Said two students at the high school had been diagnosed with MRSA. It went on to say how most people have had staph or MRSA and how unlikely it is to cause serious illness or death. Says many more people are hospitalized with the flu. Now I wonder why they have to mention flu. Ya think it has something to due with the fact that there’s a vax for it? Couldn't the same thing be said about chickenpox? But they're willing to lock parents up for not getting that vax? As soon as there is a vax for MRSA, it will be known as a swift deadly killer. Until then, all you really need to do, is wash your hands, as the odds of a serious problem are just soooo low more extensive article same issue http://www.washingtonpost.com/wp-dyn/conte...7111301408.html

My oldest son is in the midst of a bad head shaking flair. He will be 15 shortly. He has been 98% tic free for close to two years. It sends you right back to the scary depths of dark places to see your child go thru this as a freshman. I do want to add that we have been very lax on supplements, enzymes, diet etc. for the most part, since mid summer. It's such a balancing act, with slurpees and doritos, making an issue of of supplements with friends around all of the time vs letting them be kids. I chose to back off, hoping the worst was behind him, and focusing more on my younger son and his eating issues. If I can stress one thing to parents going thru this with younger children, please please do not give in to the notion that there is nothing more than mind altering drugs to improve a situation that is not bearable for your child. Stay the course, it's much easier when they are young. I only have a minute here (and want to apoligize for not responding to some questions) but in regards to these articles, I am so furious that thimerosal vaccines are being injected into pregnant moms and if they are giving any 6 month old infants, two of these.....I can olny wonder about the true motivation. This is another must read article http://www.scipub.org/fulltext/ajbb/ajbb4273-84.pdf Oxidative Stress in Autism: Elevated Cerebellar 3-nitrotyrosine Levels I wanted to add that we have never had an ADHA problem. I have come to recognize a bit more OCD characteristics from the info. from parents on this forum. I would have been lost without this place.

http://www.guardian.co.uk/news/2007/nov/12/uknews.health Ritalin of no long-term benefit, study finds http://www.jsonline.com/story/index.aspx?id=685311 MOST FLU SHOTS CONTAIN MERCURY BUT FEW KNOW IT http://www.washingtonpost.com/wp-dyn/conte...7111101076.html How Science Is Rewriting the Book on Genes Graduation day comes and the new doctors assemble to get their diplomas. The dean gazes out and announces sheepishly: "I'm sorry to tell you that half of what we taught you is wrong. The problem is, we don't know which half." http://www.themoneytimes.com/news/20071113...id-1013128.html Vancouver, British Columbia -- Eating too much fructose and glucose can turn off the gene that regulates the levels of testosterone and estrogen in the body, a Canadian study found http://www.nytimes.com/2007/11/13/health/13kids.html In a normally developing brain, the cerebral cortex — the outer wrapping, where circuits involved in conscious thought are concentrated — thickens during early childhood. It then reverses course and thins out, losing neurons as the brain matures through adolescence. The study found that, on average, the brains of children with A.D.H.D. began this “pruning” process at age 10 ½, about three years later than their peers. And But the greatest delays in brain maturation were found in precisely those areas of the cortex most involved in attention and motor control, said the lead author of the study, Dr. Philip Shaw, a psychiatrist at the National Institute of Mental Health.

airbucket, I'm wondering if you ever got your results from the urine porphyrins testing? Kim