

thereishope
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Is EVERYONE voting in Pepsi Refresh?
thereishope replied to mama2alex's topic in PANS / PANDAS (Lyme included)
Yes, a few had that problem. The soda opening and pouring has also been misinterpreted. The sound of soda pouring is NOT voting. Always look for the confirmation that you voted. It will say something like "Thanks, cool, gracias" where the vote button was. -
Should we approach http://www.refresheverything.com/ErinsDream on their FB page. Say if they put us on their FB page as their status on Friday, we will do the same for them. Call each other something like "Our voting partner for the day"?
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scary dreams two nights in a row
thereishope replied to saidie10's topic in PANS / PANDAS (Lyme included)
The title of this thread caught my attention. Is he having bad dreans? My son had scary ones and then his brain "ran with it" and he would think he was seeing things, convinced the dreams were real. It would take him quite awhile to fall asleep at night. -
Do you have a facebook account you can sign in with? I know it may take a couple minutes, but how about getting a free gmail account and then setting up a NEW account with Pepsi? If anyone feels comfortable doing this...you can message me you email address and password and I'll see if it works from my computer.
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SMA won the $250K last month. I have no idea what a shifting vote, but I am getting very frustrated.
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Sorry for another post. is anyone up for the job of scanning our comments or are you doing that already, JAG? Is synergy sending a good amount of votes our way? they went up 10 spots in amatter of days. we're slipping...
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Quick question, do you think it's the same pool of people for SMA and Sophia's Cure? They are both SMA affiliated
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guys, I'm sorry I'm not doing it in a designated time block, but I'm doing mine now. Have to get it done for myself and 3 other people and I won't have times to do all of them in the other times. Tomorrow, I'll try to make the 8:30 slot, but I had some stuff to do at that time today.
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Blogs that post the Pepsi refresh link
thereishope replied to Kayanne's topic in PANS / PANDAS (Lyme included)
Wasn't he just on Oprah or something? That site is going to be getting a lot of hits! I think most fans will read all the posts they put up until they get to last one they visited before. In the original post, they have two links. the first is the direct link to vote, and the second one is a link to the facebook page. Later they added the widget under "PARTNERS AND AFFILIATES" That will be prominent. The actual post has already slid down the page from all their other postings...but when I go to these types of sites, I keep scrolling down and reading the news until I hit a post that I have already seen....I am hoping that is what other's do! -
Refresh the Research! Vote Project PANDAS!
thereishope replied to P_Mom's topic in PANS / PANDAS (Lyme included)
This morning's post on the fan page... Good morning! We're still back at 26. We need everyone to continue voting AND spreading the word. If everyone posts our link in at least 5 places today, it may make a difference. Post it on your wall after you vote, place it on Craig's List in the volunteer section, the number of FB groups and pages are endless. Be cre...ative about where you post and come back here and tell us what you did. Maybe you'll inspire someone else. We need your help! Our kids need your help! Thank you for your support. We need each of you to make this happen. Refresh the Research! Vote Project P.A.N.D.A.S. http://www.refresheverything.com/PANDAS Couple reminders... -Ages 13+ can vote. Get your kids and school involved. -The sound of soda opening and pouring is signing in, not voting. Look for that confirmaton that you voted. You will see the words "thanks, cool, gracias". ... See More -Use our Survivor strategy. First VOTE FOR US, then branch out to our allies, not in the 50K catagory. Leave a comment saying that you are from "PANDAS Kids in Crisis". -
Refresh the Research! Vote Project PANDAS!
thereishope replied to P_Mom's topic in PANS / PANDAS (Lyme included)
Actually, Dawn, I wondered that too....about the pepsi logo being too commercial. Now when I add it to fan pages and groups, I click "no thumbnail" so the link is there but no Pepsi cans. -
Update - and speech - baby talk
thereishope replied to Megs_Mom's topic in PANS / PANDAS (Lyme included)
My son's SLP in early childhood said that there are various parts of the brain that controls speech and the basal ganglia is part of it. My son, earlier on, had/has a severe speech disorder. When he started therapy he made improvements very fast. Than he got sick. All improvement stopped dead in its tracks. Then he recovered and he's back to making strides.I wonder, if like residual OCD, speech problems can end up being residual. After awhile, the brain learns to say the sound wrong. Hopefully since she is in remission, she will perfect her "s" sound quickly. It really can take only a few months. Just do any sound homework with her that they give too and keep up with those Omega 3's. -
I know I need to calm down. Sorry! I just noticed Jett wasn't listed. As for SMILE, I meant I don't know if they are still reciprocating. Don't want to waste giving votes if they don't vote back. Finally, I think there are waves...those who are close to the top 10 and can see if they fight hard enough they can still make it. Then there is a gap of those who know they may not win this month, but are comfortable enough in their ranking that they know they will roll over for June. Then...you have thsoe who are more near the tail end of the top 100. They know they probably will not win this month. So, they are fighting for the 100 mark to guarantee a roll over.
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Refresh the Research! Vote Project PANDAS!
thereishope replied to P_Mom's topic in PANS / PANDAS (Lyme included)
When you vote, please make sure you vote for us first then branch out to other submissions (NOT 50K) and "trade" votes with them w/ your remaining 9 votes. We need to move up some more. Here's the thread about the 'Survivor Strategy". http://www.latitudes.org/forums/index.php?showtopic=8178 -
Did we get any Smile Autism Votes today? I don't think so. Also, I know they're higher in the rankings, but Fisher commented on their own page directing their supporters to vote for PANDAS. I think I'm a fan of JETT too. What do you guys think of the status of those 3? Do we need to revamp a little. We keep waivering bet 25 and 26 but not surpassing.
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Refresh the Research! Vote Project PANDAS!
thereishope replied to P_Mom's topic in PANS / PANDAS (Lyme included)
Oh, no, we just slipped to 26! Don't forget to vote! http://www.refresheverything.com/PANDAS -
Kelly, I can't find your post about the SKIP program. What's the deal with them? Are we suppose to be heavily voting for them daily or will there be a designated "vote exchange" day? I see they are sending votes our way today. Thanks.
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PANDAS are bigger than lemurs. Let's squash them! Okay. I really need to get off the computer now....
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Blogs that post the Pepsi refresh link
thereishope replied to Kayanne's topic in PANS / PANDAS (Lyme included)
OMG! You guys are AWESOME!!!!!!!!!!!!!!!!!!!!!!!!!!!! -
Refresh the Research! Vote Project PANDAS!
thereishope replied to P_Mom's topic in PANS / PANDAS (Lyme included)
Someone else gave the great idea of Craig's List under volunteers. I did it for Cincinnati, Indianapolis and Chicago. You have to word them slightly different each time or they will not post it. -
This is amazing! It's good to know that even though we have battles with family, doctors, etc, there are strangers willing to step up and speak up for our children. I don't have Sirus or XM. So, make sure to fill us in!
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at pedi office wish me luck
thereishope replied to saidie10's topic in PANS / PANDAS (Lyme included)
What was your goal today at that appt? Was it for antibiotics? I say call ped's offices, explain your situation and how you need a new doctor TODAY. It may take a few phone calls, but you may be surprised. They do not need vax records or anything for the initial appt, only if they are vaccinating. Even if you get a good response on the first call, call a few places. Deal with fighting with the other office later. Get what you need done first..a good doctor for your child. -
at pedi office wish me luck
thereishope replied to saidie10's topic in PANS / PANDAS (Lyme included)
Good luck at the office! keep that fire alive when your face to face with a doctor! -
I sent Philanthro a vote yesterday and I don't think it was reciprocated. Maybe my lone vote got lost in all the other comments. We can see if they have a contact off the pepsi page. That's what Synergy did. they contacted us on the FB page. I love your noon idea...But I did use all my votes today already. Can anyone else commit?