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Hi Vickie, This is not his first time but noone has given us a definitive diagnosis of PANDAS his tics were bad in March along with some other things had him cultured and he was positive he has been doing pretty good until about 2 weeks ago--he has a cough though both cultures neg for strept, he has wetted the bed for the last 2 nights and waking during the night. his pediatrician did give me 250mg penvk for 30 days we see Dr. Latimer on the 5th of August--I have an order to increase his topamax but decided not to to see if antibiotics work. Do you think I am doing the right thing in regards to topamax.??? Deanna

Hi, after starting antibiotics for PANDAS when would should one see reduction in tics or behvior?? Deanna

Hi Michele, Just thinking about you and wondering how your visit went today with Dr. Latimer. Look forward to hearing from you. Deanna

Hello, I have a question is there a window of opportunity that if you suspect PANDAS it should be treated I guess what i an trying to say is if you suspect PANDAS and are jsut getting treated a year later is the prognosis as good as if you had treated right at onset?? Deanna

Hi, we are on Topamax but ny sons tics have been really bad over the last couple weeks--I really do beleive he exhibits all symptoms of PANDAS he has a respirtory thing going on now but was negative for strept I am tring to get a hold of his pediatrician now to get some antibiotics on board until we see Dr. Latimer--He has a pretty clean diet with an occasional slip. I will keep you posted on our appointment. Deanna

Faith, thanks so much for your detailed visit with Dr. Sims you have put so much thought into your posts and such great info. Iknow you have answered alot of questions I was thinking and so many more. thanks for taking the time to educate us even more. hope you have a pleasant day!! God Bless you and your family. Deanna

Hello, trying to send you a message your inbox is full. Deanna

thanks my son is going on 10 and weighs 67 pounds--do you use brand or generic>> he could use more based on the dose calculations Deanna

Hello, just wanted to ask for those using Topamax what doseage are you using and the age and weight of your child. The 25mg we have our son on does not seem to be doing the trick i have noticed no side effects so feel ok increasing the dose any feedback would be appreciated. thanks so much , I feel really blessed to have a forum with so many people trying to help each other. god bless, Deanna

Thanks Vanessa I was not at this point going to persue this route but think it will be helpful for all those contemplating this--thanks for taking the time to post. The more knowledge we have then the better it will be for us trying to make inofrmed decisions. have a good day. Deanna

I personally think that if a parent has it there is a greater predispostion to acquire that. I have an anxiety component with some OCD myself which I see in our son. Nothing major but there for sure. Deanna

Hi, I was wondering the same thing--is the device like a retainer? The viedoes showing the fitting process it looks so bulky. I was wondering the same thing in does it resemble a retainer. Deanna

Hey Wendy, gald you have some peace hope it lasts---don't know what is going on with Anthony he is ticing like crazy I was just telling my husband i don't have a clue what it could be--I can't wait unitl my appointment with Dr. Latimer. He has come off his diet a little but he has come off before and never had tics like this-- i hate this not knowing. I have seen other people claim motrin works i was just wondering how. His rapid strept was neg--other culture not back yet. keep us posted. Deanna

Hey Wendy, read your post and got your message sorry things are not going well we are having a tough time as well. not sure what is triggering Anthony but feel your frustration --we see Dr. Latimer on the 5th--saw Dr. Singer at Hopkins last week gave me no more insight than I already have and is completely old school with his thinking. anyway hope things start to settle down. talk to you soon. Deanna

Hi, so glad your son did well--hope you continue to see improvement--thanks so much for the update. Deanna

Hi, we are scheduled for August 5th-please keep me posted on your appointment. good luck. Deanna

Good Luck Faith, keep us posted about your son's appointment--I really do hope this Dr. can help you and so many others who are seeking his help. take care, Deanna

Hi, Was just curious if the device was beneficial for all tics ??? My son 's tics involve his head did not know if this was something to look into. Deanna

Goodluck to everyone who has appointment with Dr. Sims please keep us posted on your outcome--look forward to hearing your experiences. Deanna

hello, it appears that Dr. Latimers husband who was a pediatric gastoenterologist died after he fell and hit his head on an electrical outlet at the marina where he kept his boat. How sad and so tragic. keep her and there children in your prayers. Deanna

Hello, just wanted to let everyone know that my son was due to see Dr. Latimer this Friday-however I received a phone call today postponing his appointment because of the sudden death of her husband. I don't know the circumstances surrounding his death but the receptionist was really shook up. I know a few of you have met with her and I thought you would want to know. Deanna

Hello, is he colicky?? Deanna

Hi Melanie, glad to hear the update about your son-hope things continue to improve. Deanna

Hey Wendy, just thinking about you hoping things are better. Deanna

HEllo, Just wanted to check in to see how things are going with your daughter. Hope things are settling down a bit. Deanna