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Everything posted by Dalit

  1. Welcome. We've been on the forum for three years now. Thanks to the shared knowledge here we've kept our daughter off medications, and her condition improved tremendously. She started ticcing at age 7, very abruptly, with the mouth stretches you're describing your son has. In the begining she was ticcing numerous times a minute, and it was very stressful on her body and mind. We tried accupuncture first, and she still sees an accupuncturist every couple of weeks. i feel that this treatment (which may be much less expensive) has done a lot of good for her (in reducing tics, but not eliminating
  2. Thank you LLM. you are so right. This forum was our only valid help in many ways, and led us away from conventional medicating solutions, and towards trying altenative ones, which resulted in many calm days for DD. The forum supports us and we should make sure it can be maintained. It's like taxes, isn't it? If we want the services, there's something we need to give in return.
  3. It's been a while since i wrote in. We've had a few good months after deleting gluten again from DD's diet, and incorporating magnesium and B6/B12. As some of you may remember, we've been exploring the structutal/TMJ/neck problems connection, and to our detriment, i thought that now that things are so calm, we'll try the Alexander Technique, that deals with good posture, putting less tension on the muscles, etc'. so DD had one lesson on Wednesday, and started waxing a couple of hours later, and it's been getting worse and worse, until today she even started with some mild hummnig, which s
  4. No it is a chiropractic procedure that deals more with touch and breathing than with regular adjustimg. i don't know much more than that.
  5. Good Luck! I hope this works. This is what our dentist is talking about as well - bringing the jaw forward.
  6. Chemar, my daughter also has tummy issues that seem to go along in trend with tics. She suffers from a very bloated tummy - no gas, no pain - just very distended, scary at its worst. Her "team" of health care providers say that the nerves that go through the neck/jaw affect the digestive system as well. To answer some of faith's questions: when I said "rest her head" i did mean when she lies down. I just wanted to emphasize the support for the head. My daughter is almost ten years old, and we started this treatment a year ago. It's absolutely much more complicated than the simple wide
  7. Reading Lynn's post about the dental injury that resulted in increased tics, I feel that I should reopen the TMJ and structural issue. Our daughter is being treated by Dr. Nordstrom, who invented the ALF design that's supposed to re-align and create balance in the bones of the skull, jaw, neck. (Dr. Sims' and Stack's devices are built on his design). The theory is (god only knows if it's correct) that imbalances in the way her neck vertebrae sit on top of each other cause constant shifts, as she attempts to balance her head on her neck. This constact micro movement is an irritation to the mu
  8. I hope your son is doing better, Lynn. Reading this brings to my mind the question of the theory of the structural imbalances in the jaw/neck that may cause tics. If so many children are affected by dental treatment, maybe it is a factor. Dalit
  9. Anyone ever heard/tried Low Dose Naltrexone therapy for tic or Tourette?
  10. [Fixit, Here is a link to ALF practitioners site. Myofunctional therapists (also called orofacial myologists) are marked in green. I'm sure others can be found that are not associated with the ALF. http://www.alforthodontics.com/Practitione...amp;%20Labs.htm
  11. Hi, my daughter has been with the ALF appliance for almost a month, and we cannot answer your question yet. The dentist who made the appliance for her said her TMJ is so compressed, he would have had to make her appliance so tall, that she wouldnt be able to eat. So he's going slowly, providing some vertical support, and hoping that as the upper arch widens with the treatment, pressure on the joint will ease. So far tics have been changing from day to day. Some days are exceptionally good, but others are as ususal. However, from all I've read in this forum, it seems to me that everyone who w
  12. Michael's post reminded me that we are also doing some functional work, to accompany the structural. Dd is doing myofunctional theyrapy, to rebuild degraded msucles in her jaw and cheeks, and to learn proper chewing and swallowing. Her upper jaw arch is so narrow, there was no room for her tongue. The excercises are supposed to correct posture as well.
  13. My daughter just turned nine. She is with the ALF all day. Bottom part is removable but she does eat with it. DD's tics started when she was 7, quite abruptly. For us it wasnt an option not to act. When her tics started they were so frequent (every 2-3 seconds) and so strong (a wide, abrupt mouth opening was the most frequent and obvious, but she had many others), that she was physically exhausted. We tried acupuncture, reducing stress, massages, and tics were reduced slightly. After we found this forum, and at the advice we found here, we did parasite and candida cleansing, and continued
  14. [Dr. Sims will adjust the retainer but we were trying to get it done locally so we would not have to fly. It has been awhile since I have been on so I do not know what a ALF is. Is that the upper wire that Dr. Stacks puts on?] Yes the ALF is the upper wire, which is supposed to balance jaw and skull bones. By the way, my husband brought home today a brochure from a dentist office, that advertises a lower teeth device for athletes, that looks a lot like the device Sims and Stack are using. It claims "unleash your athletic potential", and is based on the fact that a natural tendency to c
  15. Thanks for the update, ccc. I am surprised that Dr. Sims does not adjust the appliance. When i spoke with Dr. Stack, I was told that an adjustment will be needed every two or three monthss. The ALF is also being adjusted every few weeks. I've also been holding off on updating as i wanted to see how things change. My daughter got her ALF appliance about 10 days ago. In July, as we were getting ready to go to DC to see Dr Stack, we talked with him on the phone, and he told us that if we're in California we better see Dr. Nordstrom, the developer of the ALF. By Dr Nordstrom's recommendat
  16. So this was the TMJ/ALF seminar? What did they say about your son's TMJ? did they think it was pressuring on nerves? You were saying he is doing so well. Is he still with what the TMJ specialist glued to his teeth to alleviate pressure? Dalit
  17. watch this: and read this: http://www.tmjstack.com/casereport.pdf
  18. love_nfp, We haven't seen Dr. Nordstrom yet, but the ALF system is supposed to be able to do both things at the same time; correct allignment and bring the TMJ into correct placement. Maybe you should check this out. Dalit
  19. Yesterday we went to see the osteopath who'll be working with Dr Nordstrom later on. We've never been to an osteopath before, and it was an interesting experience. He spent almost an hour asking questions (pregnency, development, trauma, etc') and then more than an hour just checking our daughter, measuring bone heights, symmetry, touching various points, checking reflexes, looking at the ways she swallows, opens and closes her eyes, etc. He says there is obvious asymmetry and insufficiect development of her facial bones, expecially the chin. She also does not swallow properly (her tongue mov
  20. Liane, As I understand, Dr. Nordstrom travels all the time, working with different osteopaths and dentists around the country (mainly in the west coast, i think) in order to teach his method. I'm still not sure how he works with others, but in my case, I contacted him first by email, and after some back and forth correspondence, and a phone consult, his office instructed me to contact the osteopath in LA, and schedule with them. I am still not sure how adjustments will be handled, as he is in LA only once every 3 months. Maybe the osteopath handles them, but we are ready to travel to the
  21. Sorry for not writing earlier. We had some turbulent days. We ended up not going to Maryland. As I wrote in my last post, Dr. Stack referred us to Dr. Nordstrom, who is the ALF inventor (I added links to info about it in my last post). It was very hard to get in touch with him, as he is so busy, and his office told me he has a huge waiting list. We scheduled a phone consult with him, and he was not able to call us as his office appointements continued longer than expected. Since we wanted to take advantage of the vacation, we decided to go ahead and fly to DC, we had appoinments with
  22. love_nfp I love your idea about paying consultation fee and working with a local doctor. I have to say i dont think they'll mind. When I called Dr. Stack and he heard I was in California, he hurried to refer me to a doctor here. Turns out that dr. Nordstrom is extremely busy and isnt taking new patients, but I suggest you read about his method called ALF and the way it treats skull and jaw imbalances. I think a doctor treating with this method will be able to take on and do what Dr. Stack and Sims found out. I am adding links to two websites, one telling about the method, the other with a lis
  23. momof4boys, thank you for sharing this with us. I think that finding the right health care professional is the hardest part, and once you find someone who's knowledgable and also cares about what he's doing and about the patient, you're on your way to improve. This brings me to ask momof4boys, but also everybody else here: If you find the right doctor, and once you know and trust them, ask them if they know other doctors that they trust, maybe they met them in a conference, learned from or taught someone else their methods. Especially in other states or even countries. Then post the names he
  24. Thank you, Vanessa, for researching and posting. I do agree with the professor that as a research paper this article does not follow scientific methods. I also agree it is unethical to provide false hope for a cure-all when not enough evidence has been collected. I do not believe, though, that this is "snake oil". I trust the mothers I talked with who told me how much this helped their children, and i trust that Dr. Sims does believe he has discovered something significant. I guess for now this is a "maybe it will work", and this is what all of us here are doing all the time. The diets, NAE
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