

lfran
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Everything posted by lfran
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I can post more later but what is the actual tsh number? And do you have any other thyroid labs? And I've been learning about a mthfr and thyroid connection. Do you have mthfr issues too?
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So sorry.
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Can u pour the tincture into an empty capsule?
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Any experience with Dr Angelica Lemke?
lfran replied to Wombat140's topic in PANS / PANDAS (Lyme included)
Deleted post. Sorry. -
Won't dr t sign off for you?
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Vitamin D3 caused SEVERE insomnia.
lfran replied to trintiybella's topic in PANS / PANDAS (Lyme included)
Yes, DS is sort of low -- hovers around 22 for the past few years. I have tried multiple forms and multiple brands (D2. D3, dry, etc) and I've just given up for now. Try for sunshine, but that's not really his thing either. It's not at the top of the list. -
Vitamin D3 caused SEVERE insomnia.
lfran replied to trintiybella's topic in PANS / PANDAS (Lyme included)
Vitamin d always makes my son worse with tics and compulsions -
Ferritin=17. Is that considered low for our children?
lfran replied to trintiybella's topic in PANS / PANDAS (Lyme included)
A form of iron called iron bisglycinate is supposed to be very febtle -
Our doctor recommended enhansa. Any thoughts? Thanks!
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Please help..want to put DD is Psych ER
lfran replied to FallingApart's topic in PANS / PANDAS (Lyme included)
I am so sorry. What a terrible thing for any parent to go through. -
This is also known as Factor V Leiden (V as the roman numeral 5). You guys may find better google information using that term.
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What are you using for detox?
lfran replied to trintiybella's topic in PANS / PANDAS (Lyme included)
Can you post her thyroid numbers? C677T single mutation is pretty common in the general population, but a lot of kids here seem to be popping up with the double mutation. How much folate are you giving her, and what kind? Also, usually you need b12 or methylb12 along with the folate. But it's tricky. I would ask for medical help with this. -
I'm also trying to PM you. You may have to go in and delete some old messages. That's what I had to do.
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What are you using for detox?
lfran replied to trintiybella's topic in PANS / PANDAS (Lyme included)
Trinity -- I was just reading a book on thyroid issues and they described hyperthyroidism can cause racing thoughts. Have you had your DD checked for thyroid issues? -
Wow-- how can an MD not know about a CBC and CMP??!!!
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What were speech issues that are better now?
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Okay, some good news at last. Motrin helping but why?
lfran replied to trintiybella's topic in PANS / PANDAS (Lyme included)
Did you ever do the mthfr test on her? -
Anyone seeing Dr. Kenneth Bock in NY?
lfran replied to Pandasphilly's topic in PANS / PANDAS (Lyme included)
Nancy -- I am having trouble finding good treatment for c677T. Can you share what he is doing, and what is he on the lookout for? Thanks! -
Anyone worked with Dr. Jacob at Rothman?
lfran replied to mama2alex's topic in PANS / PANDAS (Lyme included)
We worked with a different therapist there who was wonderful. I will pm you in a few hours. It's not working from my iPhone -
That is not part of dr t's initial panel of tests