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lfran

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Everything posted by lfran

  1. Have you tried straight milk? It may be that the processing into cheese and ice cream reduces the effect they are looking for? Or, to try to increase tics, try television and video games, which most people here have said spikes tics. Also fish oil capsules -- that seemed to spike tics for a lot of us! (Are you comfortable spiking the tics, though? I'm wondering how long it will take them to come back down after you deliberatly try to spike them.)
  2. I posted earlier that my son had been doing really really well with Bontech supps and flaxseed capsules. Last Wednesday, he had a lot of peanut butter, which I just found out he is mildly allergic to. (He has eaten it for years, but we pretty much stopped it in March as we went healthier overall and just recently learned he was allergic to it.) On Wednesday, after a lot of peanut butter, his tics increased a lot. Not nearly as much as when he was most affected, but they went from about 5 a day to a handful an hour, with some spikes. (In March, he was at about 5 a minute, so we're st
  3. Thanks! Sorry, no knowledge about the UK. Did you email/call the two Bontech supplliers to see if they will ship to the UK in an affordable fashion? -- Liane
  4. Hi all. In our last shipment of Bontech supplements, I noticed that the capsules were not a uniform color. Most are kind of whitish, but some are much yellower. This was not the case for the last couple of shipments I've received (we've only been ordering them since March or so), where they were all whitish. Has anyone else experienced this? Any comments or concerns? Thanks! -- Liane
  5. My son has a very very rare opthalmologic condition, in addiiton to tics. When I was first pursing leads to opthalmologists, I called ahead of time and explained what he had, what I was looking for, and asked if the doctor we were trying to see had enough expertise in that area to make it worth both my time and the doctor's time. Sometimes I got to talk to the doc, sometimes, it went through the nurse and they called me back. One time, the nurse straight-out told me to call someone else, that that doc wasn't a good match for us (or for anyone, was the implication). So, I would consider
  6. Hi everyone. I was just given the results of my son's amino acid urine test. "Essentially normal, but with elevated levels of taurine and hydroxyproline". I am assumining the taurine excretion is because of the mag taurage, but I am confused by the hydroxyproline. Can anyone shed some light on either of these? We are still in the middle of testing. Also, does anyone know what the proper ration of copper and zinc are? I know that Great Plains runs a copper/zinc profile, but my pediatrician ordered them separately. So they are both in the normal range, but I wonder if the rati
  7. Chemar -- Thanks for the info re: the Habit Reversal Therapy. I had read about it a couple of places and talked briefly to the researchers on the phone to see if they were accepting new participants. As of a few months ago, they were still accepting kids for the study, so I don't think they have published their findings yet. However, I had heard that that they were funded by a grant from the TSA, so I assumed that it was an appropriate modality for both transient/chronic tics and for tourettes. Do you have any literature, etc. that you could point me towards so I can learn m
  8. One more thought. My son did much better when we took him off the fish oils, and I remember that some other kids were similar. Maybe that's a contributing factor? -- Liane
  9. I am so sorry that this is happening right now. Two thoughts. 1) I have read that the researchers/practitioners who are doing Habit Reversal Therapy are having a lot of success in eliminating tics by teaching the kids to recognize the premonitory urge and then substituting an opposing muscle action. From what I have read, they can eliminate tics without substituting new ones. There are a couple of research groups who are investigating it. One is in the Los Angeles area and were pretty recently accepting new patients who were 9 years and older (as that's the age when they think tha
  10. Greetings. I am a new member, and I have a question about supplements. I posted about a week ago, but thought I would ask again as I didn't see any answers to my concern. I have an almost 7 year old son who ticced a lot during the winter and now, after several changes to our lifestyle (Bontech supplements, no TV/videos/computers, limited dairy) is doing enormously better. My question, though. He is 60 pounds, and it was recommended that he take 13 of the BonTech supplements a day. This puts his Magnesium Taurate dosage at about 400 mg/day, and I know that many of you use 500 mg a day
  11. Depending on which state you are in, you may be able to "opt out" of having the TB test. California lets you opt out of any/all vaccinations, as well as a TB test, simply by signing an affidavit. I am told that all schools -- public and private -- have to accept this affidavit. Our school made it very easy. They don't advertise it, naturally, but when I asked for it they pulled it out of the folder and handed it to me and that was that. No doctor's note needed, etc. Other states have exemptions for religious beliefs, as well. -- Liane
  12. Thanks. You know, I've wondered that myself, but I'm afraid to stop the supplements because he is down to about 1% of the tics he had over the wintertime. He still has some occasional eyebrow raising and blinking, but not very much and over the winter he had much larger motor movements that were also extremely frequent -- every couple of seconds. I do know that the other day, when we forgot to give him any due to a hurried schedule, I saw one or two of the larger tics show back up by the end of the day that had otherwise completely disappeared. But, we also took away almost all dairy
  13. Greetings. I have been reading for a month or so, and this is my first post. First, I want to say Thank You to everyone for their time, effort, and dedication to this site. It has been a wonderful source of information and encouragement to me so far. I have an almost 7 year old son who started ticcing almost exactly 3 years ago, for about a month. A second episode followed in 2007, also for about a month, and a third started this January and was by far the most obvious and long-lasting. He started Bonnie's supplements in March and he is doing enormously better. (He was als
  14. Hi! I'm a newbie and I haven't figured out how to reply correclty yet. But I did want to say Thank You to everyone for the wonderful information you've been posting. I do have some questions, and when I figure this out, I will ask them. -- Liane
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