trintiybella
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Everything posted by trintiybella
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At this point...unfortunately she still isn't able to learn. She said when someone talks..she doesn't understand a thing they say. It has been this way since pre-school. I guess with so many bombarding thoughts and severe OCD, anyone would struggle to learn. Anyway...I may have to concentrate on some kind of life skills class, so she can learn how to take care of the little things in life for now. I will google it. Thanks for the help!
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Really need advice. Started A Bart!
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
Thank You Mayzoo.... It is a roller coaster. I am still going to work on insurance to try getting IVIG covered. I hope its the right next step. I know lots of people have had bad results and of course some had good results. Guess I have to try everyithing though, or I will never know. -
Really need advice. Started A Bart!
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
My daughter was over at NYU with Dr. Najaar who said she doesn't have any inflammation. Our current Dr. disagrees, even if it doesn't show up on tests. there has to be inflammation, with all the psych problems she has he said. -
Really need advice. Started A Bart!
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
She seemed to get less aggressive when I added more ampho for yeast, but how much medication can you give for yeast. Seems like I have so much already. If I keep going up on ABart, I have to go up on anitfungal to make her less mean all the time. Probiotics don't help here. Usually something to kill yeast helps. Probiotics seem to make more yeast. Thanks -
Can u please tell me if this stuff kicked up a lot of yeast for your child? Things are really horrible over here. I am ONLY at 3 drops. Also...can you tell me if it's ok to give A Bart at same time as these other morning supps and meds? Thanks! 10am 3 drops A Bart 1 mino 50mg 1 valtrex 500mg 1 C/Lysine 1000mg 1 D3 (5000) 1 ADP, Oil of Oregano 1 ampho 2pm 1 charcoal 4pm 1 valtrex 500mg 1 c/lysine1000mg 1 ADP 1/2 tsp glutaloemine 1 ampho 8pm 1 mino 50mg 1 valtrex 500mg 1 ADP 1 ampho 10pm 1 ADP 1/2 zinc 10mg 3 mg melatonin Biotin 8mg 1/2 cobioitc 1/2 symbiom 100mg magnesium
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I suffered a lot with this growing up. It's really tough on relationships. Never knew it was a form of OCD. Hummm....I guess this could also be related to lyme disease, right?
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I have had wonderful things happen with valtrex. It helped with severe confusion and sleep. It does not work as well, if I don't have something on board for lyme and bartonella though. Good luck!
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Just wondering if anyone has ever heard of misophonia???
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Yes, it is Argentyn 23. Sorry, but what are macrons? Thank You
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This is so weird! Undigested food in Stool
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
I lowered her dose of zinc and her head ache, digestion troubles and itchy rectum subsided immediately. Weird! -
Anyone's child get wild with Zinc?
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
How much do you give rowing mom? -
Itchy Rectum after upping Zinc Picolinate
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
pr40, do you mean that you started getting really itchy down there too? I am so glad I posted. Thanks. sfmom, interested information. Thanks! -
Things are kind of falling apart over here again, and not sure why.
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All of a sudden my daughter is pooping out whole pieces of undigested food. She also has a really itchy rectum. The only thing I changed is that I added Zinc, which I think kicked up yeast here, but would this have anything to do with her eliminating like that! I can actually see what she eats for the whole day. She has always been super constipated, so this is really weird! She is eating more the last 4 days after being severely anorexic for a long time. Could more food in her body be too much after going so long without? This is what she takes: 10am 1 mino 50mg 1 valtrex 500mg 1 C/Lysine 1000mg 1 D3 (5000) 1 ADP, Oil of Oregano 4pm 1 valtrex 500mg 1 c/lysine1000mg 1 ADP 1/2 tsp glutaloemine 8pm 1 mino 50mg 1 valtrex 500mg 1 ADP 10pm 1 ADP 1 zinc 20mg 3 mg melatonin Biotin 8mg 1/2 cobioitc 1/4 symbiom
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I am assuming there will be die off with this Argentyn. Can you tell me how bad it was, if you used it? Also, what time of day did you give it and was it with food. Thanks so much!
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Need more for yeast. Any suggestions?
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
I see improvement since treating the viruses. I had bactrim on board but she was so agitated with it. Scratching her face off with her nails because she felt ugly. She is off it now and we are going to start A-Bart. Thanks for asking Rowingmom! Do you give all of those things for yeast? In one day? -
I want to add more in for yeast, since I don't think this is not enough. She was taking amphotecerin but it is pretty tough on her. Can anyone give some advice. Not sure if I can go any higher on the ADP??? I will call and ask her doctor but he does not use this stuff-not sure that he would know. 10am 1 mino 50mg 1 valtrex 500mg 1 C/Lysine 1000mg 1 D3 (5000) 1 ADP, Oil of Oregano 4pm 1 valtrex 500mg 1 c/lysine1000mg 1 ADP 1/2 tsp glutaloemine 8pm 1 mino 50mg 1 valtrex 500mg 1 ADP 10pm 1 ADP 1 zinc 20mg 3 mg melatonin Biotin 8mg 1/2 cobioitc 1/4 symbiom
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I think I may have asked this question before but can't seem to find it when I do a search. Sorry.\ Can you tell me if your child has had a bad reaction to Mag. Citrate?
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Need advice. Very worried.
trintiybella replied to Jgoodall08's topic in PANS / PANDAS (Lyme included)
So sorry for you! Some doctors will treat based on symptoms. Where are you located? Perhaps someone could recommend a doctor that would treat quickly, just incase. Feel free to PM me. -
My dog is anemic and the vet mentioned it could be a tic born illness. Wondering if anyone has a pet dealing with the same thing?
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Not sure if this question is ok to ask on the forum. My apologies if it isn't. I have been through so many pill organizers and was wondering if you had a favorite. I need the 7 day one, with removable daily ones. The daily ones should have at least 4 sections in it. I also need one that does not keep opening and spilling pills all over bottom of my purse. Thanks!
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Hi Everyone. Can you believe my daughter asked to do some kind of school work!!! I am not sure she is able to, but at least it's a good sign. Online schooling is all she will try. Do you know of a program online that has a live person instructor (not face to face,-just voice) that will work with the child? Any suggestions are welcome. Thanks!
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Stopped Bactrim & Anorexia went away.
trintiybella replied to trintiybella's topic in PANS / PANDAS (Lyme included)
My daughter always had distorted body image and saw herself as fat - but never stopped eating! When we started the bactrim, the obsession with her body and thinking she is ugly got worse and worse as we upped bactrim. I kept on it thinking it was die-off at first, Then we started adding in valtrex for viruses and things looked a bit better so I thought she needed a combo of abx and antiviral. Still she would not eat. Got so bad that she was started to look sickly skinny and was feeling dizzy. I weaned her from bactrim and the anorexia is almost gone and the distorted thinking (about being fat and ugly) is much better too. I think the valtrex was the ticket for us. We were getting nowhere with most everything we tried for this girl. Hope this helps. Bactrim was bad news here. Tried it several times. -
My DD was anorexic for months. Dropped weight very quickly and would only eat spinach and peaches. It started when i introduced bactrim. We are almost done weaning her off and little by little she is less anorexic and looking much better.