Chemar

here is the relevant NeuroScience page https://www.neurorel...id=19&Itemid=74

Hi laster yes, eating issues can be associated with OCD as well as with sensory disorders etc if it is OCD related then yes, Cognitive Behavioral Therapy can greatly help, tho with a very young child it is a bit harder if sensory (eg sensory integrative disorder) then an occupational therapist may be helpful sounds like your current doctor is not very clued up on eating issues in neuropsychiatric disorders can you go to another doctor for the referral?

Glad you are going to bed feeling positive Kevin we use 2 cups of epsom per tub of hot water for a 20 min full body soak, or 1 cup in a deep footbath (my son has a Homedics Foot Spa that does a foot massage while soaking)

mrsD has always mentioned it to be the best absorbed never tried it as I recall it hard to find in any pure product

debate is good! P.Mom and having different opinions is good too, as everyone learns from it. As long as it is done with open mindedness and respect, not trying to tell others that their opinion is invalid because one disagrees with it. That sometimes happens here, and makes some members intimidated to post their views, and brings in reports to us. so yup, every now and then we may step in to a discussion to steer it back on topic, and for that very reason....to OPEN the debate so that all voices can be heard!

Hi lele sorry you are having to go through this extra health challenge with your son. I agree that the steroid nasal spray may be what is increasing the tics if it has more than localized absorption (steroids increase dopamine which in turn increases tics in TS) hopefully one of the other parents who also has a child with asthma can offer advice I have heard very very good things about quercitin helping with allergies so you may want to look into that

Kevin, have you tried doing epsom salts baths when he gets back from gymnastics? is there a lot of woodwork in the gymn? any new woodwork there? paint? pesticides? new carpeting?

yup, I sure do understand about the struggle to find the right words sometimes P. Mom! happens to me all the time just so I am not misundersood here either ...I am not for one moment suggesting that PANDAS and Lyme disease are the same, nor that they should be treated the same way! My comments were that I did not understand why there should be a divide between members here in terms of arguing as to whether the two illnesses might occur simultaneously in some kids, as it seems pretty clear that they can, or to argue over which may have come first, as that is often impossible to determine. P.Mom, I am glad you clarified that as you had earlier said I am not sure why there has to be an "either, or..." approach, when any person at any time can be infected with more than one microbe, with each having it's own resultant symptoms, as well as likely compounding those of each other. Maybe I am misunderstanding the sentiments here, but I am not sure why there has to be this divide? when the final objective is to identify what is making a child ill, and then treat as comprehensively as possible to try to heal them. Cheri, Sorry about the confusing statements. As you know, it is hard to express exactly what we are feeling/thinking down in writing. When I said that I do not believe that Lyme and PANDAS co-exist, I was referring to the notion that many of us have gotten that Lyme is at the root of PANDAS, and that "most PANDAS kids have Lyme." This, I believe, is just not the case. BUT, can a child with PANDAS contract Lyme and therefore have two distint conditions feeding off one another, yes. I hope I am making sense. As for the need to make a distinction/divide....I personally believe it is crucial! PANDAS kids can be helped tremendously, even put into complete remission, with the use of steroids. Steroids are extremely dangerous for use in children who have Lyme disease. I know you know the dangers of the wrong meds!!!....this is why the difference is very important. Also, children with Lyme won't benefit as much as a PANDAS child from costly IVIG.(if not covered) It would be a shame for someone to spend 10K on a treatment that really won't work or last, or take the risks that the procedures involve unnecessarily.....same goes for PEX. So, the divide comes down to treatment. If antibiotics work....you are in "the clear" be it PANDAS or Lyme, (in a nutshell)...but, if you need further, more aggressive treatments...the wrong meds can be devastating. My LLMD said that steroids can make Lyme "impossible to eradicate." I had to make a pledge to him on my first visit that unless my life or eyesight was in immediate danger....I would not allow anyone to prescribe me steroids. See, it is important, outside of the antibiotics, the treatments differ. Kinda like it is important to know the difference between TS and PANDAS......very different treatments.

P.Mom, I am glad you clarified that as you had earlier said I am not sure why there has to be an "either, or..." approach, when any person at any time can be infected with more than one microbe, with each having it's own resultant symptoms, as well as likely compounding those of each other. Maybe I am misunderstanding the sentiments here, but I am not sure why there has to be this divide? when the final objective is to identify what is making a child ill, and then treat as comprehensively as possible to try to heal them.

from my understanding, by definition, Lyme Disease falls into the PITANDs category, while PANDAS is only used for strep induced symptoms ie a child with PANDAS is also PITANDs, but not all PITANDs is PANDAS

Kevin status changes with the number of posts good for you that you are keeping a record. not only will it help you, but who knows who else may find answers from what you are doing!

I see the FDA has issued a recall for Lipitor!!!! http://www.fda.gov/Safety/Recalls/ucm228998.htm

Hi Nola sorry but the doctor is wrong about candida "yeast" not impacting tics if this doc also does not believe in PANDAS then I would strongly suggest you work with a doctor who is clued up about these things as otherwise you may just keep going round in circles. your child may not have candida or PANDAS, but they are things that do need to be correctly tested for (a tongue swab is not a complete candida test!) I noticed you mentioned homeopathy? which remedies is your child on? If you have noticed worsening of tics since starting those remedies, they may not be the right thing for your child. do you have a family history of tics, or TS? was there any correlation between your child's tics and vaccinations?

An elimination diet (at least the way we were taught) is eliminating a specific food group for a period, and then reintroducing it to see results, not eliminating most food altogether! It is not too late to start over as right now you are in a waxing mode so setting a new baseline is not a bad idea I hope the epsom baths relaxed you enough to give a peaceful night

Hi Rick yes, it is very possible that the sudden withdrawal of lots of what your usual diet was could be contributing. That is a very sparse diet you are on! how long have you been on the Bontech now? re the elimination, I know others do it differently but what I meant was 3-4 weeks of eliminating a specific food GROUP, then introduce it and you should know within a few days if it is ok or not, then eliminate a new food group for 3-4 wks and introduce etc I dont know what is in the "buttery spread" so not sure if anything there could be a trigger, but the rest of your diet sounds good, albeit possibly lacking in some of the needed nutrients presumably you have been ok with rice in the past?

yes, I know my son would have struggled if he had to follow Feingold ! I am not fully informed on the subject but I know that people fall into under or over methylated (also relates to histamine) and that determines whether they have these salicylate food sensitivities (I hope I got that right !) We did a lot of trial and error stuff with food and basically have learned that way what to include and what not. It is always a learning curve. Best experiment with one food (or food group) at a time, eliminate (we were advised 3-4 weeks) and then re-introduce one at a time and chart reactions in terms of both neurology and digestions, plus general mood, well-being) removing offending foods immediately if a spike is noted when re-introducing them, and then try to stay off them completely interestingly, even a little of an offender can cause a hyper-reaction to it when one has been off it for a while. this applies to the artificial ingredients too btw, I noticed you had "sweeteners" on the list of no-nos for my son...that is only refined cane sugars and all artificial sweeteners(nutrasweet,aspartame), including "corn sugar" aka high fructose corn syrup HFCS and sucralose/Splenda but he derives much benefit from pure organic raw honey & maple syrup, which are not only his sweeteners, but also a vital part of his nutritional and anti-microbial program. He no longer uses cane sugar at all, by choice, although he used to be fine using the turbinado.

Feingold is a good site. We have had members here see tics resolve by following that diet. my son does not have salicylate sensitivity, but I know many have posted here of it I am thinking the vinegar on the list may have been that my son uses either rice vinegar or cider vinegar, not grape vinegar! but yes, brown rice filled the gap for him when he stopped eating potatoes. he definitely has night shade sensitivity as a tic trigger....which, come to think of it, TOMATOES are night shades too! (he doesnt eat them as they are not crohn's friendly) maybe you are night shade family sensitive?

ps in the later updates on my thread you will find other foods my son found best. I noticed a "rice OR cider vinegar" in a list you attribute to me above? my son can eat brown rice but not *OR* cider vinegar?? he used cider vinegar before as a yeast buster, and also for salad dressings etc. And ate rice daily

Rick, do remember that since 2006 my son has also had a Crohn's diagnosis, and so a lot of his diet and supps are tweaked to accommodate that extra health challenge. As far as tics & OCD go, he finds it best to avoid anything specifically dopaminergic, and avoids all the artificial everythings totally as they are his primary tic triggers the food elimination has been far more related to the Crohn's for him. He does not have any natural food allergies as such, but has found much digestive benfit from going gluten and dairy free, plus eliminating all corn, and soy, and currently only eating wild caught fish, no other meat. Interestingly he does well on bananas, tho I know some people tic more on them. The key is their ripeness...over ripe fruit stimulates dopamine more we have heard, whereas the just ripe banana boosts serotonin, which is helpful in controlling OCD. He also likes cantaloupe and fresh limes for their high inositol levels(therefore also upping serotonin) he did not have a problem with soy per se, and always used organic when possible. it was his personal choice to eliminate it, more re Crohn's than TS. However a number of others here have reported soy to be an allergen for them or their kids with TS

hmmm not sure where you would have found me saying "organic animal protein"? as it is not a term I think I have used?, but yes, to me it indicates organic chicken, beef , lamb. only wild caught fish NEVER farmed fish my son used to eat soy products but now avoids them totally as the genetically modified soy, as with corn, is a problem the Feingold website lists foods that are high in salicylates as those are avoided on that diet so you may find info there

great news Abbe

Rick my son eats blueberries daily with his oatmeal and no, has found them to only be helpful, never a trigger I am not sure of the salicylate content of tomatoes but do know some people with tics find salicylate high foods to be triggers

Rick my son finds nightly epsom salts tubs, or when no time for a tub, a footbath, very important! he is already 21yo and been doing this for years. also, have you looked at the article on tic triggers on the main page here? The lists of triggers are near the bottom http://www.latitudes...ng_triggers.htm Sheila's book may be helpful to you as well http://www.latitudes.org/book.html stress is #1 on my son's list of triggers. He has found the aromatherapy of jasmine oil one of the fastest "instant" soothing things. We read about research on this, and got him a bottle of jasmine oil (we got the one by NOW) and he either just smells it from the bottle or puts a drop on each wrist and smells on that as needed. another helpful thing (if you aren't allergic to any of the flowers in it) is a few drops of Bach's Rescue Remedy under the tongue for calming when feeling stressed think outside the box re what could have triggered you this weekend did you mow the lawn? have contact with pesticides/fertilizers? go anywhere with lots of fluorescent lights or flashing stuff...eg movies any paint work or woodwork done?

another update: one week into using Red Bush aka "rooibos" tea and very positive results in both GIT and neurology

A book for kids with Celiac, written by our longtime member Caryn Talty http://www.cilie-yack-is-under-attack.com reviewed here: http://glutenfreeoptimist.blogspot.com/2010/09/book-review-cilie-yack-is-under-attack.html also, here is Caryn's excellent website to help anyone doing a Gluten Free Diet http://healthy-family.org/