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KevinInMA

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  1. Hi Nate. I'll send you a PM with her contact info. Probably wouldn't be best to put it on here. publicly.
  2. It started off mild like most do and then progressed but then it waxed and waned for a couple years. We did just the opposite of what you should do. We made a big issue of it and frequently told him to stop. We really had NO idea what we were doing in the beginning. We're taking the opposite approach with my daughter and so far so good. Just keeping it chill. Like yeah, sorry honey. No ketchup for a few days. Here's something else. We don't really talk about it much so as to limit her concern about it. Keeping it light is very important, in my opinion. You don't want to stress out your ki
  3. I don't know if I ever wrote about this, but we started off following the same route as everyone else. Start off with the PCP who tries a few things then sends you over to a neurologist who tries a few things. That took several months. It was during the neurology step where things went really bad. We had the world's worst pediatric neurologist. She started him on Clonidine which turned him into a zombie for half the day. The other half of the day he was manic. She switched him from the pill to the patch so he was more even keeled and gave us no instructions on how to make the transition.
  4. It's very scary the first time around. I feel your struggle. After 5 years tic-free, it was also kind of scary to recognize that my daughter had started experiencing tics. But then we realized that we know what to do. So far it's been manageable. Hopefully it stays that way. Doctors may tell you that these things are only treatable with medications. For us, that was just not true. The neuro even rolled his eyes when I told him I was seeing a nutritionist rather than treating it medically. They have their schools of thought and not all of them are based in reality. You're taking the right
  5. Hi everybody, I received an email today asking for an update. I haven't really revisited this site since... well, apparently 2014. Seems like an update is overdue so here goes! My son is now 16 and, although we've seen one head-nod tic come and go, he's mostly got it under control. I don't really have any control over what he eats at this age anymore so I try not to worry about it. He tells me not to worry about it so I don't. He's old enough to take responsibility for himself now. On the other hand, my daughter (10) developed the same symptom as he did at that age, but so far
  6. Hi! Currently he's eating normally. He doesn't eat a LOT (but really should eat a WHOLE lot more given his level of activity) but what he does eat is a mixture of healthy food, normal food, and complete junk food. Over the past couple months we've really become laced on his supplements. We really should get back into it but I'm so sick of reminding him twice a day to take his pills. 12 years old and still needs to be reminded twice a day to take pills. Come on.... It's hard to tell which ones made a difference with his tics. I'm pretty sure Natural Calm was a big help. Other than that I'm
  7. I really wish I could remember how much NC we used. I THINK it was a heaping tsp twice a day but the real way to know is to slowly up the dose until your daughter experiences the stomach/stool issues, then back off. Everyone reacts a little differently to is so there's really no one dose for all. I hope you find it helpful! We haven't used it in a year or so.
  8. Wow... It's been over two years since I last posted! How did I ever let that happen??? Well, for anyone that remembers me, I put my son through quite the dietary ordeal to try to manage his tics. If this blog is any indication, it was pretty darn successful. Since my last post, we continued working the diet and his tics continued to be absolutely minimal. We realized, though, that at some point we'd have to test the waters. In April 2012 we took a vacation to Disney and decided that this was going to be the point where we start to let him live again. We turned everything back on. H
  9. Actually no, Cheri. In fact I hadn't considered strep as ever being the cause of this. What do I need to do to find out if this is related? It would make sense that he eventually healed the strep last year and thats why he was fine for so long until he got sick again......
  10. Really thought we had something with getting rid of the Cliff bars. Everything went away within about 3 or 4 days. Not it's coming back. So much so that when he was with my mom at the Lego store over the weekend the guy woking there picked right up on it because he was a tourettes kid too. According to my mom, my son and the guy there had a very lengthy conversation about it. I'm worried.... I feel like we need to go ALL the way back to square one. I friggen' hate this. So much...
  11. That's very comforting,Chris. Hopefully we've found the culprit and it'll go away quickly. Thanks for letting me know.
  12. Damnit...... I'm convinced what I'm seeing are the beginning of tics. We did some playing around with his diet but the whole time we insisted on keeping salicylate exposure to an absolute minimum. We incorporated those Kids Cliff bars along with a few other little things here and there. He also had halloween candy, although not much. I'm REALLY hoping ditching the Cliff bars will fix this cuz the eyes are starting to roll again and he's getting the breathing twitch again. It's pretty infrequent and really aren't at tic frequency yet but you know me, I hyper analyze every mo
  13. Welp.... All good things must come to an end.... and thankfully, so far, this one hasn't. Ha! Got ya there! (this better not jinx me!) Actually, there is one thing but it's no big deal at all. For the first time since starting this diet (nearly a year! WOW!) Brandon has taken ill. He got a sinus infection. Personally, I blame my wife for letting her illness go unchecked for nearly a month but whatever. Of course, along with a sinus infection you get crazy sniffles, hacking cough, and itchy eyes. All of these things are that "symptom becoming a tic" thing that I've been so worried a
  14. A lot of what she does is outlined in the early pages of this blog but ultimately she uses applied kinesiology (to most people, this is considered voodoo magic) to determine what he needed to eliminate. If I didn't think of this as a last resort I would have walked out but I sorta know what i was getting into when I walked in. His supplement list is also in here in one of the early pages. The only thing that has changed is the amount of each that he takes. She adjusts it now and then. This whole deal was a huge undertaking and is only slightly less of a huge undertaking even 11 months late
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