PANS / PANDAS (Lyme included)

17,630 topics in this forum

1. Helpful Threads & Links for PANDAS 1 2

   By Chemar, October 7, 2008
   • 19 replies
   • 107.6k views
   • 
   • Chemar
   • March 27

2. Abbreviations and Acronyms

   By Sheila, April 18, 2010
   • 11 replies
   • 34.5k views
   • 
   • mmiglio
   • May 28, 2015

3. Helpful Threads for Lyme & related Diseases

   By Chemar, November 5, 2010
   • 8 replies
   • 39.3k views
   • 
   • nyfirefly11
   • January 27, 2014

4. Pediatric Acute Neuropsychiatric Symptom Scale, Parent Version

   By Sheila, November 7, 2012
   • 8 replies
   • 32.4k views
   • 
   • tenyearswithpans
   • October 12, 2013

5. Welcome!

   By Sheila, August 27, 2010
   • 0 replies
   • 22.3k views
   • 
   • Sheila
   • August 27, 2010

6. Request for success stories please! 1 2

   By Lydiasmum, April 5, 2014
   • 19 replies
   • 7.1k views
   • 
   • julesmom
   • November 15

7. My son w PANDAS is much better – what we did

   By MC2, September 2, 2017   

   • steriod
   • pulsing
   • (and 4 more)

     Tagged with:

     • steriod
     • pulsing
     • plaqenil
     • ritux
     • cellcept
     • puberty
   • 2 replies
   • 2.8k views
   • 
   • julesmom
   • November 15

8. Dealing with PANDAS neuropsychiatric symptoms

   By aneeg8, November 11
   • 0 replies
   • 0 views
   • 
   • aneeg8
   • November 11

9. Has anyone found complete success with IVIG? How many treatments to ac 1 2 3

   By bmam, January 30, 2010
   • 43 replies
   • 13.5k views
   • 
   • julesmom
   • November 3

10. Am I doomed? Untreated PANDAS/PANS for 17+ years

    By Jimmy89, September 9
    • 6 replies
    • 0 views
    • 
    • Atex
    • October 2

11. Lyme-N

    By bws1565, August 17, 2016   

    • treatment via nebulizer
    • 7 replies
    • 6.8k views
    • 
    • Fhz1987
    • September 24

12. Anyone tried IV Ozone?

    By searching_for_help, March 23, 2019
    • 7 replies
    • 2.5k views
    • 
    • Thekarlita
    • September 22

13. Bad breath- smells like fish

    By Swetha, July 3
    • 4 replies
    • 0 views
    • 
    • Swetha
    • September 8

14. Mild to Moderate PANS?

    By Sandy50, April 30
    • 11 replies
    • 0 views
    • 
    • MaryAW
    • August 10

15. Need help in understanding these symptoms

    By Swetha, July 11
    • 2 replies
    • 0 views
    • 
    • MaryAW
    • July 15

16. Possible PANDAS, 3 pos strep in 8 months. How to proceed with uncertainty?

    By belou, July 9
    • 1 reply
    • 0 views
    • 
    • MaryAW
    • July 11

17. Antibiotics didn't clear the strep

    By KSandy, June 23
    • 2 replies
    • 0 views
    • 
    • MaryAW
    • July 6

18. Flare Ups

    By KSandy, June 16   

    • flares
    • flare
    • (and 2 more)

      Tagged with:

      • flares
      • flare
      • tics
      • ts
    • 1 reply
    • 0 views
    • 
    • MaryAW
    • July 6

19. Newly diagnosed w/PANDAS, teen with a history of tics, OCD, ASD, anxiety. Are we on the right path?

    By KSandy, March 26
    • 4 replies
    • 0 views
    • 
    • MaryAW
    • July 6

20. PANS Specialist Please

    By ltea, March 25
    • 3 replies
    • 0 views
    • 
    • MaryAW
    • July 6

21. I think my child has pans/pandas

    By olinhll, March 29
    • 2 replies
    • 0 views
    • 
    • MaryAW
    • July 6

22. Pans and now Human Granulocytic Ehrlichiosis

    By Junesmith, March 16
    • 2 replies
    • 0 views
    • 
    • MaryAW
    • July 6

23. Any quality Psychiatrist for older PANS male in Nj

    By HopeinHIM, September 5, 2023
    • 2 replies
    • 385 views
    • 
    • bws1565
    • June 26

24. Nose Bleeds

    By KSandy, June 16   

    • nose bleed
    • tics
    • (and 2 more)

      Tagged with:

      • nose bleed
      • tics
      • sleep
      • bacteria
    • 2 replies
    • 0 views
    • 
    • KSandy
    • June 24

25. Immunotherapy for kids with recurrent ENT infections

    By Swetha, June 24
    • 0 replies
    • 0 views
    • 
    • Swetha
    • June 24