Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  1. Essential Oils to cure PANS/PANDAS

    As an FYI, turmeric contains methyl groups, so if there's an sensitivity to over-methylation, it might cause issues.
  2. SSRI

    I've tried Paxil, Zoloft, and Lexapro, with the latter seeming to have the fewest side effects. Dr. L says if there's a PANDAS diagnosis, you want to stay away from any drugs that increase dopamine - best to check out the Wikipedia articles for each drug, as some of the SSRIs do have some dopaminergic effects.
  3. Do you think the Olive Leaf extract helped?
  4. You don't need a doctor to order the kit - just call Igenex and ask them to send you the kit. Once you have the kit, there's a form inside that the doctor has to sign, and the results will be sent to the doctor.
  5. Besides antibiotics, has anyone had any luck with other (perhaps less expensive and invasive) methods of clearing auto-antibodies? I'd be interested in hearing about any techniques, supplements, medications, etc. that you've tried. Thanks!
  6. I've started to use the Ammonia support formula to address CBS and BHMT issues, and I actually think it helps. I'm interested to see if anyone else has had good results with any of the others? I was thinking the inflammatory support formulas, including cytokine balance and hyper-immune might be helpful with PANDAS. Any thoughts?
  7. PANDAS in Adults

    Hey, thanks for responding. I've had the OCD since I was a kid (maybe 8-10 years old?). It started as facial tics, then morphed into more mentally based. It has been on a off since, and was complicated by 12 years of Lyme (but that's better . I don't remember how it all started, but it definitely could've happened suddenly (I imagine I had strep at least once as a kid, and my dad says I had Scarlett Fever at some point). I just tried Augmentin 875mg for a month, which seemed to help at least a little with the mental o-c, but was going to talk to my doc about going up to 1000mg. I'm also seeing Dr. L in DC next week for the first time, so I was going to chat with her about it and have her do some blood work.
  8. PANDAS in Adults

    Has anyone had experience treating OCD (presumably caused by PANDAS) in adults? Would 1000mg of Augmentin XR 2x/day be a good starting place? Thanks!
  9. Supplement Successfully Used For OCD

    I take up to 18 grams of Inositiol powder per day (I'm 33). It's hasn't been 100% effective, but it's definitely helped significantly.
  10. As someone who went through 13 years of Lyme, I've amassed a number of helpful resources: 1. http://www.lymebook.com/ (many books on Lyme and associated infections) 2. http://mpkb.org/ (one protocol) 3. Richard Horowitz's comprehensive book