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bws1565

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  1. We used Methyl B12 from Jarrow. It does not have folate however.
  2. Has anybody ever tried the therapy outlined in the books "Brain Lock" or "You are not your Brain?" Supposed to have very good long term effects with OCD, anxiety and intrusive thought. Just wondering on feedback.
  3. I have needed to threaten my kids with bloodwork, if they won't open their mouth for the swab. You can just check strep titers to detect a strep.
  4. bws1565

    Why not start antibiotics anyway

    You are correct with this observation. I never mention my vaccine position to anyone. Once, I have had a local medical center confront me about my not vaccinating, but they were very respectful of my decision to my surprise. The only place where I adamantly refused to get a vaccine with my mouth wide open, was prenatally. Otherwise I always say, "not at this time, thanks."
  5. What are you going to do if the culture is positive? (just to note the value of fighting with him...) Hard to believe it will be if he is on long term antibiotics. Hives could be a virus as well.
  6. bws1565

    Why not start antibiotics anyway

    Jumping in with a different perspective. Was your son vaccinated? Vaccine adjuvants are designed to cross the BBB, specifically aluminium. There was much discussion on this site that Pandas is a version of aluminum toxicity. With vaccines, the aluminum is designed to hold onto the antigen and keep it in the body long term; thereby introducing antigens into the brain as well. It is believed that detoxing from aluminum and mercury helps quiet the immune system. We have tried selenium for mercury, malic acid for aluminum and other stuff as well. She is probably not all clean, but definitely is aluminum sensitive- she cannot tolerate aluminum based deodorant. She is currently using Diatomaceous earth for a slow detox for everything. I think it is helping well. I have learnt about vaccine reactions about seven years ago, and have not vaccinated my kids since. I have 2 totally unvaccinated kids, and several partially vaccinated. It is a CRIME what pharma is doing to our kids without knowing the long term effects. I can honestly say, VACCINES ARE NOT WORTH IT! Which parent would not nurse a child through a bad case of pertussins or measles, and even sweat the time through the a hospitalization for physical problems versus dealing with what we are dealing with here?!!! Just venting my pain. I wish I would have known about this issue many many years ago.
  7. bws1565

    SSRI

    And here I was, thinking of medicating...... https://prepforthat.com/antidepressant-suicide-side-effects-downing-family/
  8. bws1565

    PANS - oddball symptoms

    I found my daughter greatly improved when we seriously addressed candida and mucoid plaque. There is plenty of literature that candida alone can cause anxiety and brain fog. Add parasites to that list and you have a real problem. Really, we should have done colonics, but DD did not want to. So we did 1 saltwater flush, and then put her onto Diamataceous Earth for candida and OxyPowder for Mucoid Plaque cleansing. After 3 days we started seeing a die off result. After 1 week the results were really great. I won't know if the abdominal pain was due to constipation, leaky gut, or parasites and candida or perhaps reaction to antibiotics. Just mentioning what we feel helped her along. (She is still off wheat and some dairy; claims it causes abdominal pain)
  9. bws1565

    homeopathy

    Has anybody tried homeopathy for anxiety? I would like to know any responses, good or bad. Also recommendations for someone in NYC if you have any. Thank you.
  10. bws1565

    Chronic Neck Tension / Pain

    I am not sure about Pandas in relation to this, but Feldenkrais is a way of releasing muscle tension relating to brain signals. It is very gentle. Worth a try.
  11. Yes, strep antibodies can go up with exposure to other kids with strep. That is what antibodies do, they are supposed to protect you against disease (think measles, mumps etc) when you are exposed. We know that adults get their immunity reboosted when exposed to kids with childhood diseases like chicken pox. Unfortunately for PANDAS kids, this means a flare What can be done? Maybe others can chime in....
  12. bws1565

    Diatomaceous Earth

    Symptoms: More engaged, better social interaction, etc. This was our main concern..... I hope this stays on!!! We started using it about a week ago. She did have some reaction at first, I guess a die off, but then started moving in the right direction. I would say 4 days until improvement kicked in. Make sure you get FOOD GRADE very important. We got this one. https://www.amazon.com/Diatomaceous-Earth-Lbs-Food-Grade/dp/B00KPXGNTO/ref=sr_1_6?ie=UTF8&qid=1542861522&sr=8-6&keywords=diamoceous+earth
  13. I have seen this mentioned several times, but just recently tried it on DD myself. She is doing very very well on this supplement!! We tried it for candida/parasites, but it is also supposed to be a very good chelator/detox. She uses 1/2 - 1 tsp per day dissolved in juice.
  14. bws1565

    DS8 Lyme Diagnosis / NYC

    Where in NYC are you located? Lyme is not so easy to treat if it is present for a long time unfortunately. Lyme that is relatively fresh (under a year old) is not so bad and could be resolved with amoxicillin 3 X a day for 30 days. What were the symptoms that made you test for Lyme? And which lab did the testing? There is a doctor in my area (forgot her name) who trained under Dr. Horowitz from Hyde Park who treats lyme patients. If you need that info please PM me.
  15. bws1565

    Anyone got worse on probiotics?

    You can find lots of candida info here https://candidaspecialists.com/
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