• Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  • Days Won


bws1565 last won the day on June 23

bws1565 had the most liked content!

About bws1565

  • Rank
    Advanced Member
  1. Wondering about your OspC. To quote Dr. Horowitz, "Borrelia specific bands reflect outer surface proteins on the surface of the organism that are seen more often in Lyme disease than in other infections. These bands include the following five proteins, each with different molecular weights (31, 34, 39, and 83-93) If any of these bands are present on a western blot, there is a high likelihood that the patient has been exposed to Lyme disease, especially with the right clinical symptomatology........." He also believes that "Lyme disease is a clinical diagnosis, and lab results serve to support the clinical diagnosis"...... Basically, a negative blood result would not indicate no Lyme. Also read in Cure Unknown, about the most accurate lyme indicating outer surface proteins that were removed from the lab testing, because of a trial to produce a vaccine.. and if these proteins were used, vaccinated persons would always test positive, even if no lyme were to be present. I don't know which ones they are though.
  2. Wondering about band 41 as well. I think every single person I know, who tested for Lyme was positive for band 41. Is that indicative of lyme? It cannot be that everybody is positive!
  3. I don't know that. Our DD was dx with Pandas, but was corrected to Lyme/Bart 5 years later. I think her zinc deficiency was part of immune dysfunction with her body being overly stressed by Lyme.
  4. This might be related to zinc deficiency. Our DD food symptoms were greatly improved when she was taking zinc supplements.
  5. Will you for sure need IVIG? I think you can wait to see, and if absolutely necessary, vaccinate then.
  6. I would not. I've had enough of vaccines. You can always decide to vaccinate later if you have to.
  7. Through Health Kinesiology, we have been told that our daughter's hypothalamus is weak. Checking up online, all of the symptoms match! I have never found a cause for her very poor appetite. Hypothalamus controls hunger and satiety.....It also controls the thyroid and adrenals. That would explain anxiety, and low evergy... etc etc. Has anyone ever been told the same diagnosis, and what can be done to help this?? (Even with a regular MD?)
  8. We went through this. Unfortunately, we needed to have 4 people hold her down to get a blood draw for lyme, and haven't done any since. However, I was advised to give Klonopin to help out. I never tried it though. What is the reason that our kids are so afraid of needles??
  9. Has anyone, or their child who has lyme been told that they have liver issues?
  10. Has anybody ever tried to do an emotional correction? I took my daughter to a practitioner. She figures out with light touch, what is wrong physically, emotionally, mentally etc. through applied kinesiology, health kinesiology, one brain and other mediums. I did not tell her one word and she figured all out on her own!! All emotional and physical issues.... The reaction to the correction was startling, it was pretty severe. But once it has all passed, I think we are seeing progress. If anybody knows more about this, I would love to hear it......
  11. What are you looking to remove from your water? Is fluoride removal a priority?
  12. I know this from personal experience with my niece. She used to get a strep every spring, go onto antibiotic, and start stuttering...Several years in a row. Her pediatrician mentioned to my sister that there is research linking strep to stuttering. Not sure if this is definitely Pandas, or only strep. However there are soooo many things you can do beside abx for strep. To name a few: Streptococcus Thieves oil on the sole of the foot Blis K12 (an oral probiotic) I am especially leaning to the BlisK12. I know people have had wonderful results with it. Very easy to take and really effective. I have heard that the co NOW is best.
  13. My daughter also had a striated rash, about 5 years prior to her diagnosis of bartonella. Hers looked like someone had written on her back and upper arms with a reddish purplish thick marker. It did not hurt, and disappeared after four weeks. Her pediatrician diagnosed it as pityriasis (sp) which, after checking online years later, it did not match at all. I learnt about these linear rashes on this forum, for which I am thankful, that it led me in the right direction.
  14. I have read up on milk thistle, and although some do say its great for liver, I have seen otherwise. Milk thistle is a liver protector. It protects the liver. Your liver is supposed to protect you from toxins. Now, since your liver will be protected your OCD might get better, but headaches is definitely a liver symptom. So I think milk thistle is not a good idea for you. I have used a product called "liver balance" from the company Pure Body Institute of Ventura, with excellent results. You can also read up on his products on the website www.pbiv.com
  15. This might explain how lyme affects adrenal and thyroid function. http://fightinglyme.weebly.com/adrenal-fatigue.html