Timing of IVIG side effects and tips

[parents4eyes]

I

Edited September 9, 2010 by parents4eyes

[philamom]

Mary-

Side effects are different for every child but the most important aspect is to be well-hydrated. It doesn't need to be water, any fluids are fine. The day prior and when receiving the infusions...lot's of drinks! I would even push the fluids the week prior. My daughter who had 3 ivig's only vomited during the 2nd procedure. She also had a wicked headache! The 3rd infusion, she doubled her intake of drinks plus the nurse gave her an extra bag of fluids, and no problems. She also received steroids during the 3rd infusion. They will need to monitor her heart rate during the infusion, so they may wake her if she is sleeping.

[norcalmom]

Ds had plenty of hydration befere during and after, but still got the migraine and vomiting. He got migraine eve of second infusion day, within 5 minutes of the time dr k said he would get one(if he was going to). He got prednesone that night. Was fine the next day, very minor headache. The day after that, headache worse, was alternating Tylenol and advil, but migraine broke through. Gave him a second dose of prednesone, he fell asleep for 4 hours, and woke up vomiting. That lasted for 7 hours he vomited 6 times. Each time I could not believe the amount of bille. Like 2 cups each time. I was heading to emergency room if he did it once more.

Have some Electrolyte fluid handy in case this happens. All in all, it was just one really bad night, but I thought I had beat it with lots of hydration and early aggressive pain management. Not. It got Ds on 3rd nite post ivig.

Fine after that. Very minor headaches for couple days.

Hope that helps. Dr k also pushed iv fluids before and after ivig on both days.

[melanie]

Hi May

 

Glad you are going to do the IV ,we do it at home also and its been great.Why at night while shes sleeping?The nurse has to do vitals every 20-30 minutes,they need to drink lots of fluids so shes probably going to have to use the bathroom frequently.did the md tell you to do it at night?

The 1st IV we did was in the hospital and the night was a mess for us ,just for us.We do it duing the day,we plan movies and although its long(we use optigam) 6 hours ok we get through it EVERY 21 days!!

 

Melanie

[momaine]

I pushed fluids for a few days before plus Dr. B gave dd iv fluids at the same time as IVIG. Also gave dd 13 (100lbs) 50mg benedryl, 400mg motrin, and 40mg prednisone on the days that she had IVIG (repeated motrin and benedryl six hours later) She had no side effects last time and I'm hoping for the same this next time.

[mom md]

My son was on steroids and well hydrated before our first IVIG and did great. Our second one he was not as well hydrated and got a migraine day two. After no relief for two days I called the neurologist. He had me give him one of my migraine meds (amerge) and it relieved it. He got a mild rebound migraine the next day and took one more amerge. The migaine meds are not ususally used in children but there are several studies out there that support there use if other treatments fail.

[Doug]

Day 2 of ivig for us.

But Dr.k was on it!!

[parents4eyes]

x

Edited September 9, 2010 by parents4eyes

[parents4eyes]

x

Edited September 9, 2010 by parents4eyes

[philamom]

I pushed fluids for a few days before plus Dr. B gave dd iv fluids at the same time as IVIG. Also gave dd 13 (100lbs) 50mg benedryl, 400mg motrin, and 40mg prednisone on the days that she had IVIG (repeated motrin and benedryl six hours later) She had no side effects last time and I'm hoping for the same this next time.

Thanks. Did you give these before the IVIG started or after it was removed?

 

We had the same routine with Dr B (my daughter's younger, so lower dosage):

 

Lots of fluids days before.

Day 1&2: motrin/benadryl at 10:00, 4:00, 10:00; 2 prednisone tablets at lunch; drink fluids all day; administer a bag of fluid with gammagaurd ivig. Her ivig was scheduled at 10:00 am.

Lots of fluids days after.