bgbarnes Posted July 15, 2010 Report Share Posted July 15, 2010 A great way for me to start my day....I asked my son how he was feeling this morning 1 day post IVIG- His response- "Good it's all better now." I said what do you mean- he said "I don't know but it's all better now... it's all gone"( Did I mention the smile?) I don't know what that means for an 8 year old but I will take it. Now I know this can be sawtoothed but I will take that for day one post IVIG!!! Thanks for all the support and information I would not have been able to get all this accomplished so quickly without you! Brandy Link to comment Share on other sites More sharing options...
melanie Posted July 15, 2010 Report Share Posted July 15, 2010 yea!! Hey mine did great after to he said things llike his head was clear asked a gizzilion question.Keep us posted Melanie Link to comment Share on other sites More sharing options...
tpotter Posted July 15, 2010 Report Share Posted July 15, 2010 That is SO fantastic. Trudy Link to comment Share on other sites More sharing options...
lfran Posted July 15, 2010 Report Share Posted July 15, 2010 That is wonderful. Congrats! I wonder what it feels like inside the heads of these children. When my low thyroid is untreated, I feel all foggy brained and can't concentrate at all. Then, with the right dose of meds, everything is easy. I wonder if it is like that? A great way for me to start my day....I asked my son how he was feeling this morning 1 day post IVIG- His response- "Good it's all better now." I said what do you mean- he said "I don't know but it's all better now... it's all gone"( Did I mention the smile?) I don't know what that means for an 8 year old but I will take it. Now I know this can be sawtoothed but I will take that for day one post IVIG!!! Thanks for all the support and information I would not have been able to get all this accomplished so quickly without you! Brandy Link to comment Share on other sites More sharing options...
peglem Posted July 15, 2010 Report Share Posted July 15, 2010 Thanks for sharing and brightening my morning too! Link to comment Share on other sites More sharing options...
Mary M Posted July 15, 2010 Report Share Posted July 15, 2010 Such a beautiful thing! Link to comment Share on other sites More sharing options...
Fixit Posted July 15, 2010 Report Share Posted July 15, 2010 AMAZING!!!!!!!!! JOY!!!!!!!!!! Link to comment Share on other sites More sharing options...
Doug Posted July 15, 2010 Report Share Posted July 15, 2010 That is just a wonderful way to start the day take one day at a time,and just think about all of the great day's to come my dd never did that,she was just different after about a month back to herself,mabey because she was only 5? and she did not really know what was going on in her brain and with it getting better she just went with it? Questions Questions???? Tracie Link to comment Share on other sites More sharing options...
EAMom Posted July 15, 2010 Report Share Posted July 15, 2010 wow! Link to comment Share on other sites More sharing options...
deby Posted July 15, 2010 Report Share Posted July 15, 2010 Nice way to start the day, thanks for sharing! Link to comment Share on other sites More sharing options...
thereishope Posted July 15, 2010 Report Share Posted July 15, 2010 Glad to hear things are going well! Link to comment Share on other sites More sharing options...
Joan Pandas Mom Posted July 16, 2010 Report Share Posted July 16, 2010 This post put a smile on my face! It is going to work! Link to comment Share on other sites More sharing options...
kimballot Posted July 16, 2010 Report Share Posted July 16, 2010 THIS is an Epiphany moment! Link to comment Share on other sites More sharing options...
bgbarnes Posted July 16, 2010 Author Report Share Posted July 16, 2010 He had a small setback this evening- about 20-30 minutes of defiance,rage- stuck on what he wanted to do- pupils were wide but then he grabbed a big stuffed animal hugged it, kissed it snuggled it for about a minute-then out of nowhere started doing what I had asked him to do- the things that only moments earlier he was fighting me tooth and nail on (shower and going to bed)...then the NEXT miraculous thing came out of his mouth- he said Mommy can I play baseball again- he is an incredible baseball player - was asked to join a club team etc.. and he quit- he stopped did not want to play anymore in the Spring- I am sure it was all because of PANDAS- I finally let him quit every sport because I was tired of pulling the you made a commitment so you better go to practice speech & I started digging into what was "wrong" with my son....I have not even mentioned baseball in a long time. We have plans to go to the batting cages this weekend now! Link to comment Share on other sites More sharing options...
kimballot Posted July 16, 2010 Report Share Posted July 16, 2010 He had a small setback this evening- about 20-30 minutes of defiance,rage- stuck on what he wanted to do- pupils were wide but then he grabbed a big stuffed animal hugged it, kissed it snuggled it for about a minute-then out of nowhere started doing what I had asked him to do- the things that only moments earlier he was fighting me tooth and nail on (shower and going to bed)...then the NEXT miraculous thing came out of his mouth- he said Mommy can I play baseball again- he is an incredible baseball player - was asked to join a club team etc.. and he quit- he stopped did not want to play anymore in the Spring- I am sure it was all because of PANDAS- I finally let him quit every sport because I was tired of pulling the you made a commitment so you better go to practice speech & I started digging into what was "wrong" with my son....I have not even mentioned baseball in a long time. We have plans to go to the batting cages this weekend now! I hope you have a GREAT batting weekend! Those are the things I love the most when my son is well... the normal, average, daily things that everyone else takes for granted... like going to the batting cages! Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now