TO THE SKEPTICS...

[coco]

Vickie - I really hate it that some people call your dear son "monk" -- I remember reading that in another one of your posts and it breaks my heart!!! What kind of people do this type of thing, about a child, no less!!?? Fortunately my family members are very supportive and we let only the closest of friends "in" when it comes to pandas. There's enough stress that goes along with this anyway without stupid people loading on more. My "stupids" are at my dd's school. They sit across from my husband and me at school meetings....now that's MONK!!

[bgbarnes]

Love this board!! Glad we all have a place to vent- It definitely helped to go about my day without seething anger all day however I might have lashed at my brother saying thanks for contributing to the torture of my child......since he is VERY passive I knew he would not say anything back...it might not have been helpful but I sure felt better!

Brandy

[matis_mom]

I am TOTALLY OVERREACTING when some random kid offers to let him drink after them and I leap a tall building to knock that drink to the ground before it touches his lips!

That line totally cracked me up! I can see you doing the karate chop and the drink flying everywhere... SUPERMOM TO THE RESCUE!

I just got everyone new water bottles, no more drinking fountains for anyone in my family. We have a coop in our homeschooling group and my 2-yo thinks it's so much fun to get water from the fountain... but NO MORE. SUPERMOM came to the rescue today, and yes, a few people wondered why I was so uptight.

The way I see it is, better me than my son, if they are going to think someone is crazy, I don't mind, I'll take it. Better safe than sorry!

[Bigal]

Wow, you guys are all awesome. I so admire your tenacity and dedication. I just wandered over to this post after reading the very helpful responses to my questions about PANDA (my son was diagnosed with Tourette's last week). I'm feeling much like you all. I hope I live up to your examples.

 

Bravo!!

 

AMEN sister!! Why are family members so doubtful of our God-given motherly instincts. And not to mention they have no problem kicking a dog while she is down (meaning they blame us for the dysfunction of our children!). There is no more devoted mother than me (and all of you) yet I am treated like I am a failure as a mother. My only failure was walking into the pediatrician's office with blinders on and offering up my kids to be injected with multiple poisons. Now I pay the price...

 

Listen, you are a better woman than me. I was so pissed one night I typed out an email to my whole family (aunts, cousins, grandparents, you name it) and I vehemently defended myself, my children and my husband for all the judgement that is passed our way. I let them know that I will not put up with it and that if I have to choose between them and my children, well it is obvious who comes first...I know I made a name for myself and they are all going behind my back and saying that I have lost it. Well, I can not argue with that!!! Problem is they think that my kids have lost it b/c I have lost it, not the other way around. Some things will never change, unfortunately. My husband and I feel very isolated from our families right now. I'm not sure the damage can ever fully be undone. Just another side effect of this awful illness.

 

Stephanie

thanks for letting me vent. just writing and saying this to myself helps me cope right now.

 

"do not doubt the perseverance of a mother to fight for her child. i will not sit idle and assume that ANYTHING is just regular childhood antics or behavior when I believe in my heart there are underlying issues. I WILL NOT DISCIPLINE MY CHILDREN for something I am not sure they can control. I WILL SHOW SYMPATHY AND LOVE until i have the answers." ME - MOM, the one who gave birth to them, the PARENT, the one in charge of discipline and everything else! the one who does not stop thinking about the two loving boys who are just struggling right now.

[Stephanie2]

Yeah, you could say that some of us have some pent-up anger, post (or mid-) traumatic stress, etc. At least there is a place where we are understood. That is the hard thing about this illness. Instead of getting the emotional "support" from our families that we so desperately need, we get kicked around ....grrr....

 

Stephanie

 

Wow, you guys are all awesome. I so admire your tenacity and dedication. I just wandered over to this post after reading the very helpful responses to my questions about PANDA (my son was diagnosed with Tourette's last week). I'm feeling much like you all. I hope I live up to your examples.

 

Bravo!!

 

AMEN sister!! Why are family members so doubtful of our God-given motherly instincts. And not to mention they have no problem kicking a dog while she is down (meaning they blame us for the dysfunction of our children!). There is no more devoted mother than me (and all of you) yet I am treated like I am a failure as a mother. My only failure was walking into the pediatrician's office with blinders on and offering up my kids to be injected with multiple poisons. Now I pay the price...

 

Listen, you are a better woman than me. I was so pissed one night I typed out an email to my whole family (aunts, cousins, grandparents, you name it) and I vehemently defended myself, my children and my husband for all the judgement that is passed our way. I let them know that I will not put up with it and that if I have to choose between them and my children, well it is obvious who comes first...I know I made a name for myself and they are all going behind my back and saying that I have lost it. Well, I can not argue with that!!! Problem is they think that my kids have lost it b/c I have lost it, not the other way around. Some things will never change, unfortunately. My husband and I feel very isolated from our families right now. I'm not sure the damage can ever fully be undone. Just another side effect of this awful illness.

 

Stephanie

thanks for letting me vent. just writing and saying this to myself helps me cope right now.

 

"do not doubt the perseverance of a mother to fight for her child. i will not sit idle and assume that ANYTHING is just regular childhood antics or behavior when I believe in my heart there are underlying issues. I WILL NOT DISCIPLINE MY CHILDREN for something I am not sure they can control. I WILL SHOW SYMPATHY AND LOVE until i have the answers." ME - MOM, the one who gave birth to them, the PARENT, the one in charge of discipline and everything else! the one who does not stop thinking about the two loving boys who are just struggling right now.

[patty]

OMG! All of you took the words right out of my mouth!

 

Since my son's illness, i feel like i have been critized for being uptight, paranoid, overreacting,.... No one understands why i do what i do! And because i share very little w/anyone mainly because no one take any interest, esp the immediate family and my son's symptoms are unnoticeable now (unless you know about tics and OCD), people think that i am one of those overreacting mothers that is going off the deep end. What others don't realized is that i work really hard to get my son to the point of unnoticeable symptoms and i am often exhausted by our strict routine at the end of the day, and not to mention the frequent dr appts.

 

It is so frustrating not have anyone understand what i have to go thru. Over the years, i have developed some health issues, one of which is anxiety & depression and still my family still don't get it! I am angry, angry.... My only comfort is that my son is doing well and has come a long way!

 

Pat