PANDAS 8 years later UPDATE

[Chemar]

Thanks for sharing with us and i do remember all of your old posts. Seems some got lost when this forum got migrated. Your post gave us hope and we all look forward towards a better tomorrow.

 

nope...none got lost...most of the earliest PANDAS related posts are still over on the TS/tics forum and just were not moved over here with the more recent PANDAS threads when the new forum was created.

[TessaKrista]

THANKS FOR WRITING. SORRY ABOUT THE UPPER CASE.. I CAN'T GET RID OF IT ON MY LAPTOP. CAN'T FIGURE OUT THE BUTTON RIGHT NOW.

 

WOW...YOU WERE VERY FORTUNATE IN 2002. THE SAD REALITY IS THAT DOCTORS ARE AFRAID OF PRESCRIBING ANTIBIOTICS. IT IS AS IF I AM ASKING FOR SOME STREET DRUG OR SOMETHING! IT IS SO SHOCKING! I AM JUST ASKING TO PUT MY SON ON ANTIBIOTICS. DOCTORS SAY THAT PANDAS IS CONTROVERSIAL OR THEY SAY THAT IT IS A FAD. ONE DOCTOR SAID THAT HIS TICS WILL PASS. ANOTHER SAID TO IGNORE THEM. I TOLD HIS PEDIATRICIAN ABOUT HIS SUDDEN CHANGES INCLUDING HIS FEARS, AND SHE SAID THAT THE SECRETARY HAS THE SAME FEARS.

 

I AM HAVING A HARD TIME FINDING SOMEONE WHO WILL CONSIDER AZITHROMYCIN. I WENT TO HIS PEDIATRICIAN AND WALK IN CLINICS. EVERYONE SAYS NO. HE HAD A BLOOD TEST DONE, AND I HAVE TO LEARN WHAT ALL OF THOSE THINGS MEAN. HIS TITERS WERE HIGH, BUT HE HAD NEGATIVE STREP.

 

DO YOU KNOW ANY DOCTORS IN CANADA, OR MORE SPECIFICALLY IN THE TORONTO AREA THAT PEOPLE HAVE TOLD YOU ABOUT THAT HAVE HELPED THEIR CHILDREN WITH PANDAS? WHO IS YOUR SON'S DOCTOR?

 

MY SON IS 7 NOW, AND IT IS SO HEARTBREAKING FOR ME TO SEE MY BEAUTIFUL BOY CHANGED. I HAVE FALLEN APART. I AM JUST PICKING UP THE PIECES NOW. I AM EXHAUSTED FROM FEELING SO DOWN, AND I AM TIRED OF TRYING TO FIND SOMEONE TO HELP ME.

 

SOMEONE FORWARDED SOME NAMES FOR ME TO CHECK OUT, BUT THE PERSON DIDN'T KNOW IF ANYONE WAS CURRENTLY WITH THOSE DOCTORS OR NOT, AND WHETHER OR NOT THESE DOCTORS WERE HELPFUL.

 

IT SOUNDS LIKE YOU ARE SAYING THAT YOUR SON TAKES AZITHROMYCIN ONE DAY PER WEEK, EVERY WEEK, AND HAS BEEN FOR THE PAST NUMBER OF YEARS. IS THAT RIGHT, OR DID HE DO A FULL COURSE OF IT FOR A WHILE. WHEN DID YOU SEE CHANGES?

 

ALL THE BEST!

[TessaKrista]

IT SOUNDS LIKE YOU'RE IN TORONTO TOO. DO YOU HAVE A GOOD DOCTOR WHO DOES WORK WITH PANDAS?

T

[TessaKrista]

WHICH DOCTOR HAS YOUR SON BEEN SEEING RE: PANDAS? CAN YOU POST THE INFO HERE OR SEND IT TO ME BY MESSAGE?

 

THANKS,

T

[Phasmid]

Thanks so much for your update!

[tired mom]

I believe that 2002 is the year that alot of us began this journey.