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TessaKrista last won the day on July 7 2014

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About TessaKrista

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  1. Yes...stay away from manganese. Wonder Bread has lots of manganese, and is really bad for kids with tics or any neurological things going on. Stay away from Wonder Bread, until they change their formula and remove manganese. That includes their hotdog buns and hamburger buns. Too much manganese. Manganese causes tics to go crazy in kids with tic disorders, even mild tic disorders. The manganese impacts on them really badly. Also, there are other brands of breads, even whole wheat bread, that lists 100% manganese for 1 slice, which is way too much. I only buy bread that lists zero percent manganese in it, or the natural bread from Ace Bakery, or the Whole Foods bread made in their bakery. I don't remember if it's Dempters or another brand, but it has way too much manganese, and I totally stay away from it. Also, there is a cereal called Bran Buds, that has way too much manganese in it. Whenever my child would take it, he would react horribly.
  2. There are many kids on this forum that are on prophylactic abx. My son is not on them prophylactically, but has been on them on and off...and on and off every month for fear of strep around us by other kids. Now I know that it is best to swab to confirm, but I was so worried about his second exaserbation of pandas when he was a different kid, that I didn't want that again. But... now I am dealing with a clear cut issue of throat clearing induced by abx. That has become obvious. What about all of the kids who are on abx prophylactically? Is it different then starting and stopping? what are some probs with staring and stopping and being on them once per month.?
  3. Do regular family doctors or pediatricians put forth the candida test to Great Plains, or only alternative medical practitioners actually do that?
  4. Do we know why many fish oils bring out more tics in many kids? What is the science behind it?
  5. What type of things do these chiropractors do? Are they available all over north america?
  6. I have now come to realize a very very strong connection between giving my child antibiotics, and the sudden onset of throat clearing / cough tics that immediately accompany the abx. I wondered about this before, and now it is totally confirmed. In fact, I went over my son's history on the calendar, and see that he has been on abx every month at least 5 to 10 days per month. Each time, something either continues or starts. I also realize that just because he has a sore throat or a fever and sore throat that his ped was right, it does not mean strep. I have been going to the walk in clinic that has given him abx without swabbing. The last time he was sick and I felt funny, the other walk in swabbed us, but gave us abx anyways. He had 9 days of azith at high doses and guess what... he started with this stupid throat clearing tic that is still there. In fact, now in bed at night, he also has a snort, that he wonders why he has it. I decided to go back to the place that swabbed us and everything was negative. Wow... I feel horrible. This kid has to be full of yeast. He was being medicated on and off and on and off perhaps for no reason, which sucks. *Funny that I made that connection way back in march or april i think it was, but wasn't sure. Now I see that it is correct. Biaxin made a head tic come out. But azith makes the throat clearing come out. Then, when he drinks juice or eats bread or pasta, it is worse. Bad news. What should i do?
  7. I have now come to realize a very very strong connection between giving my child antibiotics, and the sudden onset of throat clearing / cough tics that immediately accompany the abx. I wondered about this before, and now it is totally confirmed. In fact, I went over my son's history on the calendar, and see that he has been on abx every month at least 5 to 10 days per month. Each time, something either continues or starts. I also realize that just because he has a sore throat or a fever and sore throat that his ped was right, it does not mean strep. I have been going to the walk in clinic that has given him abx without swabbing. The last time he was sick and I felt funny, the other walk in swabbed us, but gave us abx anyways. He had 9 days of azith at high doses and guess what... he started with this stupid throat clearing tic that is still there. In fact, now in bed at night, he also has a snort, that he wonders why he has it. I decided to go back to the place that swabbed us and everything was negative. Wow... I feel horrible. This kid has to be full of yeast. He was being medicated on and off and on and off perhaps for no reason, which sucks. *Funny that I made that connection way back in march or april i think it was, but wasn't sure. Now I see that it is correct. Biaxin made a head tic come out. But azith makes the throat clearing come out. Then, when he drinks juice or eats bread or pasta, it is worse. Bad news. What should i do?
  8. http://www.nimh.nih.gov/science-news/2011/light-switches-brain-pathway-on-and-off-to-dissect-how-anxiety-works.shtml
  9. strep in mouth, on teeth, cavities.... http://theweek.com/article/index/230341/the-new-discovery-that-cavity-proofs-your-teeth http://www.freewebs.com/naguiar/
  10. On last week Thursday, ds9 had no energy after his soccer game, had a huge headache, and a high fever of 40 celcius. He didn't have a sore throat. I gave advil. On Friday morning, high fever still there, 39.8 celcius plus headache, no energy, wanted to sleep, no hunger, so I brought him into a doctor who knows him, and she saw white stuff at the back of the throat and he had enlarged neck glands. He didn't have a sore throat. Doctor swabbed him, and gave him azith right away, because of his history,a nd because to her, it is consistent with strep. Don't have results of swab back though. Saw ds9's pediatrician on Monday after the weekend, who said he would never prescribe any abx even if he saw white spots and child has fever, only with the positive swab for strep. Interesting. Good to know that his office was full on Friday. This is the same ped who also did not prescribe abx when ds had a positive urine infection but no fever, during his second pandas episode back in March. I got more azith for ds9. I looked at Dr. Susan Shulman's videos about strep and pandas. She says that she prefers to treat first with pen v or amoxil, and then give the child azith afterwards, because they are the best strep treatment. Based on that...it looks like amoxil + clav (augmentin) would be the best choice then, because it has the extra stuff in it... I am guessing. Will ensure that ds is no longer reacting to penicillin via a test, to be able to give him as many of the right abx as possible. I have a question for you out there.... Ds felt a lot better approx 5 hours after starting the azith plus advil. He was still run down, but not like before. I thought that it was the advil plus azith, but his pediatrician said that there is no way that an antibiotic kicks in that quickly. Just wondering.... Now I am hoping that all of the crazy pandas symptoms dont come out in the next few weeks like last time. So far, the head tic thing has definitely gone down. I worry about all the worries/anxiety/fears, moods and depressive stuff...and all that stuff coming out in the next weeks. That is how it all played out last time. Do you find that it takes a few weeks after strep for the episode to come out, or are there times when we can halt it in its tracks with abx and advil?
  11. My story is one that is very sad to me, because it forever changed my son, and forever changed my life. I had a normal son, and then after seeing this homeopath, he was no longer the same. I repeatedly phoned her crying and crying, telling her that she should not have been greedy, wanting to sell me products just to make a profit at the expense of a child's life. I told her that I had a normal child, and he was disabled after her intervention. I told her that I only went to her because he had enlarged adenoids, and if she had no experience with this, then she should have been honest. Instead, she looked up in some book of hers, and tried to come up with some remedy, and then she prescribed stuff, and then told us to come back two months later, which is when she decided to sell even more stuff, that just did my little son in. When my little boy was 3 1/2, he had enlarged adenoids and sleep apnea (would snore loudly at night and stop breathing for 8 - 15 seconds every so often every night). I was very worried. A mother told me that this homeopath who was from the same culture as she was, cured her 14 year old boy from boils, by giving some remedy and telling her not to give him apple juice. She referred me to this homeopath, who looked professional with her white lab coat, but really, was a greedy person who just wanted to make money from selling products that were harmful to my little boy. So...I forever live with the fact that I gave my son products that this homeopath woman prescribed for him, and he started twitching like crazy when I gave him all of the products together like she directed. It was less than one hour later, and I knew something was very wrong with my little boy. I contacted her, and she told me to give him baking soda. I phoned poison control, who thought I was nuts to give him stuff that this homeopath had prescribed, and they told me to go to emerg. I phoned a health food store that is reputable, and they told me that my son had injested a toxic dose, and needed to be detoxed. I went to emerg, and by the time they saw him, he had stopped twitching like crazy. They looked at the products and said that I was nuts to give this stuff to a kid. It was weird stuff they said, especially the fact that this homeopath had put together a 'remedy" of various liquids into a bottle, and had not labelled what was in the bottle. So, for one and a half months, I was giving my son some liquid 'remedy' that she had put together in a dark bottle, in addition to these pills called IGA+, which she told me to open the capsules and put them in jam and give them to him twice per day. So, two pills per day, for a 3 1/2 year old child. I did that for the month and half or two months, and then went to see her again, and this time, she started saying that "every child should be on this stuff" and she was referring to the adult colloidal multiminerals, a berry fish oil, and neuropowder probiotic for adults. It was the combination of everything that set my son off within one hour of him getting everything one day, right after our second visit to the homeopath. My son's body or arm twitched like crazy and he had a blank stare. Now I suspect that he was having seizures, but at that time, I thought that seizures only looked like the ones that I had heard about, where someone falls to the ground and shakes and foams at the mouth. That wasn't the case for my son. Instead, he just started shaking and he turned grey. The ony new things I had given him were the things that she said that 'every child should be on this stuff"... She never asked me if my son was already taking anything, which he was. I was giving him genestra multivitamins for kids, some high end cod liver oil capsules, and probiotics for kids. The addtional stuff was just too much for his body it seems. From what I can tell, there is a lot of glutamic acid in these formulas, which is so weird considering that I used to be so so so careful not to give anything that had msg to my son, but here I blindly went along with what this crazy homeopath woman said. Also, there are amino acids in some of this stuff. I didn't know what they were back then, but now, after reading this forum, realize that people use amino acids to help with various things. But really .... my 3 1/2 year old son changed that day. He had these little twitches from that day forward. Half an hour after I gave him all of the stuff that she had told me to give him, we went to a child and mom program, and my typically quiet sweet child, suddenly screamed out really loudly in a loud scream that lasted for one minute. I knew something was off, because he had never done that before, and he was always really quiet and compliant and sweet. My brother who is into neurology thinks that my son's brain had a surge of something that caused him to suddenly react, like too much msg, causing his brain to be full of neurotoxins and have a bad reaction. Then, after leaving the play group and coming home, my son started twitching. From that day on, my son always twitches in his sleep. That has never changed. Small things like a bumper car ride that hurt his neck, would cause shoulder shrugs. I definitely did not vaccinate after that, worried that something else would set him off. He had his 18 month vaccine but at 24 months, so that we could spread things out. Also, he was always sick with some cold with his enlarged adenoids that we didn't do vaccines. Thank goodness. His toxic load was too great. So, I just wanted to share with everyone about my little boy's history. All of this toxic overdose changed him, and he was never the same again. From that day on, he had little twitchy things that would come and go, whereas before, he didn't. I videotaped him all the time, and was a stay at home mom with him at the time, so I knew his every little move, personality, and temperment. That whole thing changed my son. So...perhaps he was predisposed to getting tics, and overloading his little body with toxic doses of crazy stuff just overloaded his body, making him susceptible to twitching and having tics, and ts. Perhaps his story is like the kids who have autism whose bodies could not take the toxic load of vaccines, and ended up with autism. My son has tics, no autism. Yet...I would like you to know how the homeopath responded when I told her that she had turned my normal child into a child with a disability, all because she wanted to sell me products that were above what everyone was selling them for, and products that my son did not need. I reminded her that I came in to see about his adenoids, and she told me that every child should be on all of this stuff. She then told me that these products are good for kids with autism, and the company told her that the products are good for everyone! I got very upset with this crazy homeopath, saying that she was just spouting off rhetoric that the company was dishing out to make money. She had not grounds to give him the crazy stuff with glutamic acid and amino acids and all this crazy stuff. He was a little boy who had enlarged adenoids,that was all! He had no tics, and he had no asd issues. I cried and told her to never harm another child again because of her greed. I also told her that my son did not have autism going in to see her, so why would she prescribe something that she gives to kids who are autistic? She said that the company said that it is good for everyone! So weird! I cried and cried and cried so much for months on end. I ended up having my own health issues as a result of my guilt over my stupidity and ignorance. My brother found it so weird that I was always so careful what my little boy ate (always natural stuff) and then suddenly I just blindly followed this crazy homeopath's recommendation, and my son is harmed forever. You know, if I could turn back time, I totally would. So much would be different. I really wish I could. Now, I live with what exists, and I try to see what can help my little boy, who is a bigger boy now. My ds9 is living with tics because I followed what a greedy homeopath recommended. I stupidly followed what she prescribed, yet all the time before that, I would never allow anyone to give my kid anything with msg or any food additive. I hate myself for that. I wish that God would punish me directly, and not my little boy. I want to warn everyone to be careful. Don't blindly follow someone who tries to make a profit by selling you lots of stuff. This homeopath said that she is a naturopath in Quebec, but when I phoned the naturopath association, they said that anyone can be a naturopath in Quebec, it only takes a weekend course or a correspondence class, or a class that is a workshop. There are no standards. I am in Ontario, and there are no regulated homeopaths here. There is no governing body. She can continue to do her crazy stuff to others if greed takes over. We have regulated naturopaths here, that must study for 4 years. There is a governing body for Ontario naturopaths, but not homeopaths. Anyone can be a homeopath here, with very little training. Very scary. Here is the stuff that she gave my 3 1/2 year old son, in addition to her made up remedy that included belladonna and alcohol and some other stuff.... Wondering if anyone can figure out what could have caused his body to forever twitch in his sleep, and have tics every so often, as if he has ts. I suspect it was the glutamic acid, but I don't have a science background. After figuring it all out, now I have to see what can help him for the rest of his life. The colloidal multimins liquid for adults had these ingredients in them: Ingredients: Each Tablespoon (15 ml) Contains: Vitamin C (Ascorbic Acid) 30 mg Calcium (Carbonate) 3 mg Iron (Aspartic Acid Chelate) 300 mcg Iodine (Kelp) 50 mcg Magnesium (Aspartic Acid Chelate) 1500 mcg Zinc (Aspartic Acid Chelate) 300 mcg Potassium (Chloride) 2 mg Selenium (Selenomethionine) 25 mcg Copper (Aspartic Acid Chelate) 100 mcg Manganese (Aspartic Acid Chelate) 300 mcg Chromium (Aspartic Acid Chelate) 50 mcg Molybdenum (Aspartic Acid Chelate) 25 mcg Vanadium (Aspartic Acid Chelate) 25 mcg Colloidal Minerals: Antimony, Barium, Beryllium, Bismuth, Bromine, Carbon, Cerium, Cesium, Chlorine, Cobalt, Dysprosium, Erbium, Europium, Fluorine, Gadolinium, Gallium, Germanium, Gold, Hafnium, Holmium, Lithium, Niobium, Nitrogen, Osmium, Oxygen, Palladium, Phosphorus, Platinum, Praseodymium, Rhenium, Ruthenium, Samarium, Scandium, Silicon, Silver, Sodium, Strontium, Sulfur, Tantalum, Tellurium, Terbium, Thallium, Thorium, Thulium, Tin, Titanium, Tungsten, Ytterbium, Yttrium, Zirconium Natural Orange Flavor and Fructose The IGA+ had these ingredients in it: http://www.sednaproducts.com/Secure/ecommerce/details.asp?prdn=55 This advanced anti-oxidant formula contains a complement of synergistic nutrient precursors to intracellular glutathione synthesis. Available in bottles containing 60 capsules. Each capsule contains: N-acetyl-L-Cysteine .............. 300 mg Ornithine Alpha-Ketoglutaric Acid.................................. 50 mg Reduced Glutathione ......... 25 mg Glycine ............................ 25 mg Glutamic Acid .................... 25 mg Lipoic Acid ...................... 7.5 mg Glycylglutamine ............... 5 mg Inosine ........................... 5 mg L-Carnosine ..................... 2.5 mg Selenomethionin .............. 50 mcg SUGGESTED USE: Take 1 or 2 capsules daily, or as directed by a health professional. The probiotic/neuropowder had these ingredients in them: http://www.yourethecure.com/cart.php?target=product&product_id=78&category_id=328 Genestra Brands HMF Neuro Powder is a unique preparation containing various strains and species of Lactobacillus and Bifidobacteria along with prebiotics to specifically assist with autistic spectrum disorders (ASD) and attention deficit hyperactivity disorders (ADHD). The new Lactobacillus rhamnosus and Lactobacillus crispatus species have the capability of breaking down the exorphin peptides which can be produced in excess in the intestines of autistic children. In addition to possessing peptide-hydrolysing abilities, Bifidobacterium bifidum, Bifidobacterium lactis, and the two strains of L. acidophilus assist with mercury detoxification and helps to heal the mucosal barrier and restore the intestinal tract. The addition of the fructo-oligosaccharides allows for optimal microbial balance leading to proper immune function. Research shows that autistic children have significantly higher gastrointestinal tract disorders, and have increased intestinal permeability consequently leading to the accumulations of toxins such as heavy metals, in particular mercury, and undigested proteins in the lymph, circulatory and central nervous systems, triggering systemic abnormalities. Undigested proteins, from foods containing gluten and casein, can lead to the production of aberrant peptides with opioid activity or “exorphins” in the intestines. HMF Neuro Powder helps heal and maintain the integrity of the intestinal tract, and is indicated for ADHD and for all ASDs such as autism, Asperger’s Syndrome, childhood disintegrative disorder, Rett Syndrome, and pervasive developmental disorder - not otherwise specified. EACH ¼ TEASPOON (1 g) CONTAINS LAB4 + LR Consortium . . . . . . . . . . . . . . . . . . . . . . . . 8 billion CFU Lactobacillus acidophilus (CUL-60) Lactobacillus acidophilus (CUL-21) Bifidobacterium bifidum (CUL-20) Bifidobacterium animalis subsp. lactis (CUL-34) (formerly Bifidobacterium lactis) Lactobacillus rhamnosus (CUL-63) L-Glutamine . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 500 mg Fructooligosaccharides (FOS). . . . . . . . . . . . . . . . . . . . 250 mg Formulated to contain 12.5 billion CFU/capsule (combined) at time of manufacture. Risk Information: If you are experiencing nausea, fever, vomiting, bloody diarrhoea or severe abdominal pain; or if you have an immune-compromised condition, do not use. If you are pregnant or breastfeeding; or if you are following a low protein diet, consult vyour healthcare practitioner prior to use. If symptoms of digestive upset occur, worsen or persist beyond three days, discontinue use and consult your healthcare practitioner. The berry fish oils had this in it: 300 ml (10.1 fl. oz.) Genestra Brands Berry EFA Plus is a great tasting, berry-flavored, water-soluble pharmaceutical grade fish oil combined with anthocyanidins, or potent antioxidants, specifically formulated to provide essential nutrients for optimal cardiovascular and neurological health. This complex manufacturing process eliminates environmental pollutants and allows for the absorption of high concentrations of eicosapenaenoic acid (EPA) and doco-sahexaenoic acid (DHA) without gastric distress. In addition, a patented lipid emulsification and micro-encapsulation process is used resulting in faster and greater absorption of long-chain fatty acids. Therefore, it is ideal for individuals who have difficulty absorbing fat or for those who have impaired digestive function. Sublingually-absorbed anthocyanidins help to enhance immune function and protect cells from oxidative stress and damage. Studies show EPA is important for the regulation of blood pressure, blood clotting, and immune and inflammatory responses. Increasing evidence indicates DHA is an important contributor to cardiovascular health by improving the overall blood lipid profile. Berry EFA Plus is indicated for all cardiovascular disorders, neurovegetative conditions, and for free radical damage, and premature aging. Berry EFA Plus is a unique mixed berry and fruit concentrate exclusively formulated for palatability making it ideal for children and adults who dislike fish odor, and emulsified for individuals who have difficulty absorbing fats due to digestive dysfunction. Each Teaspoon (5 ml) contains: Eicosapentenoic Acid (EPA) 250 mg Docosahexaenoic Acid (DHA) 187 mg Concentrated Pure Fish Oil 1280 mg From Wild Sardines and Anchovy Anthocyanidins 15 mg Vitamin E (Mixed Tocopherols) 13 mg Vitamin C (Ascorbic Acid) 25 mg I don't know what the amino acids can do to a little child's brain, but I suspect it caused his brain to have an overload of toxic chemicals, that caused him to have neurological issues (tics) that surface often. Now he is having huge issues with tics, after being hit in the back of the head....kicked by a school mate during soccer. Also, there were a lot of sick kids in his class. But the abx seemed to bring out the tics more. Anyone have any suggestions as to what is going on and who you recommend I go to see at this point in life? Ds is 9 years old now, no longer 3 1/2. I have lived with this pain for so long, and every time he tics and twiches, my heart dies and dies, knowing how it all started, wishing I could take it back, wishing I would have been smarter. MOthers are supposed to do what is best for their children. Unfortunately, I made a grave error, and my sweet little boy was harmed by the crazy stuff that this homeopath prescribed, and I gave him. I look back and think...he was so little... he was so little. HOw could anyone prescribe adult doses to a little child? How could I as the mom be so stupid, and blindly give it all to him, hoping it would help him? Stupid. You know...they say that we should follow our instincts, and my instinct was to wonder why she was suddenly prescribing all of this extra stuff, and charging tons of money not only for our visit, but for all of these products that "every child should be on" that really had nothing to do with his enlarged adenoids. My fear of having surgery, sent my son into the arms of a greedy homeopath. We would not have done surgery anyways, considering that the big children's hospital around here said that they wanted to wait until he was 7 years old to assess whether or not the adenoids shrunk....which they did. Huge mistake I made. My son and I live with it, but him moreso than me. I don't know how to rectify it, or make things better. Please help and guide me in the right direction. I hope it isn't too late to help my only child. I hope that I can guide him towards not having to always deal with having tics, and having kids ask him why he does those movements. It is sad, as you all know. It is sad to have a child who is different. It is sad for us, and sad for them. I wish that no child had tics, or ts, or pandas. I hope that God helps all children.
  12. I'm not an expert, and I'm very confused too. This "tics" nightmare started for us 1 month ago and there is a lot of information about Pandas and nobody can say that they are sure 100% that Pandas is the cause of these behaviors/tics. What I am starting to think is in the case of my son, he had the neck injury, that was a real trauma for him (we call 911, the firefighters came , 2 huge trucks, the tied him from head to toe,and took him to the emergency room). That trauma together with stress (we put a lot of pressure on him regarding school and state tests) I believe lowered his immune system. Then probably he got some kind of strep (it didn't manifest, but we got really high titers). and then he got the tics. I started last week with a chiropractor that I really trust. He will go once a week for now. In the beginning none adjustments will be done, just more like a massage. The chiropractor said that he has like a ball of stiff muscles. First he need to make that muscles relaxed. I'm sure that muscle tense also cause him pain, so definitively we need to treat that. Then we will check if he will need other adjustment. In my next session I'll ask him what is the next step, if we need to do MRI or other test. I'll let you know what he says. I dug up this old post about head injuries and tics. Ds9 got kicked really hard in the back of the head in June during a soccer game when he was down getting the ball, and two days later he started with an intense neck stretching tic. Now he has that tic along with head tic. He has dormant tics that come out with infections and head injuries. Besides chiropracters, are there other things to consider looking into? There is some kind of MRI study being done at Toronto Western Hospital. Wonder if that would show any lesions in the brain. What would an MRI show anyways? I wonder if anyone else has had tics come out with head injuries from sports related activities or other things.
  13. http://www.luckyvitamin.com/p-252213-barleans-fresh-pressed-olive-leaf-complex-full-spectrum-liquid-natural-flavor-8-oz This is the stuff we had been using. It seems a bit different from OLE, because it is called Olive Leaf complex... and it is minty, with a "natural flavour".... I never noticed before, but it doesn't say OLE. What OLE do you use, and which one was good? A long time ago, I used a pill one in a blue bottle that said that it was meant for volitile organisms, and it really helped whatever viral or bacterial thing I had at the time, that would not go away with abx. But that was a few years ago. This one that I am referring to now in the link, is the one my son used, and starting ticcing like crazy with it. It is in oil form. Thoughts? Can antifungals bring out tics? I still have to get him tested for lyme, in case that is what is going on. Perhaps it was the head injury that brought him over the edge, because 2 days after being kicked very hard in the back of the head, he started with the neck stretching thing.
  14. Could you explain the GAPS diet you used?
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