KeithandElizabeth Posted April 1, 2010 Report Posted April 1, 2010 I found this article about the relationship of vitamin D and infections to be very interesting. The article says that low vitamin D is the result of chronic infection versus the cause of illness and it says that supplementing with vitamin D may actually cause more harm than good. Both of my children have low vitamin D and they both have PANDAS as well as the co-infections of lyme and mycoplasma. I had been supplementing them with vitamin D until I recently read this article. http://www.sciencedaily.com/releases/2008/...80125223302.htm Elizabeth
Fixit Posted April 1, 2010 Report Posted April 1, 2010 oh man...we have low D too....not crazy low but worth noting and i thought addressing??? I found this article about the relationship of vitamin D and infections to be very interesting. The article says that low vitamin D is the result of chronic infection versus the cause of illness and it says that supplementing with vitamin D may actually cause more harm than good. Both of my children have low vitamin D and they both have PANDAS as well as the co-infections of lyme and mycoplasma. I had been supplementing them with vitamin D until I recently read this article. http://www.sciencedaily.com/releases/2008/...80125223302.htm Elizabeth
NancyD Posted April 1, 2010 Report Posted April 1, 2010 Ellizabeth, Thank you for sharing this article. I have been searching for over a year now for research that might explain why my dd14 gets worse every time she takes vitamin D supplements. She has very low D levels and I have tried giving her D supplements 3 times in the past 3 years. Each time her mood dysregulation and rages got worse -- and I was very careful not to change any other variable in her treatment while testing this. Nancy
Chemar Posted April 1, 2010 Report Posted April 1, 2010 But the study showed vitamin D is immunosuppressive.......... that surely is a benefit when one has autoimmune disease this may be another reason why my son has found extra vit D to be really helpful both for mood as well as his autoimmune Crohn's
Kayanne Posted April 1, 2010 Report Posted April 1, 2010 Thanks for posting this. I want to point out that the article mentions there is a difference between injested vitamin D and sunshine. It seems the best way to give our kids this vitamin is to make sure they play in the sun. I think this is also a reminder that we should use our judgement when applying sunscreen because it will prevent the sun's rays from being absorbed into the skin.
smartyjones Posted April 1, 2010 Report Posted April 1, 2010 I found this article about the relationship of vitamin D and infections to be very interesting. The article says that low vitamin D is the result of chronic infection versus the cause of illness and it says that supplementing with vitamin D may actually cause more harm than good.Elizabeth really interesting! i had recently tried adding vit D for my son. i thought i had to be imagining it but it did seem like i noted something of a ramp up in relation to when i gave it and had questioned myself if the vit D could be causing it. it seemed a quick reaction like you'd see a reaction to food or dye and i thought it really couldn't be the vit D, but it did seem to follow when i gave it. elizabeth - i'm not sure i knew your kids had lyme co-infections. can you tell me more about that?
kim Posted April 1, 2010 Report Posted April 1, 2010 IMHO, I think there is room for it to go both ways... harmful or helpful. Did anyone notice it was Trevor Marshall who was involved in the report? We have a couple of threads with some info on his theories, if anyone would like to look deeper In a new report Trevor Marshall, Ph.D., professor at Australia’s Murdoch University School of Biological Medicine and Biotechnology, explains how increased vitamin D intake affects much more than just nutrition or bone health. http://www.latitudes.org/forums/index.php?...rshall+protocol http://www.latitudes.org/forums/index.php?...rshall+protocol
KeithandElizabeth Posted April 1, 2010 Author Report Posted April 1, 2010 Smartyjones: We were getting ready to do IVIG on our 11 year old daughter and I wanted to make sure I had all of our ducks in a row because she did have some unusual GI symptoms last summer and some mild ankle pain. So, we did run the IGENEX test on her and her lyme did come back positive. Dr. Kovacevic said to treat the lyme before doing IVIG and we are seeing a lyme doctor in Denver who has her on 4 different antibiotics right now and I hate to say this (because I feel like every time I mention how well one of my children are doing on this forum, we have a set back) but she is doing very well. In terms of our son, we are no longer doing small monthly dose IVIG's and we did the one 1.5 dosage 8 weeks ago and we plan to wait and see. He is steadily improving. We took him to the same lyme doctor that we take our daughter and he felt that based on muscle testing, our son had lyme as well, but the mycoplasma was what was really hurting him. Where once strep was his big issue, mycoplasma was really his latest big issue. He was previously on Augmentin and this is not the drug of choice for mycoplasma. He is now on Zithromycin and omnicef as well as herbal remedies and high dose probiotics. It has been an overwhelming year, as all of you can relate to........ Elizabeth
familyof4 Posted April 1, 2010 Report Posted April 1, 2010 Smartyjones: We were getting ready to do IVIG on our 11 year old daughter and I wanted to make sure I had all of our ducks in a row because she did have some unusual GI symptoms last summer and some mild ankle pain. So, we did run the IGENEX test on her and her lyme did come back positive. Dr. Kovacevic said to treat the lyme before doing IVIG and we are seeing a lyme doctor in Denver who has her on 4 different antibiotics right now and I hate to say this (because I feel like every time I mention how well one of my children are doing on this forum, we have a set back) but she is doing very well. In terms of our son, we are no longer doing small monthly dose IVIG's and we did the one 1.5 dosage 8 weeks ago and we plan to wait and see. He is steadily improving. We took him to the same lyme doctor that we take our daughter and he felt that based on muscle testing, our son had lyme as well, but the mycoplasma was what was really hurting him. Where once strep was his big issue, mycoplasma was really his latest big issue. He was previously on Augmentin and this is not the drug of choice for mycoplasma. He is now on Zithromycin and omnicef as well as herbal remedies and high dose probiotics. It has been an overwhelming year, as all of you can relate to........ Elizabeth Can you PM the name of the Lyme doctor you are seeing in Denver? Heather
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