The Treatments that have Helped My Son

[Guest Jean]

Chemar and JC,

 

Thanks for your input. I'll take it to discuss with our naturopathic in our next visit.

ps: My son's teeth grinding usually happens during his sleep. I've nerver seen him doing it during the daytime. It doesn't sound like a tic, right?

 

Thanks!

 

Jean

[Claire]

Hi all,

 

Interesting. My son used to grind his teeth too in his sleep also, and did chip his baby teeth from it. His dentist kept saying it was normal and he would outgrow it. I had also heard it could happen from a bad bite, which was part of our motivator for braces.

 

At any rate, the only time I notice is when we go on vacation and stay in the same room. He was still doing it a little over Christmas, though less than when younger--perhaps the braces helped a bit, since we weren't doing any supplements then.

 

As you know, in January he got tested for vitamin deficiencies and we started supplements then--interestingly (based on Chemar's comment) one was panthotenic acid! Anyway, we went on vacation in mid-February and it was completely gone. Since then, we haven't been in the same room together overnight (our hotel in July had partitioned rooms), and I have just assumed it is still gone. By the I don't think I added the magnesium supplement until after this trip where I saw the improvement, since he wasn't deficient there.

 

Jean, the Spectracell vitamin deficiency test doesn't require a doctor's signature. If you pay up front it is $265 ($700+ otherwise!). Our insurance covered 70% of it--again, with no doctor signature. They just needed a diagnosis for the test, which Spectracell gave (and is legitimate!). I really like this test--I have felt marvelous myself lately after taking it and starting my own program (though I am also cutting out milk based on the IgG test). I even just got my husband to take it--we will see what happens.

 

Claire

[Guest Guest_Jennifer]

Chemar,

I am the "new" Jennifer. Claire had shared with me of doing "no screens". This completely stopped a painful neck tic that my child was doing. I was so thankful. My son's tics in the past have seemed to be present mostly during the summer months. He is still doing a couple of tics-1-spitting only when outside, but really more intensely when in a pool or water. 2-a twirling sound with his tongue. I read that your son's tics were sometimes triggered by chloring. Two summers ago when Jarrod had some mild eye tics we switched from chlorine to baquacil in our pool and didn't notice a difference in the tics. (We have an inground pool.) I do not know all the chemicals in bacquacil but wonder if there are similarities in the two(chlorine and bacquacil). Each August when school begins, the tics have faded in K, 1, and 2 grade. We stop using our pool when school starts because we are so busy. I thought I had ruled out chlorine as a trigger when I switched to bacquacil and tics were still present. I was curious how you and your son discovered chlorine as a trigger.

Thanks,

Jennifer

[Chemar]

Hi Jennifer

we used to have a pool at a previous home. my son would tic very badly after being in the pool and also any other pool.

 

We had radiogenics testing and he showed a strong reactivity to chlorine.

 

I have since heard of chlorine in pools, or when used as bleaching in linen and clothes, and in pressure cleaners, setting off tics .

 

HTH

 

I dont know of the chemical you refer to for the pool, but my son is OK in pools that use BROMINE.

[Guest Guest_Jennifer]

Chemar,

I am the "new" Jennifer. I responded with Claire several times about "no screens". This helped eliminate a painful neck tic for my son. We are stilling doing no screens, but he is still having some tics. 1-spitting tic that is outside only and much worse when in the pool 2-a tongue twirling tic that sounds like a purr almost-is especially noticeable at the beginning of sentences. The past three summers we have noticed different tics. When school starts they seem to fade. We may see a few tics throughout the year when he is tired or at holiddays, etc. The second summer we switched our pool from chlorine to bacquacil to see if there was a difference. I believe I read a trigger for your son was chlorine-I was curious how you discovered this and has he had any experience with bacquacil. I want to find out if there are any ingredients in the two cleaners that are the same. I think screens is definitely a factor. I just feel like there is a connection with the pool. We are staying out of the pool for a week to see.

We are also trying the Bonnie's plan of vitamins. Have tried it in the past summers and have seen some improvements. Maybe this will help.

 

Thanks for sharing,

Jennifer

[Guest Guest_Jennifer]

Sorry to respond twice about the same thing. I am having trouble finding my response after I log off and back on. Sorry!

 

Can you tell me more about radiogenics?

 

Thanks!

Jennifer

[Chemar]

Jennifer

 

radiogenics is not very well known in the USA, but is widely practiced and respected in Europe and Britain.

 

It is a very complicated science involving radiated electrical "readings" from the skin of the patient which are recorded.

The skill of the practitioner is critical in it's accuracy. It is done with a specialised machine and sample tubes of all kinds of substances( foods, chemicals, bacteria, viruses, medications, allergens etc )and the "reactivity" of the patient is gauged by the electrical readings from the test samples in relation to the patients reading. It is very hard to explain such a complex subject in understandable terms, but one thing I can say clearly is

IT WORKS!

 

We had radiogenics testing for many areas to help my son, and we were amazed at how the results absolutely matched the blood tests that we also had run for some of the parameters being tested.

 

Based on the radiogenics results, and those from the blood and hair analysis, my son's overall treatment plan was formulated.

The radiogenics was especially helpful in formulating the frequncies needed for his biofeedback.

 

As I have mentioned before, the physicians and therapists who helped my son all worked together as a team.

[Chemar]

some extras I have been asked about

 

--------------------------------------------------------------------------------

 

Answers to a few things that i am being asked in PMs and emails.....

 

the supplement that best "mops up" mercury from the body is chlorella

It should be used first for at least a month or more and then introduce alpha lipoic acid (ALA) which crosses the blood brain barrier and so can mop up brain mercury. ALA is best not used first because it can carry the mercury in the body into the brain, which you clearly dont want! That is why one first uses the chlorella.

 

 

the supplement that is best for eradicating yeast infection (Candida) is Caprylate (aka caprylic acid) It is best used in conjunction with a diet that helps to prevent yeast overgrowth.

An excellent book is

"The Yeast Syndrome" by John P. Trowbridge, Morton Walker.

 

(I know some people have used Nystatin successfully for yeast eradication)

 

Before beginning yeast or mercury detox, it is a very good idea to increase antioxidant intake to boost the immune system.

Detoxification can initially leave one feeling icky, but this can be helped by drinking lots of pure water.

Accupuncture and biofeedback also help to speed the detox process and alleviate the die off reaction.

 

 

Also

 

MAGNESIUM TAURATE is a reacted compound that contains MAGNESIUM AND THE AMINO ACID TAURINE.

 

If you are going to use taurine as a separate supplement, it is a good idea to also take magnesium.

Most naturopaths also recommend that magnesium intake be balanced by also taking calcium and zinc and we were told to take the calcium : magnesium in a 2:1 ratio. Some physicians recommend a 3:1 ratio.

 

My son takes adult doses of supps and so he has 500mg taurine with a total of 1000mg calcium: 500mg magnesium: 65mg zinc (the totals are cumulative from his cal:mag:zinc combo plus his multivit/mineral)

 

 

 

Please dont hesitate to contact me or post here, if you need clarification.

[Claire]

Hi Chemar,

 

That was an excellent post, thanks!

 

I remember your talking about chlorella, but it was before my son could swallow pills, and we tried the granules and it made us both gag. Heather discusses NDF for mercury, and I recently saw Mustang Carole's post that NDF had chlorella in it.

 

Anyway, I will ask our doctor whether we can add chlorella to our supplements.

 

I also read that psyllium husk fiber can absorb mercury, but they don't come in capsules and my son only swallows capsules, not pills. I am allergic to psyl husk fiber so I take guar gum for hopefully the same purpose (a soluble fiber).

 

Thanks again,

Claire

[Chemar]

Hi Claire

 

chlorella comes in very easy to swallow small capsules so you dont have to use the icky tasting granules

 

we dont tolerate psyllium very well either.

 

we use a lot of oat bran in cereals and cooking etc so between that and our fruit and veg fibre, we are getting a good dose.

 

i hadnt heard of psyllium for mercury tho? that is new to me. There is psyllium in some of those fiber things that people mix with water...the names escape me right now.

 

Claire, I have had some questions on why we did not do neurofeedback, and I can only answer that our physicians were very much against it as a treatment for TS. They were very much in favor of the regular biofeedback, but strongly cautioned us not to use neurofeedback.

 

I recall that you did try a form of neurofeedback and stopped as you were not happy.

 

If you are willing to, could you elaborate on why?

 

thanks

[Claire]

Hi Chemar

 

 

First on psyllium (I hope this also applies to guar gum which I take)

 

http://www.healingdaily.com/colon-kidney-d...n-cleansing.htm

The bulking effect of psyllium also works to rid the colon of toxic substances, including heavy metals, as it acts almost as a sponge to soak them off the walls of the intestine.

 

As for neurotherapy, my biggest concern is that not only is this experimental still, but it had side effects. For my son, them retraining the target frequencies resulted in a huge drop in his concentration (noticable by him, his teacher and me, and acknowledged by the neurotherapist). He also started to just fall asleep in the car, which he never did before (and messed up his bedtime).

 

Then after 4 weeks of 'waiting it out' based on the instruction of our neurotherapists, when I told him I wanted him to change the frequency targets back to where my son's concentration would improve, he said that those settings could introduce tics!!! (Remember, my son doesn't have tics except from computer).

 

So he messed up his concentration, and then to bring him back to normal, said he would risk giving him tics. I was furious and lost $4500--he never refunded my pre-payment.

 

I used Dance Dance Revolution dance game to try to refocus my son's attention. It did help.

 

So, from our experience, it does have an impact, just not the one we were looking for. Maybe in 10 years, more practitioners will have refined these techniques, but I don't want them practicing on my son, given the side effects. Given his high visual reactivity, he may be more reactive than most.

 

Claire

[Chemar]

Thanks Claire

 

that is valuable experience sharing that will guide others too.

 

The overwhelming reaction that I have heard from parents with children who have TS and who have tried it has been a negative one...for a variety of reasons.

 

If anyone else has experience in this area, it would be great to have your input too.

[Guest Sari]

Hello-

My son is nine years old. Until now his tics were very mild. This past spring they began to get worse and now everyone asks, including his friends, what is he doing.

He tells them "I have Tourette's and it's involuntary". For now, this stops the repetitve asking. Does anyone have any other suggestions?

 

Also, we are looking into how to help him bring down the level and severity. I am investigating the herbs and vitamins. This website is so helpful. Did anyone have allergy tests prior to using vitamins? If so, what tests were done and by whom?

 

On the meds side:

We have friends that use Urap. Does anyone have any experience with this drug or Tenex?

 

Thank You.

Sari

[Chemar]

Hi Sari and welcome

 

you will find that most of us here are a bit anti-meds...either from bad experience(like me) and/or because alternatives have offered better solutions.

 

I do know people who have tried Orap and their experiences are not good.

I know nothing about Tenex

 

Allergy identification is a big step in overall health improvement, and definitely is recommended.

 

We will all be happy to help you with any questions you may have

[Claire]

Hi Sari,

 

I bumped up a note I put together for newcomers. Between this thread that Chemar put together and that one, you should have a good starting point--then I just encourage you to read the threads and ask questions.

 

Claire