Ellen Posted February 2, 2010 Report Posted February 2, 2010 My 13-year-old PANDAS son is looking to network/penpal with other kids who have PANDAS. He enjoys corresponding with other kids (both boys and girls) of any age. A couple of weeks ago he created his own website for kids with PANDAS, and today he asked me to post about it to invite you and your kids to check it out. He hopes to hear from other PANDAS kids (or their parents) about how they deal with PANDAS, and he would love it if you would sign the guestbook and include any comments you might have about his website or your family's experiences with PANDAS. The website address is www.pandas-syndrome.webs.com. You will see that in spite all he has been through, he has not lost his sense of humor. Please encourage your kids to browse and comment if you feel it's appropriate for them. He would also welcome private emails, so feel free to pm me for his email address. Ellen
fuelforall Posted February 2, 2010 Report Posted February 2, 2010 My 13-year-old PANDAS son is looking to network/penpal with other kids who have PANDAS. He enjoys corresponding with other kids (both boys and girls) of any age. A couple of weeks ago he created his own website for kids with PANDAS, and today he asked me to post about it to invite you and your kids to check it out. He hopes to hear from other PANDAS kids (or their parents) about how they deal with PANDAS, and he would love it if you would sign the guestbook and include any comments you might have about his website or your family's experiences with PANDAS. The website address is www.pandas-syndrome.webs.com. You will see that in spite all he has been through, he has not lost his sense of humor. Please encourage your kids to browse and comment if you feel it's appropriate for them. He would also welcome private emails, so feel free to pm me for his email address. Ellen Ellen, Please tell him I found it very moving and very encouraging. Best wishes Michael
Kay Posted February 2, 2010 Report Posted February 2, 2010 My 13-year-old PANDAS son is looking to network/penpal with other kids who have PANDAS. He enjoys corresponding with other kids (both boys and girls) of any age. A couple of weeks ago he created his own website for kids with PANDAS, and today he asked me to post about it to invite you and your kids to check it out. He hopes to hear from other PANDAS kids (or their parents) about how they deal with PANDAS, and he would love it if you would sign the guestbook and include any comments you might have about his website or your family's experiences with PANDAS. The website address is www.pandas-syndrome.webs.com. You will see that in spite all he has been through, he has not lost his sense of humor. Please encourage your kids to browse and comment if you feel it's appropriate for them. He would also welcome private emails, so feel free to pm me for his email address. Ellen My daughter thinks this is a great idea and will be checking it out soon. Tell your son thanks! Good for the kids to have their own site.
ShannonOtown Posted February 2, 2010 Report Posted February 2, 2010 What a great idea.... I will pass on the link to my 12 year old ds! Our children should have their own site to support each other.
GatsMom Posted February 2, 2010 Report Posted February 2, 2010 My 13-year-old PANDAS son is looking to network/penpal with other kids who have PANDAS. He enjoys corresponding with other kids (both boys and girls) of any age. A couple of weeks ago he created his own website for kids with PANDAS, and today he asked me to post about it to invite you and your kids to check it out. He hopes to hear from other PANDAS kids (or their parents) about how they deal with PANDAS, and he would love it if you would sign the guestbook and include any comments you might have about his website or your family's experiences with PANDAS. The website address is www.pandas-syndrome.webs.com. You will see that in spite all he has been through, he has not lost his sense of humor. Please encourage your kids to browse and comment if you feel it's appropriate for them. He would also welcome private emails, so feel free to pm me for his email address. Ellen Wow, look at him go! You must be very proud of him!
Ellen Posted February 2, 2010 Author Report Posted February 2, 2010 He has come a long way and I am proud of him for be willing to deal with his PANDAS so openly now. Ellen My 13-year-old PANDAS son is looking to network/penpal with other kids who have PANDAS. He enjoys corresponding with other kids (both boys and girls) of any age. A couple of weeks ago he created his own website for kids with PANDAS, and today he asked me to post about it to invite you and your kids to check it out. He hopes to hear from other PANDAS kids (or their parents) about how they deal with PANDAS, and he would love it if you would sign the guestbook and include any comments you might have about his website or your family's experiences with PANDAS. The website address is www.pandas-syndrome.webs.com. You will see that in spite all he has been through, he has not lost his sense of humor. Please encourage your kids to browse and comment if you feel it's appropriate for them. He would also welcome private emails, so feel free to pm me for his email address. Ellen Wow, look at him go! You must be very proud of him!
Kay Posted February 2, 2010 Report Posted February 2, 2010 My 13-year-old PANDAS son is looking to network/penpal with other kids who have PANDAS. He enjoys corresponding with other kids (both boys and girls) of any age. A couple of weeks ago he created his own website for kids with PANDAS, and today he asked me to post about it to invite you and your kids to check it out. He hopes to hear from other PANDAS kids (or their parents) about how they deal with PANDAS, and he would love it if you would sign the guestbook and include any comments you might have about his website or your family's experiences with PANDAS. The website address is www.pandas-syndrome.webs.com. You will see that in spite all he has been through, he has not lost his sense of humor. Please encourage your kids to browse and comment if you feel it's appropriate for them. He would also welcome private emails, so feel free to pm me for his email address. Ellen I just did a quick check myself of the website and what a great place. will go back to check out more...he did a wonderful job!!!
monarchcat Posted February 2, 2010 Report Posted February 2, 2010 Wow, GREAT job!! What a great idea, and a great site. Nice work!
Worried_Dad Posted February 3, 2010 Report Posted February 3, 2010 The site rocks!!! What a talented young man! Our PANDAS son is also 13 and a major computer geek. I'm hoping I can get him to check it out. Tried to get him interested in comparing notes with other PANDAS kids in the past, but I think he was too "symptomatic" to want to talk to anybody. Now that he's making progress, I'm hoping he'll have a different attitude. Tell your son that - as a professional computer geek myself - I was quite impressed!
harmony Posted February 3, 2010 Report Posted February 3, 2010 WHAT A GREAT WEB SITE. BOTH OF YOU MUST BE SO PROUD. I LOVED THE BACKGROUND "I AM NOT OBSESSIVE, I AM NOT OBSESSIVE....."
Suzan Posted February 3, 2010 Report Posted February 3, 2010 Wow! I can't wait to show dd8 tomorrow. She is going to love it! Susan
mama2alex Posted February 3, 2010 Report Posted February 3, 2010 I looked at this today, and for some reason it made me cry. Please give your son my compliments on a job very well done!!
Kayanne Posted February 3, 2010 Report Posted February 3, 2010 I checked out the website, it is really wonderful!!! You must be so proud of you son. I'll have my daughter check it out...she will be seven in about two weeks, so I don't know if it will interest her a lot or not. She is doing so wonderfully right now, that it is a hard balance to strike between dwelling on it too much and/or acting like it is not an issue. I personally don't like the latter because after all, she takes antibiotics every day, she is always reminded of it.
CandKRich Posted February 3, 2010 Report Posted February 3, 2010 (edited) . Edited August 12, 2013 by CandKRich
Ellen Posted February 3, 2010 Author Report Posted February 3, 2010 Thanks all for your encouraging comments here and on my son's website! He was thrilled to read them, and he was smiling from ear to ear when he saw how many visitors he has been getting since I posted yesterday. This inspired him to develop it a little more, and I think he will continue to try to come up with ideas so feel free to check back any time and/or offer any thoughts on topics he might want to include. He is open to suggestions and loves to hear from people. Ellen ... two words... LOVE IT!!! I laughed and cried! What a talented boy you have!!!
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