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Kay

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About Kay

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  1. Bumping Just want to make sure everyone gets a chance to see this who may not have been on the board over the weekend.
  2. Myself and one other Connecticut mom (so far) will be meeting in Clinton CT on Thursday, March 29th. If there is anyone in the area who would like to meet with us please PM me and I will let you know the time and place. A chance to get together to chat and share, nothing formal. Hope more can join us! I know there is at least one other Connecticut mom I have spoken too about getting together and I have deleted the message by accident, if you see this I hope you will join us. Kay
  3. Found this link dated today on the Batavian facebook http://thebatavian.com/howard-owens/q-dr-susan-swedo-regarding-pandas/30364
  4. norcalmom, Good for you and your son! My daughter who was being treated with Augmentin 1000 xr was doing very well, most of the OCD along with other symptoms disappeared. She still had some lingering OCD though and it was not till we added Biaxin to the mix that the final OCD left. She never had any high strep titers or strep symptoms, but her mycoplasma IGG was high on the lab test. (different scale then yours but high) Her Igm was negative. I had written to that doctor you speak about with the gulf war syndrome he did say that Igg should be treated, he was careful not to say w
  5. Sometimes it just helps to write it all down and then erase. Hope you feel better!
  6. We found out about high igg mycoplasma in December of 2009. We did not treat this until September of 2010. No doctors at the time thought we needed to. We had only high IGG, IGM was normal. We treated with Biaxin for one month and it seemed to get rid of the last of the OCD issues. My daughter was being treated with augmentin (with great results)and remained on the augmentin while taking the Biaxin.
  7. My mom and sister recently picked this free magazine up at a local heathfood store. Natural Nutmeg (Connecticut) Inside is an article on Pandas written by Gail Szakacs, MD and Nancy O'Hara, MD (I believe I have seen Nancy O'Hara on the doctors list, they are in Wilton CT.) Nothing really new in the article only thought maybe another resource for some who had not known of these doctors and to show that the information is getting out there. Here is the link to the magazine online, the article is on page 34 and 35. http://content.yudu.com/Library/A1teka/NaturalNutmegAugust2/resources
  8. What dose on the Augmentin, maybe someone else can help but I think sometimes it depends on the does. 875 worked for us in the beginning but later it did not help at all had to go to the 1000xr. Just a thought.
  9. What a great post! Have a wonderful night and congrats to DS14!
  10. Can't believe I forgot to add husbands side of the family his dad was a type II diabetic also.
  11. My sister has diabetes and it is a gray area (whether type I or II), wasn't found till she was 37 but they think possibly she may have had at a much earlier age. She is considered though now as Type II she is insulin resistant could only use oral meds for awhile before having to go to shots of insulin. I suppose it is possible that she was insulin resistant for quite awhile before she was dx with it and started taking meds. My grandfather was Type II diabetic. My daughter is Pandas/Pitand.
  12. We found that not until my daughter was on the antibiotic for awhile was she able to look back and see how sick she was, and it didn't happen all at once. Still there are days we talk about things that happen and she can say she didn't know or feel that at the time etc. I think not till they start some sort of healing can they come to realize how much this has taken over their life. Wanted to add that she was 19 when we got the dx of Pandas so I don't even think age makes a difference until the healing begins.
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