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About GatsMom

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    Maryville, TN
  1. Mine does that with benedryl! Mine does well on Loratidine 10mg. He also did well a few years ago on Singulair that was given more for immune modulation than actual allergies but certainly helped with his seasonal stuff as well. Over on the MB12/Valtrex yahoo group today a mom (one of the brilliants, too) reported big success with her son's PANDAS symptoms with Ketotifen (an anti-allergy/antihistamine with secondary effects on the adrenergic system. I called our pharmacist whose been watching my son's journey for 5 yrs to ask her about it. She says from what she can see it's not availab
  2. You may want to think about adding zinc, too. If you child is a low methylator (and honestly, I'd bet most PANDAS kids are) she will be deficient in zinc on a good day. It will help lessen the severity of cold symptoms. Try to give it away from other supps, particularly calcium. My son is 16, 125lbs and I dose 50mg before bed along with his melatonin and probiotics. Zinc was one of the first things our DAN! put into his lineup years ago and even when times are good, I add it and vit c back through the winter months. HTH
  3. I'm sure sorry you're having a rough week but I, like many, think you are one amazing young woman! Oh yeah and p.s. my nearly 17 yr old PANDAS son saw your pic and is suddenly way more interested in latitudes and the copious amounts of reading I do on his behalf than ever before...go figure!
  4. Would you mind sharing the mg strength on all the components of this bedtime cocktail as well as the age of your child? Many thanks.
  5. Our DAN! originally put my son on Amanditdine stating it was an "old antiviral". I would have to attest to its efficacy as my son had the mother of all herx's after 72 hours on it. Later, when his overall health improved, OLE pulled a big trigger for him.
  6. My son is an ibuprofen responder. Hope that took the edge off for your son. I've learned to substitute vit c and/or zinc drops sometimes to at least get a little nutrition into him. At one time I even used gummy multivitamins. He always preferred a mint and I know the peppermint soothed his stomach which was always an issue, too.
  7. I sure needed to read this...especially this week. Thanks you great moms!
  8. I think we know each other from the other forum...? I don't have older kids but I am always shocked when I read something that is so earily similar to some of the thoughts I have had. I have told my husband several times over the last couple years that sometimes I just want to get in my car and drive away and not come back for a month. And guess what, one day over the summer I did just that (except i just went to my mom's, she and I got in a fight about whether or not my kids had pandas , and I was back home within 24 hours...sigh!). So unlike me to just up and walk out of the house, leave th
  9. I know the feeling, like PANDAS is sucking the life out of you... It seems you are giving all you've got in terms of treatment. It is so draining, the mental stuff... They want you there, they want you to support them, their need is real, but you look at them and you know it doesn't make any sense. They know it doesn't make any sense, but they can't help it, and you can't help them, cause no matter what you say or do, it doesn't help. I HATE THAT. So frustrating... My original PANDAS ds, now 13, is doing better now that we started Lyme treatment. My dd10 I'm pretty sure has PANDAS an
  10. Like everyone, I'm so sorry you, your child and your family are going through this. Like Emmalily, my son whose 16 is tripped up often with a gag reaction. Also like your son, he spits when the gag reaction is at its worst and it will often be the catalyst to a full blown panic attack. While he's better now, there was a day when he was highly sensitive to tags/seams/rough clothes/heavy blankets or coats. Just writing to tell you that bad as it is, you aren't alone and there are people here who will understand to the point of giving you understanding of his condition.
  11. Whats the dosage you use your yourself? I actually happen to have this product in our arsenal, bought originally for me more than a year ago. It's still in date so I can start it today as I take nothing else but a multi and omegas.
  12. Appreciate you input! What abx are used for lyme? Do you work with a LLMD? Thanks very much!
  13. I keep coming back around to Lyme. We have not tested thru Igenex, only labcorp. My ds16 is positive for strep titers and mycoplasma p. (or at least he was in april). Thru winter and spring we did 7 weeks of Azith 500 right into 6 wks of the Sammy dose of Augmentin XR right into 10 days of Biaxin CR once the myco was discovered. His gut was a train wreck. he was so, so sick. Homeopathy and TCM helped stabilize him after the abx nightmare. For homeopathy we saw the great and powerful Michael Payne. He was difficult to talk to, relied too heavily on zyto BUT he did put Gat on a remedy called Psy
  14. I'm searching for that email now but you really hit the nail on the head. For a few weeks I have an overwhelming feeling that it might be my time to get off the train. For the last five years and intensely during this last until very recently I somehow find the strength to go another day. I've always been so thankful for that tenacity but now it's nearly gone. Career and financial ruin, all nurture going out, nearly none coming back in, and a kid who's recovered enough to break away when he's motivated for short periods of time but not recovered enough to grant me my life. I work in the fringe
  15. Amber, did the 5-htp give her any stomach upset as she started on it?
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