ajcire Posted October 19, 2009 Report Share Posted October 19, 2009 Not sure if my question is going to make sense but I wondering if the intensity/symptoms usually get worse? I don't want it to sound like I think I can ignore the current symptoms of my ds (Age 7) as I don't but because I am dealing with a husband who is not totally on board and a ped. who is open to this and says he has a few patients with it but doesn't know much about it so he knows his one way that worked with those patients to treat it (he says amox which I am afraid isn't doing it) I just am curious as to what to expect. Ds's symptoms are really mild and some are so subtle that even I sometimes am starting to question myself (although I am so beyond positive that this is what it is and can see why my dh is not quite getting it). I guess what I am asking is will this get worse or is it just that this is the way my ds's symptoms present and I am fortunate that it is not extreme? Main symptoms that got me realizing it was pandas...all figuring this out after a bad year of strep in the house- frequent urination, throat clearing, history of eye blinking, handwashing, garbage hoarding, emotional/irrational, sudden onset of sleep anxiety (needing to have me in his room). Those symptoms are for the most part much better.... we had done 3 months on a low dose of zithromax with a different dr. than we see currently. the mild handwashing had stopped even before that, as did the garbage hoarding... I had not realized that was anything until after I discovered Pandas... gotta love hindsight. Now mostly we deal with him just needing to ask us to check on him at bedtime (no big deal), still can get irrational and have sudden emotional outbursts but only with the immediate family, constant attention to detail, and throat clearing is still present after we deal with strep. He gets strep with no symptoms. I know to check based on his behavior as well as any time someone in the house has it. Unforutnately my non pandas daughter gets it frequently. I hope my question is making sense.... I am trying to have it treated right but until that happens will things get worse or likely stay as is. Link to comment Share on other sites More sharing options...
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