peglem Posted October 15, 2009 Report Posted October 15, 2009 My daughter's pediatrician has been so excited since talking to Dr.s Cunningham and Latimer about My daughter's CamK results and treatment...He is a professor at a Osteopathic University satellite Campus here. He presented my daughter's case to his class this week. He so wants to make sure that other doctor's have this info, and can save kids from it. He sent in another of his patient's blood for the Cunningham test, because he thinks that patient has the same thing going on. I gave him a copy of the Mouse Model paper(thank you PANDAS Denmark! for locating that for me!) today...He was so thrilled! "This is the Columbia paper that Cunningham and Latimer were telling me about!" he said. We will have to educate the rheumatologist to get my daughter treatment (and how many kids will that help?). I wish this referral stuff didn't take so long...but, God bless this pediatrician for being so consciencious about spreading the word!
T_Mom Posted October 15, 2009 Report Posted October 15, 2009 My daughter's pediatrician has been so excited since talking to Dr.s Cunningham and Latimer about My daughter's CamK results and treatment...He is a professor at a Osteopathic University satellite Campus here. He presented my daughter's case to his class this week. He so wants to make sure that other doctor's have this info, and can save kids from it. He sent in another of his patient's blood for the Cunningham test, because he thinks that patient has the same thing going on. I gave him a copy of the Mouse Model paper(thank you PANDAS Denmark! for locating that for me!) today...He was so thrilled! "This is the Columbia paper that Cunningham and Latimer were telling me about!" he said. We will have to educate the rheumatologist to get my daughter treatment (and how many kids will that help?). I wish this referral stuff didn't take so long...but, God bless this pediatrician for being so consciencious about spreading the word! Hey Peglem, let's send this doctor a gift certificate to something--somewhere--Bless him! TMom
peglem Posted October 15, 2009 Author Report Posted October 15, 2009 Hey, ya know what else? He's not in the eastern part of the country!
patty Posted October 15, 2009 Report Posted October 15, 2009 Many people can be doctors, but not many are healers! God bless him! Where is this doctor? Anywhere in N. California? Pat
momtocole1 Posted October 15, 2009 Report Posted October 15, 2009 Dear Peglem, I have two words for you... Lucky Ducky! I can't even get my pediatrician to call Dr. Lattimer and Diana P. gave me her cell phone number for him to call her. Where is your doctor located? We just got Dr. Cunningham's blood work done today and the fed ex is in the air right now. We will see an immunologist at UC Irvine, California on November 4th to hopefuly start the ball rolling for IVIG if it makes sense. I have so many key players in place except one really important one. A doctor who has successfully treated PANDAS kids or one who is willing to research it so that he or she can treat them. I am desperate. Are you near California? Thank you, Judy... My daughter's pediatrician has been so excited since talking to Dr.s Cunningham and Latimer about My daughter's CamK results and treatment...He is a professor at a Osteopathic University satellite Campus here. He presented my daughter's case to his class this week. He so wants to make sure that other doctor's have this info, and can save kids from it. He sent in another of his patient's blood for the Cunningham test, because he thinks that patient has the same thing going on. I gave him a copy of the Mouse Model paper(thank you PANDAS Denmark! for locating that for me!) today...He was so thrilled! "This is the Columbia paper that Cunningham and Latimer were telling me about!" he said. We will have to educate the rheumatologist to get my daughter treatment (and how many kids will that help?). I wish this referral stuff didn't take so long...but, God bless this pediatrician for being so consciencious about spreading the word!
peglem Posted October 15, 2009 Author Report Posted October 15, 2009 Dear Peglem, I have two words for you... Lucky Ducky! I can't even get my pediatrician to call Dr. Lattimer and Diana P. gave me her cell phone number for him to call her. Where is your doctor located? We just got Dr. Cunningham's blood work done today and the fed ex is in the air right now. We will see an immunologist at UC Irvine, California on November 4th to hopefuly start the ball rolling for IVIG if it makes sense. I have so many key players in place except one really important one. A doctor who has successfully treated PANDAS kids or one who is willing to research it so that he or she can treat them. I am desperate. Are you near California? Thank you, Judy... My daughter's pediatrician has been so excited since talking to Dr.s Cunningham and Latimer about My daughter's CamK results and treatment...He is a professor at a Osteopathic University satellite Campus here. He presented my daughter's case to his class this week. He so wants to make sure that other doctor's have this info, and can save kids from it. He sent in another of his patient's blood for the Cunningham test, because he thinks that patient has the same thing going on. I gave him a copy of the Mouse Model paper(thank you PANDAS Denmark! for locating that for me!) today...He was so thrilled! "This is the Columbia paper that Cunningham and Latimer were telling me about!" he said. We will have to educate the rheumatologist to get my daughter treatment (and how many kids will that help?). I wish this referral stuff didn't take so long...but, God bless this pediatrician for being so consciencious about spreading the word! We are in Phoenix, Arizona...right next door!
momtocole1 Posted October 15, 2009 Report Posted October 15, 2009 Can you please forward me his contact info. Thank you, Judy...
peglem Posted October 15, 2009 Author Report Posted October 15, 2009 Can you please forward me his contact info. Thank you, Judy... I PM'd it to you!
sf_mom Posted October 15, 2009 Report Posted October 15, 2009 I would definitely e-mail Diana at PANDASNetwork.org as I think there is a Dr. in the LA area who treats. Dr. Gupta (Not sure if I'm getting the spelling correct) Can you please forward me his contact info. Thank you, Judy...
ratlenhum Posted October 15, 2009 Report Posted October 15, 2009 We will see an immunologist at UC Irvine, California on November 4th to hopefuly start the ball rolling for IVIG if it makes sense. Are you going to see Dr. Gupta?
momtocole1 Posted October 15, 2009 Report Posted October 15, 2009 Yes, do you know him? We will see an immunologist at UC Irvine, California on November 4th to hopefuly start the ball rolling for IVIG if it makes sense. Are you going to see Dr. Gupta?
jakio Posted October 18, 2009 Report Posted October 18, 2009 Yes, do you know him? We will see an immunologist at UC Irvine, California on November 4th to hopefuly start the ball rolling for IVIG if it makes sense. Are you going to see Dr. Gupta?
jakio Posted October 18, 2009 Report Posted October 18, 2009 Yes, do you know him? We will see an immunologist at UC Irvine, California on November 4th to hopefuly start the ball rolling for IVIG if it makes sense. Are you going to see Dr. Gupta? Dr Gutpa treats PANDAS ?
EAMom Posted October 18, 2009 Report Posted October 18, 2009 I don't think he is a big specialist re PANDAS but I know he has treated several PANDAS kids with IVIG. Maybe someone else who knows more will post.
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