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jakio

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Everything posted by jakio

  1. I am very glad he was able to help you but still believe his is a terrible doctor and parents should be aware.
  2. I haven't been posting in a long time but I just wanted to warn families that are considering seeing Dr. Goldberg in Tarzana, ca. We were under his care for two and a half years with absolut no result. He has no idea how to deal with Pans/Pandas/ autism. He just prescrisbes Meds and doesn't understand the consequesces of this meds on the body. stay away from him, he will not deliver but you will be spending a fortune.
  3. Just checking if anyone has seen or is in treatment with Dr. Chitra Bhakta MD in Santa Ana, California. Before we make an appointment to see her I would like some feed back. Thank you so much.
  4. Dr Cunnigham will be speaking on the radio on Monday with some other doctors from Stanford. Do you know the site? Thanks
  5. Hello, My son now 19 has had Pandas since he was 15. His ASO titers have been in the normal range for more that 2 years but still very OCD and a very fearfull of bugs. Is anyone dealing with the same issue and how are you taking care of it? Thanks
  6. Hi, our Naturopath doctor told us to drink 2/3 cups of cabage juice a day for about 2 months. good luck
  7. Thank you for the link and explanation.
  8. Good evening everyone, I have been told "frequent urination" is part of PANDAS does anyone know why this happens and how to help stop this problem? Thank you for your feedback.
  9. Hi Deby, I can give you the name of our pediatrician who is taking care of my son who has PANDAS. Dr. Goldberg, his office is in Tarzana 818-343-1010. since we started in Jan he is doing much better. Good luck Dear Jakio, I live very close to Tarzana, so thank you very much for the information. Did you son started with tics like my son? How Dr Goldberg discovered that it is PANDAS and what is the treatment that he gave your son? Thanks! Deby HI, he become suddenly OCD, hand washing, throath clearing, not touching objects .... I discovered he was Pandas by reseaching, run some test and then I got Dr. Goldberg's name in this forum. he started him with antibiotics and antiviral after he requested other tests. my son is doing better and I hope he can help yours as well.
  10. Hi Deby, I can give you the name of our pediatrician who is taking care of my son who has PANDAS. Dr. Goldberg, his office is in Tarzana 818-343-1010. since we started in Jan he is doing much better. Good luck
  11. Never heard of it. How old is your son and how much does he weigh? Does "ERY" stand for anything in particular? Erythromiacin, maybe? Yes, the generic name is erythromycin. Though I've only been on the forum for a few weeks now, I've not seen any previous references to erythromycin use for PANDAS, and as for the dosage, I suppose it depends on the age and size of your child. I'm familiar with having been given erythromycin myself in the past for sinus infections or ear infections, but I'm not clear on its effectiveness in eradicating strep. If you've scrolled through some of the other threads here, you'll most frequently see references to Augmentin, Azithromycin and/or Keflex for long-term PANDAS dosing. My 12-year-old, 120-pound son is, for example, taking 2,000 mg. of Augmentin XR daily. That is why I was asking if anyone had use it. Its only been 12 days since we started, I don't see any changes, my son says he does. we have an appointment with the doc. in 10 days and by then if this medication is not working I will ask him to change.
  12. Never heard of it. How old is your son and how much does he weigh? Does "ERY" stand for anything in particular? Erythromiacin, maybe? Yes, the generic name is erythromycin.
  13. Hi everyone, Happy New year to all!! I hope it brings peace in our homes. has anyone had any ( good or bad )experience with ERY-tables 333Mg antibiotic ??? Our doc. has started my son on it. Any info is appreciated. Thank you
  14. Thank you so much for all the info.
  15. Thank you so much, you have been so helpfull. I will contact her in the morning. thank you, thank you!!!!!
  16. I emailed her a very brief medical history of my daughter and asked her if she could be included in the study. She replied yes and mailed out the kit for blood draw. What study? she is runing a study? Yes, the kit/blood draw is for a study she is doing...the testing she is doing is not yet FDA approved. She will give you 2 research studies that will explain to you and your doctor How the test was derived and the science it is based on. But, she's still running trials on the test. Thanks. so I just have to e-mail her? is there a phone # ? Do you know Kathy Alvarez in her office is she the person to talk too?
  17. I emailed her a very brief medical history of my daughter and asked her if she could be included in the study. She replied yes and mailed out the kit for blood draw. What study? she is runing a study?
  18. Hello, does anyone have dr. Cunningham's phone # or a site where I can order the kit. all I have is her e-mail address Madeleine-Cunningham@ouhsc.edu. How did you get her kit for the blood test???? Thank you to all of you
  19. THank you Michele for the info. I found him. It is Tarzana, California. I have contacted him
  20. Hi, Does any one know the first name for dr. Goldberg and in what city in california he practices? Thank you
  21. thank you Paula and Let for the info. Would you know Dr Goldberger's first name???
  22. Hi, I read in one of the postings that Dr Goldberg in california was able to diagnose PANDAS. does anyone know which city in Ca.???? does anyone knows anything about him/her??? Thank you so much to all for all answers
  23. Are you going to see Dr. Gupta? Dr Gutpa treats PANDAS ?
  24. Hi everyone, Sorry my ignorance but I need clarifications: What is the Cunningham Test? who are where is dr. Latimer? has anyone heart of dr. Sayed Naqvi Pediatric Psychopharmacologist ? Thanks for all your answers.
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