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Showing results for tags 'RadioPandas Monday'.
What's the difference between PANDAS and all the other recognized autoimmune diseases? They have a test. MS has a test, NMDA encephplay has a test, RF has a test. None of the tests are 100% - all diagnosis also rely heavily on clinical evidence, as well as other supporting tests. And even witht he tests, it takes along time to get diagnosed. But for Pandas its near impossible - because we don't have a "test". But we do. And Swedo uses it. Why the heck don't pandas "experts" add the cunningham test to their arsenal when talking about diagnosing PANDAS? they all cite her work, and use it? Why does the NIMH site and even yesterday's Tweet Chat - overlook this test? I'm bummed I missed the tweet -chat yesterday with Swedo, but I'm trying to get a couple questions ready for the Monday night Radio Pandas. I just read Brain on Fire, and it has me thinking about the similarities and the differences between NMDR encephalitis and PANDAS. NMDA enceph. has a blood and and a CSF test that look very, very similar to the Cunningham tests. Yet even yesterday in looking at some of the tweet-chat tweets, the TOP name in pandas (Swedo) says there is no test for pandas. Not even a shout out to say there is a new test that can support the likely hood of your child responding to immune modulated treatments. And I know she believes in the tests, and I'm pretty sure the subjects in her current all get this test. I came across a pretty cool page, and I've been to subsets of this site before when searching stuff, but never this high level view, so many of you may already know about it - http://www.ncbi.nlm.nih.gov/sites/ga?disorder=PANDAS It appears pandas is on the radar for Dr. Najjar, one of the doctors that treated the author of Brain on Fire. Here is an article I just printed to read. I did a quick scan and see pandas mentioned. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3626880/ Also, take a look at the one page doc for the test for NMDA enceph test. Succinct and to the point. http://www.aruplab.com/Testing-Information/resources/TechnicalBulletins/November2010/Anti-NMDA%20Receptor%20(NR1)%20IgG%20Antibodies.pdf I wonder if high anti-NMDA antibodies will raise Cam K Ii levels? OR other disorders that are know to someone get through the BBB like MS. I think Cunningham scheduled to be on the Radio Pandas along with Brain on Fire Author Susannah Cahalan, but i'm not certain since this was a reschedule for a couple weeks ago. I hope so, because I've got a couple questions for her.... one last page I found when poking around. Here is a paper on tests for autoimmunity - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2832720/