Guest Guest Posted April 23, 2004 Report Share Posted April 23, 2004 Hi Efgh, Thanks for asking! As I stated earlier, my son is at 2nd stage of detox. This set of (3) remedies actually made his tics gradually increased (but still mild vs. before). Per our naturopath, it’s due to my son’s intolerance of detox. She suggested to stopping one of the remedies for couple days and reintroduce it from small dosage. Once he stopped THE remedy (and continue the rest of two), he became fine in 3 days. This convinces me that the right remedy is used. Currently, his tics is very mild at home, i.e., < 10x /day, but I don’t know how he’s doing at school. Efgh, I’m like you, I always have the fear that his tics will increase later. I’m trying to learn to fix my eyes on the current, and give the rest to GOD. My son is no longer on goat milk, but rice milk only. He loves the goat milk and asks for it. I'll let him have it again next week (after the NAET treatement). His nose congestion is much better (may not be congested lately). He is still no TV. I'm thinking to get the LCD TV (per Claire's post) when it's the time for him. Link to comment Share on other sites More sharing options...
Guest wondering Posted April 23, 2004 Report Share Posted April 23, 2004 I have a 4 year old son who seems to have uncontrollable little tics, he shakes when excited and his fingers open and close quickly too, about 30 times a day. He also sometimes brings his hands to his face and breaths in really hard thru his nose. Just wondering if that could be early signs of tourettes. A year ago I had him looked at incase it was Autism and it wasn't. It could be just his personal little tics I guess but do you think it could be the start of tourettes? HIs general disposition is very laid back, patient and calm. Link to comment Share on other sites More sharing options...
Guest wondering Posted April 23, 2004 Report Share Posted April 23, 2004 Also, do fatty acid supplements help this condition? Link to comment Share on other sites More sharing options...
Chemar Posted April 23, 2004 Author Report Share Posted April 23, 2004 Hi wondering yes, Essential Fatty Acids are very beneficial in helping with tics...some people seem to be a bit sensitive to the fish oils tho, while others tolerate them just fine. We use a combination of Flaxseed, Borage, Evening primrose and Fish Oil and it works wonderfully. From your previous post...has your son been to see a pediatric neurologist or a developmental pediatrician? That truly is the best way to get an accurate diagnosis. It is also important, with any form of shaking, twitching etc to rule out seizures. I can only speak from our experience, but we dont really ever see shaking" tics.....they are rather well defined twitches or movements. So many different things can cause movements in young children, including transient tics, which most kids grow out of. With Tourette Syndrome, there is usually a family history of tics. Link to comment Share on other sites More sharing options...
Ausclare Posted April 24, 2004 Report Share Posted April 24, 2004 Dear efgh, Gage my middle son was born screaming and just didn't stop for the first 7months, after numerous medical visits and no result, I finally found an ancient paediatrition that took one look and said allergies. By this time he was covered in excma (can't spell!) like a t-shirt, projectile vomiting and constipated and slept twenty minutes at a time. He ended up being allergic to breast, cows and soy milk, once we got him onto a protein free or it may have been amino acid free can't remember because I was sleep deprived for so long! He improved almost instantly. He stayed on that until he was 2yrs. Then I put him onto oat milk, but I worried about the calcium thing and changed to soy with added calcium at about age 3. None of my kids get asthma or runny noses from pollen, but Gage does get croup a lot. My 1st two kids also reacted badly to the triple antigen vaccine, I'm sure it was the pertussis part, so I refused to have the 2nd and 3rd shots, but then had to sign a stat declaration, stating why. My 3rd child is not immunised against anything. MY friend in my mothers group vaccinated her child at the same time as I did the first one with Gage, her son had his 1st epileptic fit the same day and now has a form of autism, with numerous fits per week. Another mother in the same group has a child with ADHD who reacted violently to the same vaccine, although she admits she has ADHD herself although it was unlabeled. None of our immediate families on both sides have any tic like symptoms, but most of the relations live in England and Scotland. We have no way of getting info about the Scot side. Is there a genetic test that can be done? Sugar, exciting situations whether happy/scary increase the tics and Tv. Our Tv is going to meet with an accident very shortly!!!!! I'll have to kiss Carter on ER goodbye Boo Hoo! I always seem to write long ones sorry! Ausclare Link to comment Share on other sites More sharing options...
Ausclare Posted April 24, 2004 Report Share Posted April 24, 2004 Hi all, Thanks for the positive comments on the parenting I was starting to worry about my skills. Eventually my husband will come around, but I think men see things with a different perspective and if there are any males out there with some insight I would sure be glad to hear it. Such as reacting to different parenting situations with TS. It is hard to tell if Gage occasionally plays on it ar not. I have noticed that if he complains he's bored and I keep putting him off on entertaining him, the tics do increase in loudness, any suggestions? In the next few weeks I am reducing my workload to stay at home and help in school with them, I thought that I might take Gage out at lunchtime, to decrease the buildup of holding it in all day. Special thanks to Chemar. Link to comment Share on other sites More sharing options...
Claire Posted April 24, 2004 Report Share Posted April 24, 2004 Ausclare, If you have been scanning the threads, you would notice that my son had tics from "screens" (Heather's word is much better than TV/Computer/Gameboy/big screen movies). I try really really hard not to comment on this trigger when new members arrive, but once you mentioned that TV was a trigger, I gave myself 'permission' to comment. Heather's school did this great 'no screens for a week' program. Perhaps you could talk your school into trying one? Then you might see how big a factor it is. I won't repeat what is in other threads, but I urge you to check it out. Your son may have other triggers, but finding out the most significant ones could be beneficial to you as you move forward. What to do with the information is another matter. I have a friend off the board for whom screens made a night and day difference, and for my son, it is completely binary: Screens=Tics, No screens= No tics. For efgh and Jean, it has made a big difference (not completely gone) and Heather is experimenting with it now. For us, the affect lasted for a week, so even if he viewed a screen once a week, the tics were chronic. As for tics increasing with boredom, that is reasonable to me--not to get attention, but they do get restless. When my son still had tics (before I figured out the screen correlation), we used to take him outside to dig in the garden and the tics would be gone for the focused but relaxing activity. The lunch break may be a good idea--I hope he still gets 'kid time' to build friendships. Have you noticed if he is better or worse during vacations? Claire Link to comment Share on other sites More sharing options...
Guest Guest_GINA Posted April 24, 2004 Report Share Posted April 24, 2004 Ausclair, Just wanted to let you know that I also had some struggles with my Husband regarding how to treat my son. He didn't argue or fight me about it he just didn't support me. He thought I was way out there with this. The funny thing about it is my husband also has TS so you think he would be into figuring it all out. But, that was not the case. I think some people (mostly men) need to see hard facts. Which really what were doing is more figuring it out as we go along. Some ups and some downs. I am happy to report that my husband did finally come around. He does help and support me and the kids with all the dietary changes and vitamins etc. It's a stressful thing to go through for everyone involved and it does affect your realationships. You have to remember that when someone is told your child will not be the "normal" child that you were expecting, some people have to greive and alot of people try to tune it out and not deal with it. But eventually they have to come around. Just keep doing right by you children and the rest will most likly fall into place. Good Luck, Gina Link to comment Share on other sites More sharing options...
Heather Posted April 24, 2004 Report Share Posted April 24, 2004 Ausclair, My husband was also very slow in supporting me with all of this natural treatment and we had many arguments about it initially. He has a science background and wanted to see clinical studies and reports. Since this is all so new, I basically convinced him we had to go with the anecdotal evidence out of desparation. I would say that he "allowed" me to do this because we had no other alternatives. Although he didn't support the alternative therapy at first, he also did not want to put the medical drugs into our son that were suggested which I am thankful for. Anyway, he has gradually come around to this way of thinking after we have seen so much improvement in our son but it has not been an easy road. That is why I found this site so helpful to me for emotional support since I did not have it in my home. Heather Link to comment Share on other sites More sharing options...
Claire Posted April 24, 2004 Report Share Posted April 24, 2004 My husband was cautious about my alternative treatment research and attempts, but clearly responded once we had 'hard data' such as the mercury test. Fortunately, he NEVER said a word to my son about his ticcing. Not ONCE. Claire Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted April 26, 2004 Report Share Posted April 26, 2004 To ALL those who experienced Tics waxing the past two weeks How are things? Have the tics started waning? Chemar, how about your son? How are his tics now after the sudden waxing? What do your other TS friends say about this sudden spike everywhere.. (any luck finding out the cause?). Any one experienced a pattern wherein the motor tics increase in summer and vocal tics increase in winter?? efgh Link to comment Share on other sites More sharing options...
Chemar Posted April 26, 2004 Author Report Share Posted April 26, 2004 Hi efgh the jury is still out on what caused the waxing seen by so many....I am not sure if you followed my thread on it on BrainTalk but the response was rather amazing as to folks who havent seen quite this intense a waxing in years! It seems many feel it is the pollen, but, we have had pollen before so........ At the risk of sounding odd, I am leaning toward the Lunar influence. I am finding enough credible info to lead me to believe that there is definitely a link in the Lunar cycle, and the fact that the last full moon was very notable just adds weight to this. Probably has to do with Spring Equinox and all that stuff. Anyway, I am pleased to say he is definitely on the wane again, tho still not at the baseline that he was at before the end of March.....during this waxing phase all his tics were up, with vocal just being the most evident His anxiety and frustration levels were also up. But it is good to see things settling down again...just in time for the next full moon!! As to seasonal variations...my son always seems to have(before now) his waxing in Dec/Jan, which is when his TS "began" 4 yrs ago. Heat is a trigger for him and so if he overheats in summer, he tics more. Link to comment Share on other sites More sharing options...
Chemar Posted May 2, 2004 Author Report Share Posted May 2, 2004 it's a TOOTH!!! -------------------------------------------------------------------------------- Well.......I dont know if it is the only reason for the recent waxing, but I know from past experience it is certainly a contributing factor! My son has one of his "teenage" molars coming thru! Ever since he was a baby, teething has always caused him "side effects" and since he has had the TS manifested, his tics have ALWAYS increased with tooth issues. Link to comment Share on other sites More sharing options...
Guest Guest_Julie Posted May 3, 2004 Report Share Posted May 3, 2004 I posted a note a few days ago regarding my 7 year old son. His tick has increased these past 2 weeks also. My first thought was that he has been outdoors for baseball and allergies are really bad in California. He has also been under stress. Then I thought maybe it's the new vitamin or brand of orange juice or that he has increase in eating seaweed crackers. I took him off of these items on Saturday and his vocal tick has been subsiding. Could it be the foods or is it just coincidence that others are having an increase in ticks these past few weeks? Has your kid's ticks subsided now? Link to comment Share on other sites More sharing options...
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