Chemar Posted October 7, 2008 Report Share Posted October 7, 2008 Hi to all of our members this thread is primarily for posting links to important topics here at Latitudes/ACN, whether link to a thread (copy and paste the URL in your browsers address and then paste here) or link to a specific post within any thread (if u look top right of the post there is a number eg #1...just click that and the post is brought up so u can copy and paste that URL)Any links for *other* sites, where you feel they would be beneficial to the members, are welcome, but it would be a good idea to really limit those, so that what is truly clear INFO 101 threads by our own members are grouped here, allowing all members, and especially newcomers, to be able to easily find them. We also have to be careful of the perception of "endorsing" research, products, physicians etc. If in doubt as to whether a link here is suitable, just PM me and we will check it for youWhat we want to do is try to only use this thread to minimize confusion and provide a comprehensive database of info that has primarily been gathered here for anyone searching for answersPlease NO DISCUSSION on this thread. Feel free to start a new thread below on any topic here for discussionthanks for your help in putting this valuable resource together mslejp 1 Link to comment Share on other sites More sharing options...
Chemar Posted October 20, 2008 Author Report Share Posted October 20, 2008 info from Ronnas on strep antibody titers http://www.latitudes.org/forums/index.php?showtopic=1053 updated info from Buster on ASO titers http://www.latitudes.org/forums/index.php?showtopic=3756 Link to comment Share on other sites More sharing options...
Chemar Posted October 20, 2008 Author Report Share Posted October 20, 2008 some research info gathered by Buster to provide to doubting doctors http://www.latitudes.org/forums/index.php?showtopic=3911 Buster's link to PANDAS summary article http://www.latitudes.org/forums/index.php?showtopic=3980 Link to comment Share on other sites More sharing options...
Buster Posted January 17, 2009 Report Share Posted January 17, 2009 Some information on ASO and AntiDNAseB titers An intro to ASO and AntiDNAse B: http://www.latitudes.org/forums/index.php?...st=0#entry29305 Some followup comments regarding "what's normal" http://www.latitudes.org/forums/index.php?...art=#entry29305 Link to comment Share on other sites More sharing options...
T_Mom Posted July 21, 2009 Report Share Posted July 21, 2009 Doctors we have seen who helped with PANDAS. This is a parent listing of doctors who helped--please add to this list. This is a list by parents, for our own collection of who-we-have-seen that helped us, and does not indicate any type of endorsement of these doctors by ACN/Latitudes,or by the parents who are posting here. Rather, it is a reflection of our experience along the way- http://www.latitudes...?showtopic=5023 Link to comment Share on other sites More sharing options...
Buster Posted August 17, 2009 Report Share Posted August 17, 2009 Brief history of PANDAS research from 1976 research to 2009: http://www.latitudes.org/forums/index.php?...ost&p=36300 Regards, Buster Link to comment Share on other sites More sharing options...
Buster Posted December 4, 2009 Report Share Posted December 4, 2009 Brief explanation of PANDAS -- signs, symptoms, treatment, and research http://www.latitudes.org/forums/index.php?showtopic=6265 Link to comment Share on other sites More sharing options...
Buster Posted December 6, 2009 Report Share Posted December 6, 2009 Frequently asked questions http://www.latitudes.org/forums/index.php?showtopic=6266 Link to comment Share on other sites More sharing options...
Buster Posted January 22, 2010 Report Share Posted January 22, 2010 A basic flowchart of how some of the cases on this board have been diagnosed/treated. http://www.latitudes.org/forums/index.php?showtopic=6688 Buster Link to comment Share on other sites More sharing options...
Chemar Posted February 4, 2010 Author Report Share Posted February 4, 2010 just wanted to also link the book "Natural treatments for Tics and Tourette's : A Patient and Family Guide" by our admin, Sheila Rogers there is some info re PANDAS in it, ...but it may also prove helpful to PANDAS parents because of all the other info on symptoms, diet and treatments that is "crossover" re Tic Disorders, Tourette and PANDAS http://www.latitudes.org/book.html to subscribe to Latitudes Online Magazine https://latitudes.org/membership-3/ Link to comment Share on other sites More sharing options...
Buster Posted May 28, 2010 Report Share Posted May 28, 2010 Information on how IVIG might work http://www.latitudes.org/forums/index.php?showtopic=7855 Link to comment Share on other sites More sharing options...
Stephanie2 Posted July 13, 2010 Report Share Posted July 13, 2010 (edited) The following link is for the newly formed PANDASresourcenetwork.org. This website has information for parents and people working in the medical community, as well as researchers. There are several top PANDAS health care practitioners and researchers affilliated with this site. Keep checking back, as there are plans to renovate and expand this website in the near future. Also, you can become a member of this organization so that we can contact you in the future. I have recently started volunteering for this organization and we are looking for more volunteers! PANDASresourcenetwork.org Edited July 13, 2010 by Stephanie2 Link to comment Share on other sites More sharing options...
JAG10 Posted July 13, 2010 Report Share Posted July 13, 2010 Voice America Interviews Autism One; A Conversation of Hope Hour long radio interviews with PANDAS experts and parents of their patients Dr. Kovacevic: http://www.voiceamerica.com/voiceamerica/v....aspx?aid=43934 Dr. Latimer and Laura Methos: http://www.voiceamerica.com/voiceamerica/v....aspx?aid=44414 Dr. Trifiletti and Lynn Johnson: http://www.voiceamerica.com/voiceamerica/v....aspx?aid=44551 Link to comment Share on other sites More sharing options...
Chemar Posted November 3, 2010 Author Report Share Posted November 3, 2010 thread with links to PANDAS info to take in for I.E.P at school http://www.latitudes.org/forums/index.php?showtopic=10744 Link to comment Share on other sites More sharing options...
thereishope Posted May 17, 2011 Report Share Posted May 17, 2011 A very useful website/organization... PANDAS Network http://www.pandasnetwork.org PANDAS Network is also on facebook http://www.facebook.com/pandasnetwork Link to comment Share on other sites More sharing options...
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