Helpful Threads & Links for PANDAS

[Chemar]

Hi to all of our members

this thread is primarily for posting links to important topics here at Latitudes/ACN, whether link to a thread (copy and paste the URL in your browsers address and then paste here) or link to a specific post within any thread (if u look top right of the post there is a number eg #1...just click that and the post is brought up so u can copy and paste that URL)

Any links for *other* sites, where you feel they would be beneficial to the members, are welcome, but it would be a good idea to really limit those, so that what is truly clear INFO 101 threads by our own members are grouped here, allowing all members, and especially newcomers, to be able to easily find them. We also have to be careful of the perception of "endorsing" research, products, physicians etc. If in doubt as to whether a link here is suitable, just PM me and we will check it for you

What we want to do is try to only use this thread to minimize confusion and provide a comprehensive database of info that has primarily been gathered here for anyone searching for answers

Please NO DISCUSSION on this thread. Feel free to start a new thread below on any topic here for discussion

thanks for your help in putting this valuable resource together

[Chemar]

info from Ronnas on strep antibody titers

 

http://www.latitudes.org/forums/index.php?showtopic=1053

 

updated info from Buster on ASO titers

http://www.latitudes.org/forums/index.php?showtopic=3756

[Chemar]

some research info gathered by Buster to provide to doubting doctors

 

http://www.latitudes.org/forums/index.php?showtopic=3911

 

Buster's link to PANDAS summary article

http://www.latitudes.org/forums/index.php?showtopic=3980

[Buster]

Some information on ASO and AntiDNAseB titers

 

An intro to ASO and AntiDNAse B: http://www.latitudes.org/forums/index.php?...st=0#entry29305

 

Some followup comments regarding "what's normal"

http://www.latitudes.org/forums/index.php?...art=#entry29305

[T_Mom]

Doctors we have seen who helped with PANDAS.

This is a parent listing of doctors who helped--please add to this list.

 

This is a list by parents, for our own collection of who-we-have-seen that helped us, and does not indicate any type of endorsement of these doctors by ACN/Latitudes,or by the parents who are posting here. Rather, it is a reflection of our experience along the way-

 

http://www.latitudes...?showtopic=5023

[Buster]

Brief history of PANDAS research from 1976 research to 2009:

 

http://www.latitudes.org/forums/index.php?...ost&p=36300

 

Regards,

 

Buster

[Buster]

Brief explanation of PANDAS -- signs, symptoms, treatment, and research

 

http://www.latitudes.org/forums/index.php?showtopic=6265

[Buster]

Frequently asked questions

 

http://www.latitudes.org/forums/index.php?showtopic=6266

[Buster]

A basic flowchart of how some of the cases on this board have been diagnosed/treated.

 

http://www.latitudes.org/forums/index.php?showtopic=6688

 

Buster

[Chemar]

just wanted to also link the book "Natural treatments for Tics and Tourette's : A Patient and Family Guide" by our admin, Sheila Rogers

 

there is some info re PANDAS in it, ...but it may also prove helpful to PANDAS parents because of all the other info on symptoms, diet and treatments that is "crossover" re Tic Disorders, Tourette and PANDAS

http://www.latitudes.org/book.html

 

to subscribe to Latitudes Online Magazine

https://latitudes.org/membership-3/ 

[Buster]

Information on how IVIG might work

 

http://www.latitudes.org/forums/index.php?showtopic=7855

[Stephanie2]

The following link is for the newly formed PANDASresourcenetwork.org. This website has information for parents and people working in the medical community, as well as researchers. There are several top PANDAS health care practitioners and researchers affilliated with this site. Keep checking back, as there are plans to renovate and expand this website in the near future. Also, you can become a member of this organization so that we can contact you in the future. I have recently started volunteering for this organization and we are looking for more volunteers!

 

PANDASresourcenetwork.org

Edited July 13, 2010 by Stephanie2

[JAG10]

Voice America Interviews

 

Autism One; A Conversation of Hope

 

Hour long radio interviews with PANDAS experts and parents of their patients

 

Dr. Kovacevic:

 

http://www.voiceamerica.com/voiceamerica/v....aspx?aid=43934

 

 

Dr. Latimer and Laura Methos:

 

http://www.voiceamerica.com/voiceamerica/v....aspx?aid=44414

 

 

Dr. Trifiletti and Lynn Johnson:

 

http://www.voiceamerica.com/voiceamerica/v....aspx?aid=44551

[Chemar]

thread with links to PANDAS info to take in for I.E.P at school

http://www.latitudes.org/forums/index.php?showtopic=10744

[thereishope]

A very useful website/organization...

 

PANDAS Network

http://www.pandasnetwork.org

 

PANDAS Network is also on facebook

http://www.facebook.com/pandasnetwork