Guest Guest_efgh Posted December 10, 2003 Report Share Posted December 10, 2003 Any idea what is bio resonance? Has anyone tried it and if so, has it helped?? Link to comment Share on other sites More sharing options...
Chemar Posted December 10, 2003 Report Share Posted December 10, 2003 I have not heard that term before. Perhaps it is the same as biofeedback? as that uses the reverse resonance waves as "corrective" therapy? If it is biofeedback, yes , we have used it with very positive results. Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 10, 2003 Report Share Posted December 10, 2003 Chemar, I know repeating words or phrases is a vocal tic. But if a child consciously uses the same words again and again (like for example "hello, hello" often while playing games etc or when he is bored or restless) is that a tic. what i mean to say is, he does it voluntarily some selective phrases which he likes, or some phrases in a particular tune like for example "cuuuuuuuuuuuuuuuuute" or "teeeeeeeeeny veeeeeeeny" often, should i think its a tic or is it childish behaviour. Chemar one more thing. My friend has got her son recently diagnosed of severe TS. all of a sudden he started making loud guttarals and occasional foul words. it happened suddenly and she is so upset. that was the first tic with no prior tic symptoms and her son is 10.5. doctors have prescribed risperdal and she is not happy starting it. she is too upset. Since you dealt with coprolalia can you please let me know how you coped and for how long it lasted for your son and what were the supplements that were found to give an obvious relief for coprolalia. In short, your experience on coprolalia and coping with that please. At what age did your son start having this symptoms and how long it lasted? thanks in advance. Link to comment Share on other sites More sharing options...
Chemar Posted December 10, 2003 Report Share Posted December 10, 2003 Hi My son was just ten and coprolalia was one of his earliest TS symptoms. He has learned to use substitute words to cover the bad ones, but still satisfy the need to express the tic. Tics need to be let out otherwise worse things can result It is hard to deal with especially in a home like ours where we dont use bad language..... HOWEVER and PLEASE tell your friend this.......coprolalia is a recognised symptomatic tic in TS...nomatter how she may be distressed, she should understand that HER CHILD CANT HELP THIS AND SHOULD NOT BE PUNISHED OR MADE TO BE EMBARRASSED ABOUT IT!! It is so very hard on the child already having these uncontrollable things happen so suddenly...so it is VERY important for the family especially to be understanding and show love and sympathy...NOT anxiety, disappointment or anger. efgh, there is no magic formula for tics...yes, the supplements help and other treatments help...but you cant find a quick fix for a particular tic.... You can supplement and try the accupuncture etc and do the allergy tsts and try to make things as good as possible and yes, then you do see positive results...but if it is TS, there WILL still be tics, just not so severe. As to Risperdal.....I personally would not go near it!!! It does not have a good reputation, and brings a ton of side effects. From all the reports that I have heard, the only med that seems to have reasonably few (not none) side effects is Clonodine.......but even there, as with all drugs, should be approached with caution. As to your son saying a particular word or sound, yes, that is normal in TS and, for my son, he has also explained a sense of "comfort" from some words and sounds...once again bringing in the OCD side. Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 10, 2003 Report Share Posted December 10, 2003 thanks chemar. would pass on your advice to my friend. she is upset becos this is his first tic. CAN SHE HOPE THAT THIS WILL PASS . How long did your son have to cope with coprolalia? I have spoken to her on supplements, acupuncture, etc. Regarding my son repeating a certain word on and off, what perplexes me is that there are only a couple of words which he repeats everyday. suprised that he finds only those 2 or 3 words so satisfying (like cuuute, hello, mummy , etc) . was asking you since I did not know if it was a Tic or a normal fun like thing. I felt it was a tic since it was so "out of context". Is my presumption right? Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 10, 2003 Report Share Posted December 10, 2003 How many sessions of acupuncture did your son go thru? how long did each session take? any pains or side effects etc? since my child is basically the restless kind, was wondering if he will sit thru the session in case I decide on this. since you said it was relieving for him i thought i will gather more info on that. ... Link to comment Share on other sites More sharing options...
Chemar Posted December 10, 2003 Report Share Posted December 10, 2003 My son has been having accupuncture for four years now. When things were severe, he went once a week. The sessions included reflexology and biofeedback with the accupuncture and lasted about 80 min. for $95 The accupuncturist is a very nice person who made my son feel totally at ease (he was nervous at first) and a good accupuncture therapist is able to insert the needles quickly, correctly and with no pain or side effects. I would choose a therapist who operates thru a clinic, or physicians office etc rather than just out of the phone book......there are a lot of people who practice more as a philosophy rather than a therapeutic treatment, and some of those may not be properly trained and certified. Coprolalia, when one has it, comes and goes just like any tic....sometimes they leave, and never return...... sometimes the same tic characteristically waxws and wanes. Best off she should try to help him cope by ignoring it at home so he can "let it out" and that way he will hopefully be able to substitute when in public. Please note I said substitute...ie find a more exceptible word or phrase that sounds similar to the bad one and say it or say parts of the bad one under his breath etc when in company. I am not recommending trying to suppress the tics....that really can be a tic trigger in itself. If you try to keep them in too long, they need to explode after a while, and sometimes, OCD intensifies when tics are suppressed. Have you ever been to dr Duncan mcKinley's website? It is especially helpful re kids. Dr Dunc is a psychologist who also has TS and he does lectures and seminars, where he talks about how hard it is to suppress tics and the worse effects it can have here is his website again http://www.lifesatwitch.com Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 11, 2003 Report Share Posted December 11, 2003 How do you all rate Homeopathy for tics? I know homeo is a slow process but still any good success stories with respect to homeopathy for tics/ocd?? Since it does not inolve any needles, etc and is straight forward , am very much interested in exploring this option. I know of a good homeopath who is also basically a allopath and hence wanted to fix an appt with her once I get your feedback on homeopathy. Chemar, thanks for your info on accupuncture. Also, what exactly is biofeedback? how long does each session take and what is the procedure as such? any side effects?? Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 11, 2003 Report Share Posted December 11, 2003 Chemar, I mentioned to you about bio resonance. Here is the link explaining that http://www.naturaltherapycenter.com/biores...onance_therapy/ Is biofeedback that you were mentioning about similar to this??? Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 11, 2003 Report Share Posted December 11, 2003 Read in a few brain talk posts as to how whole grain products can increase tics.. suprised since I thought they are more natural and have been frequenting the health stores to specifically buy them. Do you have any idea about this and do you people use whole grain stuff mostly? Link to comment Share on other sites More sharing options...
Chemar Posted December 11, 2003 Report Share Posted December 11, 2003 Yes...the biofeedback and bioresonance seem to be the same. Our accupuncturist does it while simultaneously doing accupuncture and reflexology in the same approx 80min session and charges $95 Only good side effects...relaxation and sound sleep. Homeopathy is a good thing but we could not find a homeopath who would acknowledge TS per se....instead they treat the constitution...and we actually found the remedy suggested exascerbated the tics. Those who have GLUTEN allergies react to whole grain products with increased tics. My son is not Gluten intolerant and so responds well to whole grains. Link to comment Share on other sites More sharing options...
Phyl Posted December 11, 2003 Report Share Posted December 11, 2003 _efgh, If your friend's son suddenly began having explosive vocal tics, has she explored PANDAS? Has her son recently had a strep or any other infection? There is a lot of information about sudden onset of tic attacks and their relation to strep or other infections on the tourettes forum at MGH braintalk. Also, I think there is a separate PANDAS forum there. Link to comment Share on other sites More sharing options...
Guest Guest_efgh Posted December 12, 2003 Report Share Posted December 12, 2003 Phyl, thanks. will let my friend know on PANDAS. Chemar, whole wheat contains gluten. But whole rice (brown rice) does not contain gluten, right. since I saw lots of info in braintalk on avoiding brown rice, etc.. The rice milk i give my son is from brown rice and hence was wondering. Ronna, my son has had a lot of sore throat infections, sinus infections since birth but not strep throat. his tics have not significantly increased due to strep but rather have been constant with some slight waxing after cold/sore throat/cough etc which is pretty natural. His throat swab proved that there is no strep infection (I know that its not the best test to rule out). My doctor is obviously unaware of PANDAS. Should i still dig deeper into this? On what basis can I even suspect PANDAS in this case. Can you please let me know the kind of OCD symptoms PANDAS kids' may have? Jennifer, What are the ocd tendencies that your son is lately manifesting? Since I am not able to distinguish if some of the compulsions my son has is due to OCD/ tics or normal behaviour. Sometimes he uses the word "scary, scary" when he reads a horror book and is sometimes afraid to go to the bathroom when its dark. Dont know if I am scrutinising him a bit too much (probably , I am having OCD now!!). Being naive in this field, it would be useful if you all let me know the OCD symptoms that your kids' manifest ... thanks. Link to comment Share on other sites More sharing options...
Chemar Posted December 12, 2003 Report Share Posted December 12, 2003 Thankfully my son's OCD is so reduced as to be hardly noticeable. When it was bad it included phobias, perfectionism, irrational thoughts and actions, injurious skin picking/poking/biting and a host of stuff. Also saying words and phrases etc etc. Often difficult to distinguish where the tics end and the OCD begins!! The words he most frequently used to explain what was happening were "I HAVE to do it, or else....."...... "It HAS to be JUST RIGHT"......"I cant stop" ...."I cant help it"...etc etc etc He still likes to order things and have them "Just Right" but it is no longer life consuming. He is more prone to fears and phobias than my non-OCD son, but, again, it is no longer irrational or all-important. My son did not have the neatnik type OCD like hand washing etc. As a matter of fact, he is just the opposite and is pretty untidy Link to comment Share on other sites More sharing options...
Guest Jed Shlackman Posted December 23, 2003 Report Share Posted December 23, 2003 Bio-Resonance is a rather sophisticated type of biofeedback system. Another relatively new system of biofeedback assessment and treatment that is becoming popular is called the QXCI www.theqxci.com These systems focus on working with energetic information processing, and can help a variety of conditions. If you can afford these types of treatments they are certainly worth trying, and if effective these treatments are more valuable than whatever they may cost. -Jed Link to comment Share on other sites More sharing options...
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