Frazer Posted September 25, 2007 Report Share Posted September 25, 2007 Okay so I am seeing a doctor soon and I am thinking I have Pyrrole disorder...I am not a doctor but any advice on how to talk to him about this and what to ask/demand/request etc. would be great help. Link to comment Share on other sites More sharing options...
kim Posted September 25, 2007 Report Share Posted September 25, 2007 Frazer, What kind of Dr. are you seeing? Is it a reg. MD? Link to comment Share on other sites More sharing options...
Frazer Posted September 25, 2007 Author Report Share Posted September 25, 2007 Frazer, What kind of Dr. are you seeing? Is it a reg. MD? Yeah its my regular MD... Link to comment Share on other sites More sharing options...
faith Posted September 25, 2007 Report Share Posted September 25, 2007 I doubt any regular medical doc would be familiar with this or even think it would be beneficial. Even our naturo did not seem to be familiar with it altho she did give us a trial of zinc and b6 after reading up on it. I think the best way is to look up a lab like Bio-Center or Great Plains and order the test yourself. I don't think you need a doctors signature on it, and they will give the instructions on how to send it back (it is a urine sample, I believe) and then you will get the results and their recs on what to take. http://www.nutritional-healing.com.au/cont...ading=Pyroluria Faith Link to comment Share on other sites More sharing options...
michele Posted September 25, 2007 Report Share Posted September 25, 2007 www.pyroluriatesting.com is the website we were told to used by the DAN Dr. my son sees. It is expensive to ship air overnight but worth it to get the results! I bet my husband would have it since my son did. He has many of the symptoms too and we always thought it was depression and anxiety. Michele Link to comment Share on other sites More sharing options...
Chemar Posted September 26, 2007 Report Share Posted September 26, 2007 Hi Frazer yes the Pyroluria tests are ones that can be shipped direct to you and then you ship them back. Some dont even require a doctor's signature. we should have a list of some of the places that offer the test somewhere here in the archives...maybe a search on pyroluria will bring up more info for you Link to comment Share on other sites More sharing options...
kim Posted September 26, 2007 Report Share Posted September 26, 2007 Frazer, I agree that it would probably be better to have your own test done and sent in, however if you have insurance and money is an issue, you can ask your reg Dr. to do a good blood profile for you. Most Dr.s are pretty willing to test lead (will show up if you have ongoing exposure) and if you tell him you would like zinc and P5P (B6) tested also, you may not get too much flack. My very mainstream Pediatrician was willing to test for those, but if I would have mentioned something like pyroluria, I think I would have gotten "that look." It's just is not a condition that is recognized by reg. drs. I don't know if the testing would be as accurate as the labs that specifically do pyroluria testing (probably not), but it would be something. If you decide to have a blood profile done, be sure to ask for a copy of the report. You may just want to tell the Dr. that it seems you have been catching every bug that comes along, instead of telling him what you're really looking for. One other thing, if you are taking any medications for TS or anything else, it is always best to have a qualified medical professionals guidance. Interactions btwn supplements and prescription drugs can have serious interactions in some cases. Link to comment Share on other sites More sharing options...
michele Posted September 26, 2007 Report Share Posted September 26, 2007 I ordered the test myself from www.pyrolauriatesting.com. I paid for it including the test, shipping and lab testing. We received the results back within a week.Remeber you can not take zinc or vit b-12 for 48 hrs before this test. Link to comment Share on other sites More sharing options...
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