Licking Lips

[petb]

Hi All,

 

My son has been doing so good lately.

But his only thing is that he has been licking his lips. He has always done this on and off. I have writtin in about this before. But it is so bad now, he has such soars all around his mouth, not his lips. They scab and then he picks at them and it is never ending. I am afraid he is going to be left with some bad scars. I put Colloidol Silver on it. Not sure what else to put on it. Any suggestions?

 

He is on supplements:

 

Vit. B (B12, B combo)

cal/mag

fish oil/evening primrose combo

taurine

L-Carnitine

 

We do see an intergrative doctor but she didn't give me any advise on this.

 

Is there something we are missing that could help this? Not sure if this is a tic or ocd.

 

ps

the L-Carnitine helped his vocal go away. What a relief for that.

 

Thanks

PetB

[kim]

PetB,

 

We went through that whole ordeal so many times.

 

Honestly, the thing that really helped was just jumping on it at the first sign with every type of lip balm on the store shelves. The flavored Chap stick was always a favorite, but we used almost all of them. The key was to use immediately.

 

I have made many trips to my youngest sons school because he forgot his "lipstuff."

 

I'm sure there are healthier products available.

 

I did have them rub olive oil around their mouth, if we couldn't locate one of the 50 or so, tubes

 

You've got to watch out for the laundy though. I don't know how many times one was left in a pocket. If it makes it to the dryer, it leaves some awful spots on clothes!

 

Is your son taking any zinc? That may be helpful too, especially with healing whats already irritated.

[Chemar]

the health stores carry some really good and healthy lip salves and balms...the bee propolis ones are good and so is pure aloe vera gel

 

this could well be what I call a linked TS/OCD tic , where one triggers the other and so a tic becomes OCD or an OCD becomes a tic etc

 

is he taking INOSITOL? or Methionine (or samE )

those can help with OCD and so that may help

both are best taken with vitB6 or better yet P5P if that isnt already in your supplements

 

hope that helps

 

(there are also natural scar removers should any occur)

 

so good to hear the L-CARNITINE is helping with the vocal tic!

[faith]

petb,

May I ask you a bit more about your son's history of symptoms? You say carnitine helped with the vocal he had? Could you tell me how long he had that and when you started that supplement and anything else that you have done, since my son is dealing with that type of tic right now, a squeak noise. I am afraid to haphazardly try an amino acid without direction from our naturo, but I want to ask about that. I am always afraid some supplement will cause some other domino type effect.

 

Thanks

Faith

[petb]

petb,

May I ask you a bit more about your son's history of symptoms? You say carnitine helped with the vocal he had? Could you tell me how long he had that and when you started that supplement and anything else that you have done, since my son is dealing with that type of tic right now, a squeak noise. I am afraid to haphazardly try an amino acid without direction from our naturo, but I want to ask about that. I am always afraid some supplement will cause some other domino type effect.

 

Thanks

Faith

 

 

Hi Faith,

 

my sons vocal was so bad for about a month. very disturbing in school. He slowly stoped and it probably took about 2 weeks.

He was making a load hummm noise.

 

I do see an intergrative doctor. I am always bringing her supplements that i think he needs and she tests his body with a muscle resistence to see if he needs it.

 

I did bring her Inositol but she gave me Cataplex G. her products are from Standard Process Inc. it has a como of Niacin, B6 and it does have some p-5-p.

She felt he needed 1,000 mg of Carnintine but I am only giving him 500mg. I feel that is high, he is only 7.

 

We were dx 6 months ago and he has made such great progress. somedays harder then others. but definately more good days then bad.

 

 

PetB

[Cum Passus]

Petb,

 

My son also was to take cataprex G from standard process, he want nuts on that. Did you give your son her product? My sons profile says he is high in Adipate and intervention options are B2 and Carnitine I have been thinking about trying it. 400 mg is on his chart, your son is 7, mine is 13, do you think my son should go higher? Of course I would start out low. I'm just wondering if your DR. said why she thought he needed it at 1000mg.

 

Thanks for sharing,

C.P.

[petb]

Petb,

 

My son also was to take cataprex G from standard process, he want nuts on that. Did you give your son her product? My sons profile says he is high in Adipate and intervention options are B2 and Carnitine I have been thinking about trying it. 400 mg is on his chart, your son is 7, mine is 13, do you think my son should go higher? Of course I would start out low. I'm just wondering if your DR. said why she thought he needed it at 1000mg.

 

Thanks for sharing,

C.P.

 

 

Hi C.P,

 

My son has been on Cataprex G for 1 1/2 months and i think he is doing fine on it. What was your sons reaction?

He is also on Cataprex B12 & Cataprex B. Along with a Omega combo that is hers too. And taurine. We stopped his multi. He was bouncing off the walls and when we stopped them he calmed down.

 

She does a muscle test to see how much he needs. I did give him 1 (500mg) of carnintine and 1/2 (250mg) in the afternoon and he seemed hyper from it so I am just doing 1 in the am even though she said his body needs 2.

 

She does NMT and is treating him for alot of things that need balancing in his body. She said she gets 100% results from tourette's so I am just waiting and praying. She is 1 1/2 hours from me and we go once or twice a week. He needs so many treatments so I go as much as I can to get them over with.

 

We also do ionic cleanse foot baths to help detox him.

 

Around christmas time he started doing a really bad neck tic, he was in so much pain I had to take him to the chiropractor. She figured out it was a webkinz he got as a gift and he was sleeping with it. As soon as we took it away he stopped. That was amazing to me that she figured that out. Just by a muscle test. Sounds crazy - right?

 

He does get worse after a treatment before he gets better so he could be going through a deotx now. His face is so bad right now with alot of blisters on it from licking around his mouth. This comes and goes too.

 

 

I keep thinking we are missing something and I just can't figure it out.

 

Thanks

PetB

[Chemar]

I keep thinking we are missing something and I just can't figure it out.

 

Thanks

PetB

 

PetB

 

did u see my question re the serotonin and OCD related tics?

 

I am asking this because the only time my son had lip tics was when his OCD was raging

[faith]

Petb,

Was that webkins you say? My son has 4 of them! He carries them everywhere and they are in bed with him every night. Please tell me what you meant about the neck tic being caused by it. What was it about the webkinz that caused that.

 

Please stay with me on this a bit. I am wondering how long your son had symptoms before he was diagnosed TS. You mentioned his vocal was disturbing in school--how did you handle that re the teacher, etc. I am trying so hard to ignore it, but heaven help me, this squeaky sound is very annoying to listen to when he is doing it alot. Are your son's symptoms milder now (aside from the lip licking) since you have started supplementing.

 

Your integrative doctor sounds interesting. Is it a naturopathic doctor? Ours gave us a product called Bio-3B-G, which sounds similar to the one you speak of. Have you found that beneficial? I was beginning to question his reaction to it, not hyper, just imagining tic increase, but not sure. This doc is not in NY by any chance?

 

Thanks for your help.

Faith

[Guest]

Hi PetB,

 

I don't know if this will help your son in anyway, but I wanted to mention it incase it would. I've been having this lip sucking/licking type of tic/stimming action on my off chelation days. However, if I do daily Epsom Salt baths on my off days it goes away. So maybe try daily Epsom Salt baths if you're not doing them already for your son. For me I must be low on magnesium after chelation rounds & the epsom salt also helps to get rid of toxins.

 

Carolyn

[petb]

Petb,

Was that webkins you say? My son has 4 of them! He carries them everywhere and they are in bed with him every night. Please tell me what you meant about the neck tic being caused by it. What was it about the webkinz that caused that.

 

Please stay with me on this a bit. I am wondering how long your son had symptoms before he was diagnosed TS. You mentioned his vocal was disturbing in school--how did you handle that re the teacher, etc. I am trying so hard to ignore it, but heaven help me, this squeaky sound is very annoying to listen to when he is doing it alot. Are your son's symptoms milder now (aside from the lip licking) since you have started supplementing.

 

Your integrative doctor sounds interesting. Is it a naturopathic doctor? Ours gave us a product called Bio-3B-G, which sounds similar to the one you speak of. Have you found that beneficial? I was beginning to question his reaction to it, not hyper, just imagining tic increase, but not sure. This doc is not in NY by any chance?

 

Thanks for your help.

Faith

 

Hi Faith,

 

The webkinz thing was crazy. I guess he had an allergic reaction to it. The fibers in it. Yes the tic was from that. He slept with it for 1 week till we figured it out, when we took it away it took like 3 days to stop. He always sleeps with stuffed animals but I found one that is all cotton and we can wash it. She did test him for a bunch of his animals and most of them he had a problem with. Do you do muscle testing? You can try it yourself. I do and he has a problem with playdoh and molding clay.

 

He has become so sensitive to everything. One tic acted up bc we went into an old museum that used to make clay and the air in it made him start vocal tics. When he has a vocal I go crazy inside. I can't take it. We had to leave the movies a couple times becaue he was getting louder then the movie. His vocal builds up till it gets really loud. His sensitivies are environmental too.

 

His history is this... I took him to a neuro is summer of '05 for pretty bad tics -jumping. He stoppped so i didn't think it was anything. Well it came back really severe sumer of '06. Went back to nero and he wanted to put him on tenex right away. He was jumping and vocal probably like 5-6 things all together and like 30 x a min. it was so no-stop. It was so scary. I can't even tell you how bad it really was. We didnt go out at all. I kept him away from everybody. When we were out people would look and say things to him. You could imagine how I was.

 

This was 2 weeks before school started. First grade. I was a wreck. He was not going to be able to sit in a classroom. We were looking into home schooling him. I decided the med was not the way I wanted to go. I called the principal and met with her and his teachers and nurse and gave them nicely laminated booklets explaining what tourettes is and how to deal with it. I will look up the site and post it. It had a page on a speach to read to the class. The have been so helpful. His teacher sends me home everyday a sheet that she marks through the day on his tics. 5 different areas (sniffing/vocal, facial/eyes, upperbody/head, lower body/legs, entire body) and she tracts him 4x a day. She came up with this. It has helped me so much. We are our childrens advocates. It is our job to be sure they are safe and happy. I tell everyone I know how I have helped him. The more people know the more care he gets. He has an IEP now.

 

So i researched and researched found this amazing site and found there is another answer. We dramaticially changed his diet and the most of the tics stopped within 3-4 days. He used to eat a "normal" kids diet. full of dairy and wheat. I through all of our food out and replaced it with healthier versions. Before school started he food shopped with me everyday. The closed whole foods is 40 min away. I go there regularly. So he is very educated on what he can and can't eat. And tells others how bad their food is too.

 

Now we are all organic and I cook all the time (never really did before). I educated myself so fast and I am so proud of what I have learned I am now enrolled to become an Intergrative Health Counselor. Talk about a blessing-in-disguise...this was for me. It was the best thing that could of happened to me and my family. I am a changed person.

 

I run a food co-op at my house suppling families with organic fruits and vegs. I can't preach enough how important the food we eat is. My son never ate like this and you should see how he eats now.

 

I did get his IGG and found he had 12 sensitivities. I found a ped that did that test for me. His reg ped doesn't agree with what we are doing. Talk about ignorant doctors. The doctor we found now is in PA I live in NJ. She is just an intergrative dr. She has helped freeing him of his sensitivies. But she isn't the only answer. I do alot of things to help him too. He sees a therapist. And do Reiki on him. I feel alot of this stems from anxiety. I believe keeping his diet clean helps him get better quicker. I bring her the supplements I think he needs. We go all the time to her. We have just started to cut back. I am thinking going all the time probably wasn't good for his body. But I am desperate to get results. She has an article out on how she cured a girl from a severe peanut allergy.

 

Now he is not tic free. There always seems to be something. It gets worse sometimes. But he is in a classroom. Has friends. And is reading. So I couldn't have asked for more. He has some dyslexia too and OCD, ADHD. But he is getting pulled out for help reading. There were so many signs that I didn't see before he was dx that I see now that he had growing up. Our eating habits were so toxic.

 

Sorry to ramble but I am so proud of how far he has come in such a short time. I am so proud of him. He never complains on taking all the supplements or going to so many different doctors all the time. I have a 10 yr old daughter too and this has been hard on all of us.

 

I hope that may have helped you a little bit.

 

My prays go out to all of us to find the strength to get up through everyday.

 

PetB

[petb]

Hi PetB,

 

I don't know if this will help your son in anyway, but I wanted to mention it incase it would. I've been having this lip sucking/licking type of tic/stimming action on my off chelation days. However, if I do daily Epsom Salt baths on my off days it goes away. So maybe try daily Epsom Salt baths if you're not doing them already for your son. For me I must be low on magnesium after chelation rounds & the epsom salt also helps to get rid of toxins.

 

Carolyn

 

Thanks Carolyn,

 

We do do epson salt baths but only everyother day. He's a typical little boy not wanting to stay in the tub to long either. But that could very well be what is happening. The baths did help in the begining when he was bitting his upper mouth back in sept.

 

PetB

[Cum Passus]

Hi Petb,

 

I hope you don't feel like a yummy bone and we are all dogs trying to get a piece of you.

 

On the Standard Process my son was non-stop vocal, it was like he didn't take a breath of air.

 

I was in the health food store yesterday and there was a lady doing the ion foot bath. Could you tell me how your son does getting those baths? I was afraid my son would go through a die-off from the baths and can't get past, will this help, or make things worse.

 

I'll be the first to ask, what is a muscle test, and how does one do it themself?

 

Thanks for shareing so much I'm really happy for you, and your family. It is comforting to know I'm not the only one with a son who's noises drive me up a wall. I just keep praying for many graces, to get me through another day, week, month, year. It is so nice to see an improvement, and to thank God for that beautiful day, even in the back of your mind you know there is going to be a bad one coming up the pike.

 

I feel like screeming on the roof tops of schools... YOU ARE POISONING OUR KIDS!!!!!

I hope you have the chance to help a lot of people with what you have learned.

 

Thanks for all you help.

C.P.

[petb]

Hi Petb,

 

I hope you don't feel like a yummy bone and we are all dogs trying to get a piece of you.

 

On the Standard Process my son was non-stop vocal, it was like he didn't take a breath of air.

 

I was in the health food store yesterday and there was a lady doing the ion foot bath. Could you tell me how your son does getting those baths? I was afraid my son would go through a die-off from the baths and can't get past, will this help, or make things worse.

 

I'll be the first to ask, what is a muscle test, and how does one do it themself?

 

Thanks for shareing so much I'm really happy for you, and your family. It is comforting to know I'm not the only one with a son who's noises drive me up a wall. I just keep praying for many graces, to get me through another day, week, month, year. It is so nice to see an improvement, and to thank God for that beautiful day, even in the back of your mind you know there is going to be a bad one coming up the pike.

 

I feel like screeming on the roof tops of schools... YOU ARE POISONING OUR KIDS!!!!!

I hope you have the chance to help a lot of people with what you have learned.

 

Thanks for all you help.

C.P.

 

Hi C.P.,

 

I love sharing all that I have done so don't feel funny to ask me anything. That is how I get strenght too, by sharing it helps all of us.

 

Sorry to hear about how your son reacted. I guess that is why we all react differently to each supplement. And that is why she tests him.

 

The foot bath is called Ionic Foot Bath. She has one in her office. It does cost like 2,000 or so. His body tested that he only needed 20 min once a month. It pulls out the toxins. The color of the water changes depending on what you are detoxing. I was in there and saw a pretty sick man pass alot of guck. I never tried it yet. I am spending all my money on him right now.

 

A muscle resistent test is similar to NAET. she does that too but NMT is supose to be better then NAET more advanced.

 

I am still learning how to read the resistence. You need to do it to another person. Your child has to hold their arm out. and you lightly push on his wrist. And then he holds something in his other hand it will loose resistance or stay strong. It takes a while to get the hang of it.

 

Another way to practice this is to put your opposite hand above his head ...flat side down should give you strenght and back side down to his head will give you resistence. Sorry if that sounds confussing. You can practice this on anyone.

 

I would NEVER do this to test him for supplements. I did it with hard things like clay. She tests him for foods but it has to be in a glass vile. This is NOT something I regulary do.

 

 

The very first dr I found did a Bi-Digital_o-Ring test. And it was very similar to that. This stuff may seem pretty out there but it does work. I didn't believe it at first. That is why I did the blood test. I needed hard evidence. We went through Immino Labs. I was making milk and doing a rotation diet for like 3 weeks. Talk about depressed and crazy. I couldn't do it anymore. So I decided to give her a try and it is my answer. She has freeded him of most of his sensitivities. He can now eat eggs and rice and oats, rotated of course. One day wheat in moderation can't wait until that.

 

We don't go to restaurants anymore. He brings lunch and snacks everywhere he goes. No extra food at all. He has become fine with it. He knows how bad he was when he ate those foods and his tics were worse.

 

For his birthday we found an organic restaurant and he had a hotdog and some of the roll. I just wanted him to feel normal again. and the roll set us back 2 weeks of vocal again.

 

I have now replaced all of his favorite foods with foods he can eat. It was challenging but I am determined to get him better. Or at least under control. I food shop alot.

 

I can't wait until I finish school and can give a lecture to the school on how the school foods and parents are polluting our kids.

 

 

 

PetB

[faith]

Thank you so much for sharing this info. It is still all a little confusing. I am currently on the road of taking away foods not tolerated per the Igg type test. I feel he has done better re the head bobbing, but the vocal remains. I saw that foot bath advertised at my naturo's office so I know she does that, however she has given us a product called Metal-Free which is supposed to detox in a slower, gentler manner. We just started this a few days ago. We spray it under his tongue and he holds it for a few minutes. It contains some of the natural detoxers such as chlorella, etc. And it is somewhat expensive for a small spray bottle, over 150$. Do you really feel this path you are taking has had a positive effect in terms of improvement. Do you mean most of his ticcing is under control since you did this desensitizing? Please forgive me for asking same questions more than once, but I am feeling quite depressed at the moment. -- C.P., in spite of my downer, you made me laugh about the yummy bone analogy!

 

I probably will want to know more. Right now my head can't think straight. I'm going to be opening another thread, because the day has come that I have dreaded -- the teacher called me yesterday to tell me she had the school psychologist sit in and observe my son during class. His work habits are very poor, so she gets pretty frustrated with him. I have brought his issue on the tics up with her several months ago, so she knows I am on top of this. However, she seems to want to push the envelope to "figure out wha'ts going on with him so we can help him". I am going in today to bring in cupcakes for his birthday (organic cake mix, of course!). I feel so down and frightened. I know I am about to have a formal meeting about this (she feels his noises are pretty bad), and I honestly don't know what I'm going to say. I am good at writing, but not so good at talking, I get tongue-tied and start rambling. I want to keep my head on straight. So I will have to ask how others have dealt with the school system on this. I will elaborate more on a separate thread.

 

thanks,

Faith